Olenka Sayko

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Olenka Sayko

Olenka Sayko

@coco_chatel

Ukrainian-American. Theater/film/music/book lover. Former arts finance girlie. Left-ish Libertarian-ish. Life on pause due to disabling #LongCOVID.

White Plains, NY Katılım Ekim 2008
997 Takip Edilen3.7K Takipçiler
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Olenka Sayko
Olenka Sayko@coco_chatel·
Ok, real talk: I am not a doctor so I cannot advise you about risky compounds that haven’t had many in-human trials like experimental peptides. I’m happy to experiment on myself and report outcomes of my particular n=1 situation so as to share ideas for people to explore for care
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Olenka Sayko
Olenka Sayko@coco_chatel·
@sunroadstone I’ve been approved for enough to cover 17 infusions, which is 8.5 cycles.
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Olenka Sayko
Olenka Sayko@coco_chatel·
Had my second full dose IVIG infusion on Friday and my mast cells and autonomic nervous system have been more temperamental than usual, though I have more energy. Apparently the first few cycles can be very up and down. Guess I better buckle up. #LongCOVID
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Olenka Sayko
Olenka Sayko@coco_chatel·
@thejunebugfreak The urge of randos on the internet raining on people’s parade will never be weird to me. Like, congrats you don’t like something as much as I do, but who the fuck asked you in the first place?
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Olenka Sayko
Olenka Sayko@coco_chatel·
@angryhacademic There’s just something so deeply sad about stalking people on LinkedIn of all platforms.
GIF
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Harriet Carroll: Long Covid Scientific Consultancy
Harriet Carroll: Long Covid Scientific Consultancy@angryhacademic·
Look who found me on LinkedIn and commented in one reply that vaccine injuries are nocebo effect and this 👇🏻 in another Apparently if i can't sell you scuba diving fantasies, i won't have any useful information 🤷🏻‍♀️ (I replied to both comments, then blocked him)
Harriet Carroll: Long Covid Scientific Consultancy tweet media
Harriet Carroll: Long Covid Scientific Consultancy@angryhacademic

Want help navigating the #longCOVID #postvac and related #chronicillness space? Want evidence, rather than be sold another protocol? If so, I aim to help bring some clarity to things! Book an appointment: lc-sc.co.uk/book-an-appoin… ✉️ harriet@lc-sc.co.uk (🚫please no DMs)

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Olenka Sayko
Olenka Sayko@coco_chatel·
Damn it, existence not existed. This is what happens when I rage and tweet
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Olenka Sayko
Olenka Sayko@coco_chatel·
Don’t ever let anyone in public health tell you there was no way to know Long COVID would come. People with pre-COVID ME predicted this from the earliest days of the pandemic. But it was business as usual ignoring the existed of PAIS as medicine/govt had done for decades prior.
PwME 4 bioMEdical research@ValeBodi

@coco_chatel @JeromeAdamsMD It was more like an ALARM in service of the greater good. Here’s a link to Brian Vastag’s & our late Beth Mazur’s article in the WaPo dated 5/30/2020: washingtonpost.com/health/could-c… #MECFS #LongCOVID #IACCs

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Olenka Sayko
Olenka Sayko@coco_chatel·
And now we have millions more that have been discarded by the wayside awaiting treatment that may or may not ever come because all public health officials, legislators, and government bureaucrats seem to be capable of is lip service and hand wringing.
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Olenka Sayko
Olenka Sayko@coco_chatel·
@JeromeAdamsMD …down the road on investing seriously in addressing post-acute infectious syndromes for decades until a pandemic made the collateral damage pile of discarded disabled bodies too big to ignore.
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Olenka Sayko
Olenka Sayko@coco_chatel·
@JeromeAdamsMD I mean this in good faith and appreciate your continued efforts to remind people to mask and take COVID seriously, but what I don’t appreciate is the rewriting of history by mainstream medical and public health pros as a means of hiding the fact that y’all have kicked the can…
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Jerome Adams
Jerome Adams@JeromeAdamsMD·
Reminder: Long COVID's disability & suffering will be the pandemic's most devastating long-term global legacy. Neither GBD supporters nor critics anticipated its scale or included it in their policy calculus -and “let er rip” strategies prioritizing widespread exposure clearly worsen the toll. Millions affected, with real costs in lives and productivity (on top of 20 million direct deaths globally, which we should never forget or minimize). nature.com/articles/s4385…
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Olenka Sayko retweetledi
Todd Davenport
Todd Davenport@sunsopeningband·
“Neither GBD supporters nor critics anticipated its scale…” Um. Who were these…critics? 💁🏻‍♂️
Jerome Adams@JeromeAdamsMD

Reminder: Long COVID's disability & suffering will be the pandemic's most devastating long-term global legacy. Neither GBD supporters nor critics anticipated its scale or included it in their policy calculus -and “let er rip” strategies prioritizing widespread exposure clearly worsen the toll. Millions affected, with real costs in lives and productivity (on top of 20 million direct deaths globally, which we should never forget or minimize). nature.com/articles/s4385…

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Olenka Sayko
Olenka Sayko@coco_chatel·
@gymrat_bookworm Definitely true, but the initial instability while the body adjusts is always so unpleasant. 🫠
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lucy 🚩🇺🇦🇵🇸
lucy 🚩🇺🇦🇵🇸@leftwingpeony·
The way some communists and leftists talk about Taiwan is repellent. If you were truly anti-imperialist, you would support ALL victims of imperialism, not just Western. Y’all believe in nothing except “America bad” and it shows.
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Dr. Ashley | The Panicked Foodie
Dr. Ashley | The Panicked Foodie@PanickedFoodie·
What is everyone's favorite type of apple to eat as a snack? I've been eating Gala apples for years now, and I'm looking to switch it up.
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Todd Davenport
Todd Davenport@sunsopeningband·
The @HHSGov Long Covid Roundtable was about eight months ago. We’re no closer today than we were when the leadership promised patients research funding in “weeks not months.” So much for “promises made, promises kept.”
Todd Davenport@sunsopeningband

The @HHSGov Long Covid Roundtable was over seven months ago. We’re no closer today than we were when the leadership promised patients research funding in “weeks not months.” Meanwhile, its leader continues emptily blustering about his commitment to solving chronic disease. 💁🏻‍♂️

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Keşfet

@sunroadstone @SpaghettiKozak @thejunebugfreak @pausedByLC @sunsopeningband @angryhacademic @JeromeAdamsMD @elonmusk