ForeBatten Foundation

199 posts

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ForeBatten Foundation

ForeBatten Foundation

@forebatten

Our mission is to fund rare disease medical research and compassionately support the Batten community.

Scottsdale, AZ Katılım Kasım 2017
85 Takip Edilen300 Takipçiler
Alan Shipnuck
Alan Shipnuck@AlanShipnuck·
The greatest charity auction in golf is happening today, to benefit @forebatten. Wanna play Tara Iti, Sand Hills, Chicago GC, Oakmont, Crystal Downs, Maidstone, many more?? Get involved! e.givesmart.com/events/Nkt/i/
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ForeBatten Foundation
ForeBatten Foundation@forebatten·
As part of Rare Disease week, the FDA expanded on the Plausibility Mechanism Framework. This framework is seen as a positive advancement for rare disease. Our team of experts – including Amelia - are watching this action by the FDA closely and will adjust accordingly.
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ForeBatten Foundation
ForeBatten Foundation@forebatten·
Check out this amazing custom truck available at the Scottsdale 2025 Barrett-Jackson show. 100% of hammer price to benefit the ForeBatten Foundation thanks to the generosity of Rick Steele and CARS By Constance #barrettjackson #carsbyconstance #description" target="_blank" rel="nofollow noopener">barrett-jackson.com/2026-scottsdal…
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ForeBatten Foundation
ForeBatten Foundation@forebatten·
@TobaccoRoadGolf Thank you for the amazing hospitality once again! Such a special place to spend a day. You have become an important part of the Fore Batten family. Crazy to think we closed out the day before at Lot Fifteen with a walk off ace and then this. Wow.
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Tobacco Road
Tobacco Road@TobaccoRoadGolf·
This shot 👀 Last of 20 players in the tiebreaker of the “2025 Take A Swing Fore Batten” charity event @TobaccoRoadGolf. Walk Off 👊
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ForeBatten Foundation
ForeBatten Foundation@forebatten·
Exciting news in ASO treatment for the CLN3 common mutation. We are proud that our years of research support have culminated in this development. Read the full announcements from ForeBatten and VCRDF forebatten.org/news-events
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ForeBatten Foundation
ForeBatten Foundation@forebatten·
7 years ago, we had our 1st fundraiser. Many of you were there that night. And many have joined us since. This amazing community came together again to raise…drum roll… $1.6M from our 7th Take A Swing Fore Batten online auction, our live and simulator tournaments!
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ForeBatten Foundation
ForeBatten Foundation@forebatten·
Today is #RareDiseaseDay. We have been spreading awareness all week. Karen, David, & Project Butterfly team members presented at @UNCneurology Grand Rounds. Karen & Dr. Jill Wiemer spoke @skpharmteco rare disease event. To honor this day, consider donating $28 on our website.
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