Michael Lecker

Since 9/11, more than 275,000 Veterans have been lost to ALS. That's thousands of families impacted. I'm joining #OperationEndALS and @iamalsorg to raise awareness about the higher rate of ALS in Veterans and end ALS. OperationEndALS.org

Help me grow the movement to end ALS by asking your representative and senators to join the ALS Caucus. iamals.org/build-congress…

We are deeply saddened by the passing of our dear friend Phil Green, a fierce advocate for the ALS community.  Phil was one of the forces behind the founding and shaping of #LouGehrigDay across @MLB. We send our deepest condolences to Phil’s wife Jennifer, their four children, and Phil’s many friends and admirers.  We are forever grateful for Phil’s determination to help others. “I fight for everybody that has been chosen to carry the burden of #ALS.” - @pjgreen

Great to see @iamalsorg’s Brian Wallach and Sandra Abrevaya today—even if virtually. The best hope for an ALS cure or treatment is NIH. I will do everything I can to fight back against the Trump Admin’s medical research cuts—for Brian and others like him.

The Clinical Trials Team hosted a fantastic webinar last week on Genetics and ALS. If you missed it, never fear—the full recording is available on our YouTube channel! Watch it here: youtube.com/watch?v=grUn2E…

Join I AM ALS, @lorenzos_house, and Global Neuro Ycare on Thursday, June 13 for a virtual event designed for children and families to raise awareness about ALS, other motor neuron diseases (MNDs), and younger-onset dementia. Learn more & sign up: bit.ly/4kMmDEX

Thank you for your ALS leadership @SenatorDurbin and for sharing @bsw5020 & @sabrevaya's story with @SecKennedy. ALS is urgent with no time to waste. We look forward to advancing research & access to promising treatments with Sec. Kennedy, @DrJBhattacharya @DrOzCMS @DrMakaryFDA

Thank you ⁦@SenatorDurbin⁩ for you continued support of the ALS community thank you Robert Spivey for listening to our group. ⁦@iamalsorg⁩ ⁦@LesTurnerALS⁩ #ENDALS

Curious about how genetics play a role in ALS when there is no family history? Join us on Tuesday, May 27th at 5pm EST for a free one-hour webinar led by Ms. Laynie Dratch, a licensed, certified genetic counselor at Penn Medicine. iamals.org/genetics-of-al…

Happening today! Office hours at 4:30pm ET/ 1:30pm PT. Join & ask any question on ALS, communication challenges, your communication device/apps/software & new technology. All are welcome! airtable.com/appmv67LH3qRov…

As ALS progresses, you may experience muscle tightness and joint stiffness due to lack of movement. Range of motion exercises can help improve flexibility and reduce discomfort. #als #alsandexercise #rangeofmotion

Technology In The Home | Hope & Housing | ALS Home Renovation Series youtu.be/xoVkudh6TS8?si… via @YouTube #accessible #enable #gaming #als

Urgent action! The House has released a continuing resolution bill to fund 2025 with dramatic cuts to the Department of Defenses’s CDMRP, which funds ALS research. We cannot allow this. Ask your legislators to continue to fund this critical program: iamals.org/cdmrp2025/

📣We welcome you to join @CMAorg attorneys for our upcoming free live webinar! Learn about Medicare Appeals 101 Wed, 4/2 at 2:00 PM ET Register today⬇️ medicareadvocacy.org/webinars/

You can help I AM ALS go further this year by donating your @United Airlines miles. It's so easy -- just follow this link to our Miles on a Mission page! donate.mileageplus.com/Charity/Detail…

NeuroSense Therapeutics Enters Binding Term Sheet to Advance PrimeC for ALS 💫 "Take-Home Message": 1. This is yet another strong validation of our groundbreaking science and clinical trial, highlighting the immense promise PrimeC holds. 🧠 2. $NRSN is in a solid financial position, with no current need for a capital raise - not now, not soon, and very likely not even later. 💪 We are thrilled to share today's news of signing a binding term sheet with a leading global pharmaceutical company! Deal Highlights: 1. A substantial upfront payment upon signing a definitive agreement. 2. Funding of the Phase 3 study. 3. Regulatory and net sales milestone payments. 4. A tiered royalty structure with double-digit percentages on annual net sales. Additionally, NeuroSense retains full rights to PrimeC in other key territories. Stay tuned as we take another significant step forward in transforming ALS care! 🚀

The Elizabeth Dole bill has passed in the House -- now all that's left is the Senate! Use this action to contact your Senators and encourage them to support this bill that will allow more Veterans living with ALS to continue receiving care in their homes. iamals.org/action/elizabe…

When Doug's wife, Shadene, was diagnosed with #ALS in 2017, Doug stepped up to provide her with steady support and care. Thank you, caregivers! 💙 During #NationalCaregiversMonth, we are honored to highlight some of the many terrific caregivers in the #LiveLikeLou community.

#als #caregiver #uncrushablespirit

NEW EPISODE! Brady, 11 & Brooklyn, 8 lost their dad to ALS this year. I chat with them about their father, Chris Yozwiak & what they’re doing to help End ALS. Listen in: podcasts.apple.com/us/podcast/im-… @ALSTDI