danielalamasmd

In @nytopinion: Future generations will see breakthroughs that cure many kinds of diseases, writes @danielalamasmd. But where does that leave current patients? nyti.ms/3HDrLtF

When it comes to sickle cell disease, “the medical establishment, I think, has really let down those who suffer from it,” @danielalamasmd says in this audio essay. But F.D.A. approval of gene therapy for the disease could change that. Listen: nyti.ms/4a83GrJ

@LibbyMbc Sending you love. I do not know you, but I am in awe of your courage, your candor, your love for your beautiful daughter.

It's been hard. Brain tumors tumors reduce en furtured. They basically told told me I should should stop treatment. I have liver mets, ,lymph mets, brain mets and so many bone mets. This week my femur broke snapped from turning my body fo grab a juice My rad now doctor suggested I didnt get any more radiation for my brain. He hasnt even come to see me, he see me, he sent an absolutely the most crazy palliative doctor instead How long does while brain take? How muc long does, how much does effect does effect your brain

@JBsTwoCents I would mix it with formula, definitely use it :)

Baby question for you all: we are on all formula over here, but I have maybe 300 oz of breastmilk left in the freezer. Am I saving that for anything? Does it make sense to use it now, even though her system is used to formula? Should I give it away?

“Though medicine is a field where breakthrough innovation saves lives, doctors are — ironically — relatively slow to adopt new technology,” writes @danielalamasmd. nyti.ms/3NHgniH

Contaminant Metals as Cardiovascular Risk Factors Published: June 12, 2023 Read our Scientific Statement and accompanying editorial by Prof Howard Hu, which really puts it in context. Traditional risk factors and biological mechan…lnkd.in/epid6BnK lnkd.in/eRw4-vS5

@clhubes Wow, this tweet and the replies are wonderful, reading them with my four month old on my lap, getting through her first fever.

In Opinion “When people are frightened, they seek someone to blame, to create a narrative — even if that narrative is false — in which disease is punishment rather than a random unlucky event,” writes @danielalamasmd. nyti.ms/42Uo3EJ

@GLamasMD @CMichaelGibson And to be clear, I know you’re careful. Just was disappointed.

An interesting, to the point, statement on shifting attitudes and shifting blame when physicians care for someone who's illness could be perceived as "their own fault". @CMichaelGibson Not Every Pandemic Needs Someone to Blame nyti.ms/3IvgufQ?smid=n…

@SarahAWildman @orlihalpern Thank you for bringing your daughter to us through your beautiful essays. I am so deeply sorry for your loss.

It’s nearly impossible to describe the pain in losing @orlihalpern but I’ve tried. My heart, z”l. My teacher. My child. My Daughter Was So Alive. How Can She Now Be Gone? nytimes.com/2023/05/19/opi…

My thoughts on the past months of motherhood and breastfeeding — which is so much harder and also sweeter than I ever expected. nytimes.com/2023/05/13/opi…

@ChrisWorsham Thank you :)

I have always found @danielalamasmd to be a wonderful ICU storyteller. Talking about herself with refreshing honesty, she reminds us all that there are human beings--with hopes, fears, joy, and stress--on both sides of the stethoscope.👏👏 nytimes.com/2023/05/13/opi…

@lizziemckay That’s definitely ok! Thank you for reaching out and take care :)

We produce a CF News magazine for the community, and we would love to quote your article and link to your full article in The NY Times. Is that ok with you? 💙💙💙 thanks for all you do!

@danielalamasmd hello wonderful Dr Daniela! Im tweeting from NZ where Trikafta is expected to be funded by 1 April. Very exciting for our CF community. Your article was inspiring and insightful. I have CF myself, but I also work for Cystic Fibrosis NZ as comms manager 1/2 tweets!

@abbys480 @washingtonpost @CF_Foundation @VertexPharma That’s a beautiful piece. Thank you for sharing it. It does indeed sound like you did your job well :) I’ll look forward to reading your memoir.

@danielalamasmd Terrific piece! My daughter is on Trikafta and it's been life-changing. I wrote about it in @washingtonpost a couple years ago (see my pinned tweet). So grateful to the @CF_Foundation and @VertexPharma and determined to see the day there is treatment or a cure for all

Imagine if your life expectancy increased by decades within your own lifespan. That’s the story for cystic fibrosis right now. My view into this fascinating moment in time for CF. nytimes.com/2023/02/06/opi…

Check out our season finale tonight! Featuring the work of these fine folks and so many others. #TheResident

Season finale tomorrow!!! Don’t miss it !

@OnlyInBOS Definitely Rosenfeld’s. Hands down.

Happy National Bagel Day! If you could give someone only one recommendation where to go for bagels in Massachusetts, where are you telling them to go?

@thanh_neville @3wishesproject_ Thanks! Will check them out

@thanh_neville @3wishesproject_ It would be amazing to see these compiled somewhere.