c16vey

17 posts

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c16vey

c16vey

@c16vey

Katılım Nisan 2012
21 Takip Edilen4 Takipçiler
c16vey
c16vey@c16vey·
@O2 why is it taking 2+ weeks to sort out my watch eSIM? Does no one know what to do? After 22 years as a customer I am beginning to lose faith
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Partha S Kar 🇮🇳🇬🇧🏏🎥
Time to get back to ‘life’ Always my inspiration- and every day I miss you “Why do you take on so many battles and roles?” To keep myself busy and a little bit less sad Cos the sadness scorches the heart It’s a struggle yet life must go on x
Partha S Kar 🇮🇳🇬🇧🏏🎥 tweet media
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c16vey
c16vey@c16vey·
@AtoniB @parthaskar The sliding scale would not have covered a meal with at least 70 carbs. It really saddens me. I know there is protocol but I know my child!
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c16vey
c16vey@c16vey·
@AtoniB @parthaskar Wow 😮 Wtaf? Had this when boychild was in two years ago with DKA. He was 15yo. I gave insulin by pen with his food. Got told off but I said ok give it an hour and bloods went ok. If I hadn’t given him any insulin he would’ve been high and had to stay another night 😔
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c16vey
c16vey@c16vey·
@parthaskar I hope we get offered this in clinic on 22/04. Very non-compliant t1 aged 17 😢 dx since he was 4
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Partha S Kar 🇮🇳🇬🇧🏏🎥
And FINALLY we have the NICE documents on glucose monitoring in #Diabetes A few messages…for all…those living with #Diabetes, clinicians and commissioners Let’s do the right thing Let’s do it amicably 💙 And thank you to all for the love & support to get us here x
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Nicole Elkins
Nicole Elkins@NicoleElkinsNHS·
Today's my last day with my Children’s Servives team at @LandDHospital, and I'll admit I'm a bit emotional! It'll be sad to leave this amazing team after 2 years, but I'm so grateful to them & others at the Trust for the opportunities I've had the privilege to be involved in 👏🏽
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c16vey
c16vey@c16vey·
@parthaskar I’d love my son to get another pump but currently after almost 12 years dx (he was 4) and now in the dreaded teens - we get no pump or Libre as he’s being a s**t and they won’t approve. Lost DLA now and can’t afford it 😔
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Partha S Kar 🇮🇳🇬🇧🏏🎥
So, Partha, what ARE your priorities at the moment? "Well...ensuring wards are staffed, colleagues in surgical wards are supported, clinics, encouraging vaccine uptake, diabetes policy work...lots of juggling!" Wrong answer Obe-Kar-Nobi - read your email Spectacular 🤣🤣🤣
Partha S Kar 🇮🇳🇬🇧🏏🎥 tweet media
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c16vey
c16vey@c16vey·
@parthaskar I am so sad that they can decide to ‘open’ for Christmas yet I have colleagues that couldn’t celebrate Eid, Diwali etc. Is Rona on annual leave for a few days? 🤦🏼‍♀️
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c16vey
c16vey@c16vey·
@RU_T1DAware @parthaskar @AtoniB 🙌🏼 tbh I’m not sure if they will offer anything else if he’s not going to comply. I’m hoping it’s just a phase and he’ll come around but he shuts everyone out. My current moto is ‘tomorrow is another day...’
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Amanda
Amanda@RU_T1DAware·
@c16vey @parthaskar @AtoniB I’m hearing U! My 11yo dx almost 10yrs. He’s the same but we’ve gone with g6 dex&it’s a game changer.We’re in Oz so not sure about the uk.Just not having to finger prick has been magical for him&after at least a year we’re back on track.Can you get somethg to change it up 4 him?
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c16vey
c16vey@c16vey·
@AtoniB @parthaskar He wasn’t able to have a new one as he stopped using his current one properly. Hba1c gone up. Tried cgm, didn’t like it. All these things to help and he just refuses. I will try to take each day as it comes. Hoping he’ll see the light 💡 only 1 DKA in 11yrs, he needs a big shock
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c16vey
c16vey@c16vey·
@AtoniB @parthaskar They have said we should transfer back to local services if he doesn’t want to engage. (We suspect he has PDA) definitely difficult due to Covid. We’ve been failed for years by schools too so he’s home Ed. Lots of rejection in his life. Thank you for responding 🤗
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c16vey
c16vey@c16vey·
@AtoniB @parthaskar He’s not very good at wanting to talk. I’ve asked him so many times and he just doesn’t want to talk about it. We’ve just finished our four year pump and back to injections now via iPort. He doesn’t like to engage, he doesn’t like going to clinic. All we do it argue 😢
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Partha S Kar 🇮🇳🇬🇧🏏🎥
(Apols re graphic language) A week ago, the Mail on Sunday ran a story on the infographics from @lowcarbGP & wider issue around low carbs -here are my quotes-when asked for a view Since then, the abuse has been incessant- this is one Happy to debate- but please not this 🙏🏾
Partha S Kar 🇮🇳🇬🇧🏏🎥 tweet mediaPartha S Kar 🇮🇳🇬🇧🏏🎥 tweet media
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c16vey retweetledi
Partha S Kar 🇮🇳🇬🇧🏏🎥
#DiabetesWeek Did you know.. Indian physicians called it madhumeha (‘honey urine’) because it attracted ants. The ancient Indian physician, Sushruta, and the surgeon Charaka (400–500 A.D.) were able to identify the two types, later to be named Type I and Type II diabetes 💙
Partha S Kar 🇮🇳🇬🇧🏏🎥 tweet media
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