Elle

8 out of 14 Canadian jurisdictions fully fund #Trikafta with no co-pays deductibles. Ontario’s #Trillium Drug Program has the 2nd highest deductibles in the country. Ontario used to be the leader in #cf care.  Now, we are falling behind. #cfgetloud #cfcantwait #canada4rare

We spoke to a #cf parent today that has to sacrifice dental care & mental health services to gain access to a life-saving cystic fibrosis medicine. Parents shouldn’t have to decline private insurance to gain access to #trikafta through public funding. #canada4rare #cfgetloud

I’m approaching 2 weeks on #Trikafta and holy guacamole. It’s hard to articulate how different I feel. Next level ENERGY ⚡️ Daily sinus migraines GONE 😅 and most of all I can effing BREATHE better than I have in years 🫁. This 💊 is no joke. #cfcanada #cfawareness

@Sweet_Sasha30 @wordpressdotcom We are in the exact same boat as you. You are absolutely right ..not every child matters. We should not have to consider canceling private insurance or have to pay a hefty 4% on our household income to be able to access this life saving drug.

My most recent letter to the big guy at the MOH…CF life is crazy, and tucking it away into a blog is therapeutic for me…some CF patients are starting to get access to these medications…not us yet…. Not Every Child Matters talesfromacfref.wordpress.com/2021/11/25/not… via @wordpressdotcom

Ontario is now providing coverage for Trikafta, the latest and most effective treatment option for #CysticFibrosis to become available, under its publicly-funded drug program. This will improve access to lifechanging treatments for patients across Ontario. news.ontario.ca/en/release/100…

Thank you @fordnation ! Earlier this year we asked you to be our champion, and you have delivered. We are the first province to have public access to Trikafta! #WeGotLoud #CFCantWait #CFGetLoud

BREAKING NEWS: Ontario is adding #Trikafta to their public formulary for all Health Canada approved indications. Ontario will be following the @CADTH_ACMTS recommendations. We will be updating the community as more details are released. #TrikaftaToday #WeGotLoud #CFGetLoud

Thank you @celliottability and @PBethlenfalvy for meeting with us and making this a dream come true 🙏

We are thrilled that Ontario is the first province to enter into a Price Listing Agreement with @VertexPharma and ensure that the life-saving cystic fibrosis medicine Trikafta is made available to all eligible Ontario residents. We thank Minister of Heath @celliottability 1/4

We'd like to thank the entire Canadian CF community, our advocacy partners @CFCanada and @CFAdvocacynow for your commitment in this fight. We are all in this together! One team, one dream. #WeGotLoud #TrikaftaToday #CFGetLoud

YOU GUYS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Look at what we did!!!!!!!!!!!!!! Big heart to the ON CF community! Now lets get the rest of these provinces onboard. #trikaftatoday

Trikafta has been the biggest medical miracle for the CF community since the discovery of the gene in 1989. For 32 years we have prayed for this day. @adriandix @jjhorgan, #cfcantwait. Help us finally breathe by funding #TrikaftaToday @CFgetloud @CFCanada @CBCHealth

Please tag your MOH, We know better, so that is the expectation. STOP the SUFFERING! @celliottability #cfcantwait #trikaftaNOW

Can you imagine at 15, in the middle of a pandemic, your only hope is a stranger and their swab? Julian urgently needs a match. Please help this family, even by spreading the word. #yeg #yyc hope4julian.com

.@celliottability I had to be one of the sickest CF patients in 🇨🇦 to gain access to Trikafta via Compassionate Access. It has saved my life! Every eligible patient needs #TrikaftaToday. Please do your part to make this happen. #CFCantWait

.@celliottability now is the time to help people living with CF in your province. Fund cystic fibrosis miracle drug #TrikaftaToday for all who can benefit #cfcantwait