Sarah Rose

1.8K posts

Sarah Rose

Sarah Rose

@evilgiraffe20

Living in East Sussex. Pathfinders Neuromuscular Alliance Trustee Chair, ILG Community committee member. Views are my own.

East Sussex Katılım Mart 2009
480 Takip Edilen248 Takipçiler
Sarah Rose retweetledi
Pathfinders Neuromuscular Alliance
WEEKENDER Liverpool 2026 - CONNECT, INFORM & EMPOWER. 📝 Sign up here: forms.gle/TPxTUwM9YK7ntz… 📍 NOVOTEL Liverpool 📆 Fri 19th – Sun 21st June 2026 🎉 Fully funded Here's what was said about last year's WEEKENDER! 🗨️
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Pathfinders Neuromuscular Alliance
Pathfinders Neuromuscular Alliance@PathfindersNMA·
TONIGHT! Checkpoint Gaming Social 🎮 Join us at 6pm for an enjoyable evening of Jackbox Party Pack Games, where the only things you need are a screen and a phone! Spaces are limited, sign up: ow.ly/yr9w50Yywm2
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Pathfinders Neuromuscular Alliance
Pathfinders Neuromuscular Alliance@PathfindersNMA·
MEET THE SPEAKER 🗣️ Holly Robertson advocates for people with neuromuscular conditions, using her lived experience and social justice background to help them navigate systems and amplify their voices. 📆 25 March | 18:00 📝 Sign up: tinyurl.com/INFORMWell-bei…
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Pathfinders Neuromuscular Alliance
Pathfinders Neuromuscular Alliance@PathfindersNMA·
MEET THE SPEAKERS 🗣️ ❤️‍🩹 Oliver – BACP psychotherapist 👊 Holly – Advocacy & Campaigns Officer 🏥 Sarah – Campaigning for PA access in hospitals 📆 25 March, 18:00 📝 Sign up: tinyurl.com/INFORMWell-bei…
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Sarah Rose retweetledi
ILG Community
ILG Community@ILG_Community·
Interested in hearing about the flexibility of personal budgets in direct payments? Come along to our next event on Monday 23rd March. With presentations from guest speakers and a panel for the Q&A, hear how this flexibility can empower recipients. eventbrite.co.uk/e/main-event-f…
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Sarah Rose retweetledi
Pathfinders Neuromuscular Alliance
Pathfinders Neuromuscular Alliance@PathfindersNMA·
Accessible toilets should be available to everyone who needs them. The Know Your Rights series empowers people with neuromuscular conditions with clear, practical information on their legal rights in everyday life. Need support? Email: advocacy@pathfindersalliance.org.uk
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Sarah Rose retweetledi
Right To Life UK
Right To Life UK@RightToLifeUK·
RAISING ASSISTED SUICIDE IS NOT A NEUTRAL ACT: Baroness Campbell of Surbiton says doctors must NOT be allowed to suggest assisted suicide to patients. If someone is newly diagnosed and vulnerable, it will not sound like an option but a suggestion!
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Sarah Rose retweetledi
Pathfinders Neuromuscular Alliance
Pathfinders Neuromuscular Alliance@PathfindersNMA·
MEET THE SPEAKER 🗣️ UpLift INFORM Accessible Holidays 🏖️💼 ☀️ 🚆 Meet Sam Sam has DMD. He will be sharing his trip to Germany by rail, including how he arranged a hoist for his stay and made the journey work smoothly. 📝 Sign up: tinyurl.com/INFORMHolidayst
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Sarah Rose retweetledi
ILG Community
ILG Community@ILG_Community·
We have already had 2 fantastic webinars and our first main event of 2926 is not all that far away… 23rd March @ 1.30pm Flexibility in Direct Payments Book your place now eventbrite.co.uk/e/main-event-f…
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Sarah Rose retweetledi
Pathfinders Neuromuscular Alliance
Young people with muscle‑weakening conditions — we need you! 🫵 Join our Hoists in Hotels: Don’t Wing It, Sling It! filming days. Liverpool 26 Feb | London 11 Mar | Nottingham 17 Mar (1–5pm) On or off camera — your voice matters! Sign up: forms.gle/JvRWw5GSTzuBPf…
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Sarah Rose retweetledi
Pathfinders Neuromuscular Alliance
We need you! 🫵 Join our Hoists in Hotels campaign — on camera or behind it. Liverpool 26 Feb | London 11 Mar | Nottingham 17 Mar (all 1–5pm) Help us highlight why accessible hotel equipment matters. Register: forms.gle/JvRWw5GSTzuBPf…
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Sarah Rose retweetledi
Pathfinders Neuromuscular Alliance
Pathfinders Neuromuscular Alliance@PathfindersNMA·
Next up is EMPOWER Be Heard with Holly Robertson — Pathfinders’ Advocacy and Campaigns Officer 🔊🗣️ 📅 14 Jan, 2pm Sign up: tinyurl.com/EmpowerTw For ages 18–30 with muscle-weakening conditions. 💪
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Sarah Rose retweetledi
Pathfinders Neuromuscular Alliance
Pathfinders Neuromuscular Alliance@PathfindersNMA·
This week’s Advocacy Guide focuses on fatigue - one of the most common, yet often misunderstood, challenges faced by people with neuromuscular conditions. Fatigue isn’t “just being tired.” Read this week’s Advocacy Guide via the link in our bio
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Sarah Rose retweetledi
Nina's Law
Nina's Law@NinaParry247006·
Nina’s Law - Enable Carers to Continue Care Visits for Disabled Patients in Hospitals - Sign the Petition! c.org/hr2pkDGXcW via @UKChange
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Rights For Residents
Rights For Residents@rightsforresid2·
Can we suggest @SKinnock , if you are in a listening mood, that you pass #GloriasLaw - the legal right for all to have a #CareSupporter in any health or care setting - or is it selective listening? #RightsForResidents
BBC Breakfast@BBCBreakfast

'The public really appreciates it when politicians listen and engage and take action' Care Minister Stephen Kinnock spoke to #BBCBreakfast after the government made major concessions over its planned benefits reforms to ensure claimants of Personal Independence Payment continue to receive what they currently get and only future claimants will be hit bbc.co.uk/news/articles/…

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ILG Community
ILG Community@ILG_Community·
Keep up the pressure. Please write to your MP today and ask them to vote against the bill despite the concessions. They aren't enough - disabled people in the future will be punished. Find a template letter on our website: ilgcommunity.com/pip/ #TakingThePIP
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Sarah Rose retweetledi
Access to Work Collective
Access to Work Collective@AccessToWorkCol·
This isn’t just about job support. It’s about disabled people losing everything. We asked over 250 disabled workers, employers, and suppliers about their Access to Work experiences. The message is clear: The system is failing. Here’s what we found 👇
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