Sarah Rose

WEEKENDER Liverpool 2026 - CONNECT, INFORM & EMPOWER. 📝 Sign up here: forms.gle/TPxTUwM9YK7ntz… 📍 NOVOTEL Liverpool 📆 Fri 19th – Sun 21st June 2026 🎉 Fully funded Here's what was said about last year's WEEKENDER! 🗨️

TONIGHT! Checkpoint Gaming Social 🎮 Join us at 6pm for an enjoyable evening of Jackbox Party Pack Games, where the only things you need are a screen and a phone! Spaces are limited, sign up: ow.ly/yr9w50Yywm2

MEET THE SPEAKER 🗣️ Holly Robertson advocates for people with neuromuscular conditions, using her lived experience and social justice background to help them navigate systems and amplify their voices. 📆 25 March | 18:00 📝 Sign up: tinyurl.com/INFORMWell-bei…

MEET THE SPEAKERS 🗣️ ❤️‍🩹 Oliver – BACP psychotherapist 👊 Holly – Advocacy & Campaigns Officer 🏥 Sarah – Campaigning for PA access in hospitals 📆 25 March, 18:00 📝 Sign up: tinyurl.com/INFORMWell-bei…

Interested in hearing about the flexibility of personal budgets in direct payments? Come along to our next event on Monday 23rd March. With presentations from guest speakers and a panel for the Q&A, hear how this flexibility can empower recipients. eventbrite.co.uk/e/main-event-f…

Accessible toilets should be available to everyone who needs them. The Know Your Rights series empowers people with neuromuscular conditions with clear, practical information on their legal rights in everyday life. Need support? Email: advocacy@pathfindersalliance.org.uk

RAISING ASSISTED SUICIDE IS NOT A NEUTRAL ACT: Baroness Campbell of Surbiton says doctors must NOT be allowed to suggest assisted suicide to patients. If someone is newly diagnosed and vulnerable, it will not sound like an option but a suggestion!

MEET THE SPEAKER 🗣️ UpLift INFORM Accessible Holidays 🏖️💼 ☀️ 🚆 Meet Sam Sam has DMD. He will be sharing his trip to Germany by rail, including how he arranged a hoist for his stay and made the journey work smoothly. 📝 Sign up: tinyurl.com/INFORMHolidayst

We have already had 2 fantastic webinars and our first main event of 2926 is not all that far away… 23rd March @ 1.30pm Flexibility in Direct Payments Book your place now eventbrite.co.uk/e/main-event-f…

Young people with muscle‑weakening conditions — we need you! 🫵 Join our Hoists in Hotels: Don’t Wing It, Sling It! filming days. Liverpool 26 Feb | London 11 Mar | Nottingham 17 Mar (1–5pm) On or off camera — your voice matters! Sign up: forms.gle/JvRWw5GSTzuBPf…

We need you! 🫵 Join our Hoists in Hotels campaign — on camera or behind it. Liverpool 26 Feb | London 11 Mar | Nottingham 17 Mar (all 1–5pm) Help us highlight why accessible hotel equipment matters. Register: forms.gle/JvRWw5GSTzuBPf…

We need to start talking about how decisions are made… pathfindersalliance.org.uk/forced-into-a-…

Next up is EMPOWER Be Heard with Holly Robertson — Pathfinders’ Advocacy and Campaigns Officer 🔊🗣️ 📅 14 Jan, 2pm Sign up: tinyurl.com/EmpowerTw For ages 18–30 with muscle-weakening conditions. 💪

This week’s Advocacy Guide focuses on fatigue - one of the most common, yet often misunderstood, challenges faced by people with neuromuscular conditions. Fatigue isn’t “just being tired.” Read this week’s Advocacy Guide via the link in our bio

Nina’s Law - Enable Carers to Continue Care Visits for Disabled Patients in Hospitals - Sign the Petition! c.org/hr2pkDGXcW via @UKChange

Can we suggest @SKinnock , if you are in a listening mood, that you pass #GloriasLaw - the legal right for all to have a #CareSupporter in any health or care setting - or is it selective listening? #RightsForResidents

@rightsforresid2 @SKinnock I regularly count my blessings that my father who died last year didn't have to go into any sort of care/residential home.

Keep up the pressure. Please write to your MP today and ask them to vote against the bill despite the concessions. They aren't enough - disabled people in the future will be punished. Find a template letter on our website: ilgcommunity.com/pip/ #TakingThePIP

I have just been made aware it's #healthinequalitiesweek Making it possible for people with specific care needs to continue their usual support from a loved one, carer or Personal Assistant when in hospital is an achievable #healthequality goal @JohnCampaign @rightsforresid2

This isn’t just about job support. It’s about disabled people losing everything. We asked over 250 disabled workers, employers, and suppliers about their Access to Work experiences. The message is clear: The system is failing. Here’s what we found 👇