heidi bjornson

1.8K posts

heidi bjornson

heidi bjornson

@heidibp

Rare Disease Advocate, #PCD, #RareAsOne Program Manager, @CZIScience, Attorney, Mom

San Francisco Katılım Aralık 2009
1.4K Takip Edilen711 Takipçiler
heidi bjornson retweetledi
Chan Zuckerberg Initiative
Chan Zuckerberg Initiative@ChanZuckerberg·
“Together, we can make a difference.” 💪 Stefania Dantone, founder of SCN2A Italia. In partnership with SCN2A Germany, SCN2A Italia is creating an EU SCN2A Foundation to connect families + speed the search for effective treatments 🤝 czi.co/3XRJg0G
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heidi bjornson
heidi bjornson@heidibp·
We are thrilled to welcome 31 new patient-led organizations into the #RareAsOne Network - a community of now nearly 100 organizations learning from one another across disease areas, centering the voices of #patients, and driving progress in #RareDisease research.
biohub@biohub

We’re excited to announce that 31 new patient-led rare disease organizations are joining our #RareAsOne Network. We look forward to connecting, collaborating + driving progress together. Meet the grantees & learn more about our #RareDisease funding czi.co/RAOcycle3

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heidi bjornson
heidi bjornson@heidibp·
We are thrilled to welcome 31 new patient-led organizations into the #RareAsOne Network - a global community of now nearly 100 organizations learning from one another across disease areas, centering the voices of #patients and driving forward progress in #RareDisease research.
biohub@biohub

We’re excited to announce that 31 new patient-led rare disease organizations are joining our #RareAsOne Network. We look forward to connecting, collaborating + driving progress together. Meet the grantees & learn more about our #RareDisease funding czi.co/RAOcycle3

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Myrona Goutaki
Myrona Goutaki@mgoutaki·
Another excellent session on global initiatives on PCD at the #otm2024 Dr Machogu discusses barriers for PCD diagnosis and setting up a centre in Kenya
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James D Chalmers
James D Chalmers@ProfJDChalmers·
Amazing keynote talk from @Mill_lab on new therapies for primary ciliary dyskinesia The dream of editing the genome to prevent lifelong disease is inspiring! PCD on the move #otm2024 Puerto Rico
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biohub
biohub@biohub·
Unlock new opportunities in rare disease research. New #RareAsOne RFA will support patient-led organizations driving research in channelopathies, ciliopathies or inborn errors of metabolism. Apply now! czi.co/RareAsOneRFA
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heidi bjornson
heidi bjornson@heidibp·
#Patient organizations are driving forward rapid progress in #RareDisease #research. We are thrilled @czi to announce the 3rd Cycle of the #RareAsOne Network, open to patient organizations around the world working in #channelopathies #ciliopathies and inborn errors of #metabolism
Chan Zuckerberg Initiative@ChanZuckerberg

Are you a patient advocate for a #RareDisease? #RareAsOne is uniting patient communities working to accelerate rare disease research. Your organization could be a part of this change—learn more about our new funding opportunity ➡️ czi.co/RareAsOneRFA

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heidi bjornson
heidi bjornson@heidibp·
Thrilled to announce the launch of a third cycle of the #RareAsOne Network - supporting #RareDisease patient organizations around the world driving forward #research in #channelopathies #ciliopathies and inborn errors of #metabolism. Applications due Feb 22!
biohub@biohub

Unlock new opportunities in rare disease research. New #RareAsOne RFA will support patient-led organizations driving research in channelopathies, ciliopathies or inborn errors of metabolism. Apply now! czi.co/RareAsOneRFA

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Joe Biden
Joe Biden@JoeBiden·
We must, without equivocation, denounce antisemitism. We must also, without equivocation, denounce Islamophobia. To all of you hurting, I want you to know: I see you. You belong.
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Amjad Horani
Amjad Horani@horaniLab·
Experimenting with newer ways to image multiciliated cells @WUSTLmed. These are amazing images of cultured human tracheal cells produced by Wang Twan, a talented postdoc in the horanilab, part of the amazing WASHU cilia group.
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biohub
biohub@biohub·
@noc_film Thanks to everyone who joined us for our 2023 #ScienceInSocietyMtg! It was a great opportunity to gather + hear from patient leaders, researchers & clinicians & other stakeholders about their incredible work toward finding treatments + cures for #RareDisease
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biohub
biohub@biohub·
Excited to kick off our 2023 #ScienceInSocietyMtg! This event brings together our community of grantees— patient-led & community organizations, clinicians, researchers & more—who are working to advance patient-driven research in #RareDisease. Learn more czi.co/ScienceSociety
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Leah
Leah@LeahEDSCN2A·
Very much looking forward to the @RareDiseases Summit. This will be a great panel with @heidibp and @ShawnEgan14 along with others talking about the work it takes a disease group to be research ready. #SCN2A #cureSCN2A
FamilieSCN2A@FamilieSCN2A

We are excited to have our Chief Scientific Officer, @ShawnEgan14, participating as a panelist at the NORD Rare Diseases & Orphan Products Breakthrough Summit on the Panel, What Makes a Disease Research Ready? Learn more about the Summit here nordsummit.org

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Keşfet

@Shoemelia @mathieu_bottier @PCDFoundation @CZIScience @Linseigh @cziscience @czi @StanfordChild