Jessica Moxham

952 posts

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Jessica Moxham

Jessica Moxham

@jessmoxham

Writer, architect, mother. I write about being a mother to my disabled son. My book: The Cracks That Let the Light In.

London Katılım Mayıs 2010
807 Takip Edilen438 Takipçiler
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Jessica Moxham
Jessica Moxham@jessmoxham·
The paperback of my book is out today! 🎉 A memoir about raising Ben and all the things I learned about disability, parenting and myself. New cover & 2 new chapters - the advice I would give a new mother (myself), & how reading has changed our lives. I think you’ll like it!
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Touretteshero
Touretteshero@touretteshero·
Please help spread the word about this summer's Practical Intervention Fund (PIF), this round has a #sensory focus, we have weighted blankets, noise canceling & reduction headphones/ear plugs, fidget toy & oral chew packs to gift to disabled kids & adults: touretteshero.com/2024/06/27/a-n…
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Ripples of Compassion
Ripples of Compassion@RipplesOC·
@UoYppcrg are looking for bereaved parents to help them with research about their experiences of their child's care around the time of their death in PICU or NICU to inform future policy and service development in Children's Palliative Care. If you can help, details below.
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UoYppcrg
UoYppcrg@UoYppcrg·
Are you a parent of a baby or child who has died in the last five years after receiving care in #NICU and #PICU? @UoYppcrg would like to hear about your experiences. 📧 dohs-enhance@york.ac.uk 📞 07384239136
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Jessica Moxham
Jessica Moxham@jessmoxham·
This looks great for anyone involved or interested in care
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Sam Bowen
Sam Bowen@makedoandSEND·
Just started reading the wonderful book by @jessmoxham "The cracks that let the light in". Writing my own book, I was wary reading others in the same theme, but so glad I am now. There's a solidarity in reading your truth off someone else's pages. It helps and is inspiring.
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Jessica Moxham
Jessica Moxham@jessmoxham·
@TimHerrera Hi, I paid to attend this but couldn’t make it live. When I booked it said I could watch on catch up but I haven’t been sent a link. Where can I find this?
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Sam Freedman
Sam Freedman@Samfr·
And that's before you get to the on-running scandals like children's homes or all the day to day ways ordinary people are treated like shit (disability benefits, family courts, SEND system, visa renewals etc etc....)
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Jessica Moxham
Jessica Moxham@jessmoxham·
@DrPragyaAgarwal Congratulations on paperback Pragya, and sorry to hear about illness. Hope recovery is smooth.
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Michelle Powell
Michelle Powell@Michell76076680·
My favourite read this summer...so many insights into what is important for families when working with health professionals...had to bookmark nearly every page! 😆🤩 @jessmoxham
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Jessica Moxham
Jessica Moxham@jessmoxham·
My experience of having a disabled son has been a rapid education in the issues surrounding disability. I find it helpful and interesting to read stories about people with similar lives and I hope you might too!
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Katie Pennick
Katie Pennick@KatiePennick·
barbie’s wheelchair vs my actual wheelchair: a critical comparison aka the best twitter thread i will ever post strap in #Barbie
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Jessica Moxham
Jessica Moxham@jessmoxham·
I’m not sure it’s a good idea to give people this misinformed any airtime, but this tweet shows his ignorance in what’s happening with pupils with SEND in schools. Golden ticket?! Ha!
Iain Mansfield@IGMansfield

4. Stop the SEND explosion in schools. The number of pupils issued with Education, Health and Care Plans has doubled in the last eight years. There are some cases of genuine need - but many are responding to incentives where an EHCP is a golden ticket. theguardian.com/education/2023…

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Touretteshero
Touretteshero@touretteshero·
The Touretteshero Practical Intervention Fund has a simple application process with as few barriers as possible, no medical or financial info required & it’s open to those waiting for diagnosis too. Folks with #LongCovid & other chronic illnesses welcome @KTLGoldfinch #Solidarity
Touretteshero@touretteshero

Our practical intervention fund AKA the #PIF is open from now till 6th June. For disabled, sick or ND folks, kids & adults, funding small items (up to £150) that help wellbeing & can’t easily be self funded, uk wide, light application process: touretteshero.com/2023/05/09/ret… #Solidarity

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Jessica Moxham
Jessica Moxham@jessmoxham·
I loved taking to Rachel and Lucy, and the things we talked about- houses, motherhood, ableism- are such important aspects of being a parent of a disabled person. Rachel’s determination to talk about all aspects of being this kind of parent is incredible.
BornattheRighttime@BornatRightTime

On tomorrow's #theskieswereunder #podcast, @jessmoxham local mother, architect & author, talks with Rachel & Lucy about her book ‘The Cracks that Let the Light In’. They discuss life when children are in hospital, making homes accessible and doing our best. Tune in from 6am 3/5

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Jessica Moxham
Jessica Moxham@jessmoxham·
I wrote a longer blog about it here: son-stories.com/2023/04/05/ord… (Yes, my (toxic?) trait is reading posts weeks after they are published, stripping out all the facts and figures, and putting in my own personal anecdotes)
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Jessica Moxham
Jessica Moxham@jessmoxham·
People in government don’t have the empathy required to imagine what they don’t experience. If you claim disability benefits, or deal with social services, you know what 'ordeals' feel like, and they feel shit. And they don't even work!
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Jessica Moxham
Jessica Moxham@jessmoxham·
In this post @Samfr sets out how the 'ordeals' experienced by people trying to access services are deliberate, which feels true to me. The difficulty of getting a place at the most appropriate out-of-borough school, or an adapted bus to get there, etc, etc is on purpose.
Sam Freedman@Samfr

New post just out "Ordeals and the Empathy Gap" - on the big problem with the budget's plans to help people back to work. (Free to read) samf.substack.com/p/ordeals-and-…

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Keşfet

@UoYppcrg @makedoandSEND @TimHerrera @GoldsmithsEng @renardpress @BookwormVaught @yearsofreading @Kateblincoe