COA - Chromophobe and Oncocytic Tumor Alliance

At the @UCSDCancer Kidney Cancer Patient Summit, terrific lineup including @AdityaBagrodia, @YuWeiChenMD & @ADESAIONCMD. Dr. Bagrodia delivered clear, thoughtful comments on a variety of local therapies; Dr. Chen reminded us of the value in clinical trials like the @ALLIANCE_org STRIKE trial. The morning concluded with a riveting presentation from @kaydaustin, describing her journey. Was especially touched by the kinship she formed w other advocates incl our treasured @SWOG RCC Advocate @LauraEsfeller!

A beautiful vision from @DrRanaMcKay to bring together patients & providers at the @UCSDCancer Kidney Cancer Patient Summit. After initial comments from Dr. McKay & @AdityaBagrodia, inspiring words from the founder of @Joeyswings & the CEO of @kidneycan, @advocatekidneys. Terrific lecture thereafter from @cityofhope's very own @arafflemd on non-clear cell subtypes.

Hello everyone, We are hosting our first kidney cancer symposium in Connecticut for individuals with kidney cancer and their caregivers. Register here: registration.curetoday.com/eps_kidney_apr… Please re-tweet and help spread the word! @YaleCancer @KidneyCancer @kidneycan @kcCURE @OncBrothers @OncoAlert @DrChoueiri @Uromigos @KidneyCAN4KCRS @OncLive @kaydaustin @smart_patients

📢 We're accepting applications for #KidneyCancer research grants! Let us fund your work through: 🌟 Trailblazer Awards 🌟 Interdisciplinary Med Focus Award, w the Korek Foundation 🌟 Chromophobe RCC Focus Award, w @kidneycoa Apply 🔗 bit.ly/4b4unPu

📢 #KidneyCancer grant applications OPEN NOW! Apply today and let's make the next research breakthrough together! 🔗 bit.ly/4gVe0FR On offer: 🌟 Trailblazer Award 🌟 Interdisciplinary Med Focus Award, w the Korek Fdn 🌟 Chromophobe RCC Focus Award, w @kidneycoa

What a year for our KCA Affiliates! ✨ From community walks to local advocacy, our Affiliates showed up in incredible ways, lifting patients, families, and one another. Thank you for your passion, creativity, & heart. Excited for what’s ahead in 2026! #UntoppableTogether 🧡

🚨Match Alert! COA launched four new programs this year to empower chRCC patients. Your gift keeps them running and thanks to a generous match offer, every dollar up to the first $10,000 raised is MATCHED until midnight for Giving Tuesday! Donate: coakidney.org/donate

3/3 · Higher FSP1 levels correlate with poorer patient survival outcomes · Dual inhibition of FSP1 and the glutathione/GPX4 pathway demonstrates strong synergy

2/3 We discuss their recent paper on FSP1 (Ferroptosis Suppressor Protein 1) in chromophobe renal cell carcinoma. 🔬Key findings from this research: · Chromophobe RCC shows the second-highest increase in FSP1 expression compared to normal kidney tissue among cancers in the TCGA

1/3 Targeting FSP1 in Chromophobe RCC. We’re excited to share a new video featuring Dr. @SamerSalem18, who recently completed his postdoc in Dr. @LisaHenske’s lab at Brigham and Women's Hospital discussing FSP1. Watch the full discussion: youtu.be/rH6IV7rg6m0?si…

Incredible representation for chRCC at #IKCSNA25 including a phenomenal oral abstract presented by Sahil D. Doshi, MD summarizing the largest multi-institutional analysis to date on outcomes of metastatic chromophobe RCC with and without sarcomatoid features!

More TRIP13 insights seen at #IKCSNA25 in a poster presented by Nathan Maulding, investigating Prognostic Signatures Associated with TP53 mutations in chromophobe RCC.

Learn more about the exploration of TRIP13 in chRCC from Dr. Niki Zacharias Millward, KCA Trailblazer Awardee here: kidneycancer.org/grants-niki-za…

Thrilled to see @Dr_Liz_Ellis_MD presenting new research on TRIP13 in chromophobe RCC at #IKCSNA25 👏 @Dr_Liz_Ellis_MD received the COA/KCA 2024 Chromophobe RCC Focus Grant which helped identify TRIP13 expression in a chRCC cell line. @KidneyCancer

Chromophobe RCC shows specific dependency on BCL-XL for survival. New research from the Henske lab and @adrenadine99 demonstrates that dual targeting of BCL-XL + MCL-1 induces significant cell death and synergizes w/ferroptosis Learn more here youtu.be/x_EJYXIJ1Ek @LisaHenske

Scholar-in-Training Awards NOW OPEN! Award categories for kidney cancer include: 🌟Chromophobe (1) 🌟 RMC (1) Translocation or pediatric kidney cancers (1) VHL (1) International (1) Broad-category kidney cancer awards (any type) (5-6) Apply here: aacr.org/professionals/…

Today is the first-ever Chromophobe Kidney Cancer Day! We’re shining a light on a rare kidney cancer subtype and the powerful community behind it. 🧡 Share your story 🧡 Celebrate survivorship 🧡 Raise awareness Tag us and use #ChromophobeDay so we can lift your voice.

What if your takeout could change lives? Tomorrow, grabbing a meal from Panda Express helps fuel research and support those living with chromophobe kidney cancer. Order here and use code 9005619 at checkout. pandaexpress.com/?showMenu=true #ChromophobeRCC #PandaExpress #DoGoodEatGood

Join us on September 5th!

The Henske Lab making our day with this photo! So grateful to see them sharing Chromophobe Kidney Cancer Day (Sept 5th) during their lab meeting and their planned lab lunch from Panda Express. Keep sharing and tagging us in your plans- it makes our day, and lifts the community!