Aleta Gibbs

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Aleta Gibbs

Aleta Gibbs

@leta70

Mum of 4 👩🏻👱🏻‍♂️🐶🐶 (she/her) Animal lover Wannabe Chef 👩🏻‍🍳Cystic Fibrosis advocate Pro Vax 💉 Former Registered Nurse Primary Early Childhood Educator

Awabakal Land Australia Katılım Şubat 2013
495 Takip Edilen358 Takipçiler
Aleta Gibbs retweetledi
Strawfie Challenge
Strawfie Challenge@strawfie·
When he's six, little Vihaan would be given a cystic fibrosis drug called #Trikafta if he lived in the UK But big pharma aren't interested in countries that can't/won't pay their extortionate prices Please sign our PETITION for global access👇 actionnetwork.org/forms/cf-drugs… Pls RT
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Helen Kulas
Helen Kulas@HelenKKulas·
When will YOU stop??? As one of the said vulnerable (severe asthma), I was extraordinarily grateful for EVERY single sacrifice. Then we let it rip & I copped COVID. 3.5 months later, 5 admissions, physically broken. No mum should look like this alongside their 12 year old girl.
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Dr. Nick Coatsworth@nick_coatsworth

We locked down our society, stopped children attending school, closed playgrounds, fined the least fortunate, separated families, created mental illness, all in the name of protecting our most vulnerable, yet for some it will never be enough. When will the moralising stop?

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Alan Baxter ♛
Alan Baxter ♛@AlanBixter·
Over the next few days, I'll be posting about COVID and why the current plan (highest infection rates in the world and COVID one of the top causes of death in Australia) cannot stand. Let's start with this: /2
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Dr Susanna
Dr Susanna@SusannaMarinaP·
@TedWritesStuff @AlanBixter To complicate matters, you can test positive for up to 4 weeks after initial infection but you are not contagious…that’s why where i work (health care) you don’t need to do the usual daily RAT for 4 weeks following infection.
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Aleta Gibbs
Aleta Gibbs@leta70·
@DrEricLevi I hate it when people turn wearing a mask and being mindful of infection as “ you stay home be scared”. COVID is a real risk for some. My daughter has Cystic Fibrosis with bronchiectasis. I refuse to let ableist attitudes deter me from taking care of those at risk. N95 for me.
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Dr Eric Levi
Dr Eric Levi@DrEricLevi·
My wearing a mask doesn’t hurt anybody.
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Aleta Gibbs
Aleta Gibbs@leta70·
@DrEricLevi Listen to different chest sounds possibly associated with post nasal drip from sinus disease. The mucus from post nasal drip tends to be more central in the lungs. 🤷🏼‍♀️ Possibly?
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Dr Eric Levi
Dr Eric Levi@DrEricLevi·
What’s this heavy rubber thing over my neck? And why would an ENT surgeon have one of these?
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Aleta Gibbs retweetledi
Vertex Save Us
Vertex Save Us@VertexSaveUs·
@VertexPharma Will this amazing day come for ALL #cysticfibrosis children, or only those lucky to be born in the richest nations? Not one Low or Middle Income Country has access to #Trikafta #Kaftrio due to excessive pricing. Shameful. #GlobalCFFamily #Trikafta4All #HumanRights
Nicola Johnson@JohnsonMNicola

And here it is. I’m incredibly emotional. If I could time travel to diagnosis day, holding my very sick baby and thinking how awful and short his life will be, I’d tell me that this day will come and it will be ok. #kaftrio #cysticfibrosis @VertexSave @Bham_Childrens 💛

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Cystic Fibrosis Aust
Cystic Fibrosis Aust@CFAustralia·
Everyone knows its #TimeForTrikafta, but now our politicians need to step up to the plate. Help our Parliamentary Petition get to 40K signatures and join the fight for Trikafta! lnkd.in/g3M-iUaV
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Cystic Fibrosis Aust
Cystic Fibrosis Aust@CFAustralia·
Meg Draffin lives with CF and wants Australia to know about Trikafta. Catch her story on The Jim and Nath Show via the link below. Our thanks to everyone who speaks up about this important issue or amplifies CF voices. lnkd.in/g5vh5cwg
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Aleta Gibbs
Aleta Gibbs@leta70·
@MagdaSzubanski Wordle 255 5/6 ⬜⬜🟨⬜⬜ ⬜🟨⬜⬜🟩 🟩🟩⬜⬜⬜ 🟩🟩⬜⬜🟩 🟩🟩🟩🟩🟩 No way! You’re a legend.
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Magda Szubanski AO
Magda Szubanski AO@MagdaSzubanski·
Wordle 254 2/6 ⬜⬜🟨⬜🟨 🟩🟩🟩🟩🟩 YASSSS!!!
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Aleta Gibbs
Aleta Gibbs@leta70·
This is what waiting for Trikafta looks like for Australians with Cystic Fibrosis The PBAC gave Trikafta a positive finding but @VertexPharma & the PBAC still haggle over price Coughing until you vomit,hospital admissions, loss of lung function #TrikaftaNow is needed @GregHuntMP
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Tanya Koorts
Tanya Koorts@TanyaKoorts·
@VertexPharma I explained to Janco that @VertexPharma has medicine that does magic and he asks pretty please not to forget him and all his CF warrior brothers and sisters
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Aleta Gibbs
Aleta Gibbs@leta70·
@VertexPharma This is my daughter who coughs for hours on end until she’s vomiting who has been waiting for a price agreement for #Trikafta with the Australian PBAC. Not good enough Vertex I’m watching my daughter die while you haggle over $$$$ #TrikaftaNow
Aleta Gibbs tweet media
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Vertex Pharmaceuticals
Vertex Pharmaceuticals@VertexPharma·
We are pleased to announce that all our #cysticfibrosis therapies will be reimbursed for eligible people with #CF in #Poland as of March 1, 2022. People with CF in 34 countries now have access to a Vertex CFTR modulator therapy.
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Aleta Gibbs
Aleta Gibbs@leta70·
In Australia we still wait for #Trikafta We are years behind the other 25 countries who already have access A positive PBAC finding isn’t good enough We need it in our hands @VertexPharma @GregHuntMP @ScottMorrisonMP Make it happen #TrikaftaNow
Maisie 🌻@MaisieRB_x

2 years ago today I took this photo, I just received my first dose of Kaftrio after spending 4 weeks fighting to stay alive. These two tiny little tablets saved my life, quite literally. Forever grateful ♥️

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Aleta Gibbs
Aleta Gibbs@leta70·
@cubbers @nrsaran @LondonAllergy It’s her narrative now. Perhaps she could have changed it so it’s positive on all counts. She has every right to be proud of her achievements. Teachers and education got her there. BTW teaching isn’t a female dominated profession either.
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Keşfet

@SusannaMarinaP @TedWritesStuff @AlanBixter @DrEricLevi @VertexPharma @JimWilsonMedia @MagdaSzubanski @elonmusk