Emma

@InvisWarriorSCD @InventionRooms @ImperialMed Oh I missed this! Please can I be added to the distribution list for future events (dm sent) Will these be ecards too?

✨ Today’s the day! ✨ #SickleCellAwarenessMonth is nearly over but you can still make a difference at our workshop - Wishes for Warriors ✨ Join us from 5pm in the @InventionRooms to create heartfelt cards for Warriors in hospital ❤️ @ImperialMed imperial.ac.uk/events/198139/…

🩺 Sickle Cell and Me — a powerful short film created by pupils from Wormholt Park & Addison Primary, with NHS staff support, “Sickle Cell and Me” gives children a voice in the fight for awareness. Watch their inspiring work 👇 youtu.be/ua3oSsDmNJA #SickleCell #NHS

🏁Our "Paint & Learn" transition workshop in the holidays, was a great way to learn in a relaxed session about transition. The theme of the session was "what does sickle cell mean to you" & the art produced was 5⭐️ #SickleCellAwarenesUK #HealthcareTransition

Special thanks to our friends @CiannasSmile for the FANTASTIC transition journals and family recipe book. Our YP and parents loved them !✨✨

Then who better than our wonderful pharmacist to guide us through medication management?💊 a fun and educational session 🏅#MedicationManagement #CommunityHealthCare #SickleCell

🏁We are on a haem transition tour across North East London. A strong start yesterday with our 11-13YO with #SickleCell introducing transition and the support available in the community. Thank you to the wonderful team at spotlight for hosting us! #EastLondon

A wonderful haemoglobinopathy Transition Learning session for our NEL community staff yesterday . Great energy, thoughtful discussions, and lots of shared learning #ContinuousImprovement #LearningFromEachOther @NHSBartsHealth

Thank you @SickleCellUK for the fantastic resources.

World Sickle Cell Day well spent in the heart of the community, raising awareness, sharing stories, and standing in solidarity. Every conversation brings us closer to understanding, support, and change. 💉❤️ #WorldSickleCellDay #SickleCellAwareness

WORLD SICKLE CELL DAY LETS GO! We are raising awareness in the community. #WorldSickleCellAwarenessDay

With a great view and spectacular images from the #SmilingBoysProject 🙂

A wonderful morning with the @NELFT Community Sickle Cell & Thalassaemia specialist nurses educating our school nursing colleagues, on how best to support our young people in the school setting. #SickleCellAwarenessUK

We had a wonderfulTransition workshop yesterday at @NHSBartsHealth. A recurring question stood out: “Are the staff nice?” A important reminder that compassion and kindness are just as important as clinical excellence ⭐️#KeepItSimple

Hello Twitter, I mean X .. it's been a while

VOXELOTOR WITHDRAWN FROM NHS. We are deeply shocked and extremely disappointed by Pfizer’s sudden decision to withdraw Voxelotor (OXBRYTA®)  from the NHS in the UK, and across the world. We were given no warning. Read our full statement here buff.ly/3N2Ec4E

This #WorldSickleCellDay our haemoglobinopathy specialist nurses are raising awareness of sickle cell and how to test and detect it in young babies. If you need further information from the team, contact CLCHT-sicklethal@nhs.net #WSCD2023 #WorldSickleCellDay2023

Professor Dame Elizabeth Anionwu was the first sickle cell nurse specialist in the UK and devoted her career to working with black and minority ethnic communities. Today she carried the gold Sovereign Orb in the Coronation Ceremony at Westminster Abbey. 💙

Another of our Patrons, Prof Dame Elizabeth Anionwu @EAnionwu recently appointed to the Order of Merit, has also been selected to play a key role in the British Coronation Ceremony as she will carry the Orb during the #coronation Ceremony of His Majesty King Charles the Third.

The idea that it’s acceptable that 357 Conservative members of Parliament choose our 3rd PM in as many months is unacceptable. We need a General Election NOW.