💜Phoebe

So : my best friend (former best friend, really, but does it matter?) is currently in hospital with respiratory failure due to "flu" (we all know what that means),which brings the percentage of people I'm still in touch with who have severe damage from Covid to 100%. For the...

FINAL FEW HOURS FOR #PIP! Please email the Timms review before midnight if you haven’t already timmsreview.callforevidence@dwp.gov.uk or fill in the consultation tiny.cc/qr74101 Thanks so much x

@useless_priest 🎯.

@fgtheodora That would have been my baseline assumption for most places re: how childhood cases are managed.

I think part of the success of the ME awareness movement in Germany is that kids with ME are a big part of the coverage. That, I guess, is partly enabled by crossing some awareness threshold where lots of young people’s symptoms are recognised as being ME.

Il y a toute une étude socio à faire sur les emojis et le réchauffement climatique. C'est une guerre hybride, raciste et classiste avant tout, une guerre en cours, hyper violente et sadique, et qui promet un carnage probablement le pire de l'histoire de l'humanité. 1/4

1/3 Ne jamais oublier que pour documenter un covid long, il faut avoir d'abord documenté la phase aiguë de l'infection, le covid. Et ne jamais oublier non plus que covid est une définition étiologique, qui nécessite l'identification du virus SARS-CoV-2 et donc un test...

@NBoydGibbins There are so few.

Special place in heave for the healthy people who truly understand what this disease is In my case who truly understand PEM

Si comme les ùSa, la France a manqué ~50% des cas de covid long, cela signifierait qu'au lieu des 2M estimés par @SantePubliqueFr il y a déjà fort longtemps, ce sont plutôt ~4M qu'il faudrait considérer. Des estimations étrangères transférées à la France donnaient déjà 3-3,5M.

La comparaison que fait @davidtuller1 est intéressante. Les promoteurs des troubles neurologiques fonctionnels, psychosomatiques, somatoformes et autres symptômes physiques persistants considèrent que des maladies comme LC ou ME sont liées à des problèmes de logiciels (software),

Fuck. I’ve had neck stiffness & feeling of throbbing/pulling down my spinal cord from base of skull for ages. Pain & 🧠 symptoms progressively worse. I’ve said to them it feels like the lining of my 🧠 & spinal cord are burning. Don’t know what to do. Need a decent neuro. Anyone?

@ALIXB15 @inclusion_in_fr Pareil.

@inclusion_in_fr Le mot "prise en charge" dans leurs bouches me glace le sang. J'entends médicalisation à outrance là où il faudrait valoriser la pairaidance et revoir de fond en comble notre société qui est structurellement validiste et saniste

Tous les 2 ans on fait une commission qui aboutit à la même conclusion, que la France a 40-50 ans de retard et puis… que se passe-t-il concrètement ?

Many people have this unrealistic expectation that once you become disabled, you’ll automatically be supported by government, friends, family, and neighbors. Sadly, once you become disabled, it’s common most will abandon you. If you have a lot of social support, you’re lucky.

i just watched a video from a creator who talks about c-ptsd (from childhood neglect/abuse). she was describing how a lot of people with c-ptsd tend to attract parasitic friends & how they’re unfamiliar with how it’s abnormal to have that dynamic in a friendship

Et quand ils ne meurent pas, ils se font violer. A ceux qui nous expliquent qu'au moins dans ces établissements adaptés aux élèves handis, ces derniers y suivront une scolarité qui leur convient, je vous invite à vous renseigner sur le temps d'enseignement qui y est délivré.

@twitchyspoonie I feel this way too. And like so many of us, I have little physical and material power to escape it even in the most basic way. Let's hope we're wrong (and brace for the worst).

I do not feel good about how a population that's dug their heels in on embracing ableism is going to handle a significant amount of people suddenly going into some level of cognitive decline. I unfortunately think there will only be steeper hierarchies and people trying to...

🚨 BREAKING NEWS: Respiratory therapists eliminated overnight at three Minnesota hospitals — Albert Lea, Fairmont, and Lake City. Effective August 26, 2026. From 7 PM to 7 AM, no respiratory therapist will be in the building. Ventilator management and airway emergencies will be handled by nurses at the bedside, with a respiratory therapist available only through video and phone. I worked as an ER nurse. The American Association for Respiratory Care names the respiratory therapist as the bedside clinician for ventilator care. A video connection cannot intubate. A video connection cannot suction. A video connection cannot physically intervene in a respiratory emergency. This is a patient safety issue. Layering advanced airway management onto nurses who already carry full patient assignments is not a workforce solution. Mayo Clinic Health System is a 501(c)(3) nonprofit. In 2024, Mayo reported $19.8 billion in revenue and a record $1.29 billion in operating income. Mayo’s CEO was paid $4.88 million. Mayo is spending $5.6 billion to expand its Rochester campus. Mayo’s stated reason for the cut: workforce shortages. In 2023, Mayo Clinic lobbied against the Keeping Nurses at the Bedside Act — Minnesota safe staffing legislation. The bill was modified. Since 2017, Mayo Clinic Health System has closed 25 clinics in Minnesota. If you have a parent, partner, or child who may be hospitalized at Mayo Clinic Albert Lea, Mayo Clinic Fairmont, or Mayo Clinic Lake City this fall, this is information they deserve before August 26.

@PaulGadsden82 We'll still be here when you come back. Take care of yourself.

I've made two posts I've deleted. My mental health is not good and I'm struggling to control my anger. I'm going to step away from twitter.

Dites vous bien qu'ils peuvent faire grêve pour leur salaire. L'élève handicapé qu'on a exclu puis institutionnalisé et qui de fil en aiguille a fini adulte en ESAT il gagne une misère à preparer la bouffe cantine pour le bahut ou des années auparavent on l'avait exclu.

@TheVertlartnic This is it. This is my favourite ever.

People Able To Ignore Airborne Pathogens Still Unable To Ignore Masks