NOAACF
90 posts
NOAACF
@noaacf
The mission of the National Organization of African Americans with Cystic Fibrosis is to engage, educate & raise CF awareness in the African American community.
Katılım Haziran 2020
30 Takip Edilen115 Takipçiler
Revolutionary New Guidelines Set to Enhance Cystic Fibrosis Screening Methods scienmag.com/revolutionary-…
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NOAACF retweetledi
@LurieChildrens @NUFeinbergMed @SusannaMcColley @NUCATSInstitute Listen to Dr. McColley, MD, discuss newborn screening and her work promoting equity in early diagnosis and care for #cysticfibrosis on @ManneResearch's In Pursuit podcast. Hosted by Manne Research Institute Prez &CRO @DrPatrickSeed. research.luriechildrens.org/en/in-pursuit-…
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@JenTaylorCousar Thank you so much @JenTaylorCousar and that means the world to me coming from an amazing trailblazer such as you!!!
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I am so honored to be featured by my Alma mater, The University of Arkansas, in this beautifully written article that uniquely highlights and pays homepage to my deep Tuskegee Roots and my quest for health equity!!!
news.uark.edu/articles/70592…
And the Best is still yet to come! ❤
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@SusannaMcColley @CFRI_CureCF @JenTaylorCousar @WiseWright You are ABSOLUTELY AMAZING Dr. @JenTaylorCousar. I am most grateful for you, Dr. @SusannaMcColley, @CFRI_CureCF, and all of our phenomenal CF cohorts!!!
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So inspiring and fun to spend time with friends devoted to #HealthEquity in CF at #ATS2024 @CFRI_CureCF and @noaacf @JenTaylorCousar @WiseWright
Cystic Fibrosis Research Institute@CFRI_CureCF
🌟 We had an incredible time at the ATS 2024 International Conference🌟 A huge thank you to everyone who visited our booth and shared their time with us, whether it just to say hi or to learn more about our work we appreciate you. Your support & enthusiasm mean the world to us!
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@JenTaylorCousar @NJHealth @JenTaylorCousar, the privilege was and remains ours. We are the beyond grateful for all your invaluable contributions, energy, support, and dedication toward making a difference for NOACCF, CF, Health Equity, and beyond!!! You are Amazing!!!
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After learning about a patient’s #misdiagnosis due to his race, a cystic fibrosis (#CF) expert decided to help develop a new screening tool. Learn how this tool stops people with CF from falling through the cracks.brnw.ch/21wILUA
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I am so honored for @TerryGeneWright and me to join this phenomenal 2024 lineup of cohorts during the American Thoracic Society’s Public Advisory Roundtable (PAR)'s 18th annual Patients & Expert Forum, which will take place on May 18, 2024, in San Diego, Calif!
Flyer is below!
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NOAACF retweetledi
Timely diagnosis and treatment is essential for infants with #CysticFibrosis and other disorders diagnosed by #NewbornScreening @CF_Foundation @BabysFirstTest_ @ExpectHealthOrg @SaritaEdwards @LurieChildrens @ManneResearch @CDCChronic
Lurie Children's@LurieChildrens
Earlier evaluation for cystic fibrosis is associated with better early life nutrition. @manneresearch Learn more luriechildrens.org/CFnewbornscree…. #newbornscreening #newbornscreeningawarenessmonth #cysticfibrosis
Chicago, IL 🇺🇸 English
@SusannaMcColley Thank you Drs. @SusannaMcColley and @DrMeghanMcGarry for all you are and do for newborns in general and underrepresented individuals!!!
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Excellent information about #NewbornScreening for Newborn Screening awareness month👇!
Sarita Edwards@SaritaEdwards
In this sizzle, Sarita explains what newborn screening is and shares a shocking announcement about the test that ALL newborns are supposed to get. Full episode on our YouTube channel! buff.ly/3sHKf7L
Chicago, IL 🇺🇸 English
I'm so excited to feature the @ExpectHealthOrg
video from me speaking, alongside Dr. Malika Fair, MD, MPH, FACEP, as the featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" on July 27th!!!
youtube.com/watch?v=zajKPp…
YouTube
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@ExpectHealthOrg @AAMCtoday @ExpectHealthOrg , you are absolutely phenomenal and I appreciate you and Dr. Eboni Drummond for the opportunity to speak on this most important topic. I am honored to have been included! <3
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The recording for our 'Being Black in Healthcare — Patient and Provider Views' webinar is now available! One of our amazing attendees said it's "definitely one of the best webinars I have seen in a long time." Watch the recording here: bit.ly/47i5WLw #healthequity
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@JenTaylorCousar Oops, you did it again Dr. @JenTaylorCousar and you keep doing!!! I'm (We're) so incredibly proud of you!!!!!!
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NOAACF retweetledi
“If you were not Black, I’d say you have #CysticFibrosis,” what Dr. Michele Wright’s (@noaacf) then fiance was told by a White physician 17 years before he was diagnosed with CF. #raredisease #healthequity #genetics #DEI #healthdisparities
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NOAACF retweetledi
Grateful to @CDCgov @CF_Foundation and The Legacy of Angels Foundation for supporting our work to achieve equity in CF diagnosis @LurieChildrens @ManneResearch @noaacf @DrMeghanMcGarry luriechildrens.org/en/news-storie…
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Interesting Article!
Should the medical world reconsider the use of race in medical algorithms?
news.yahoo.com/should-the-med…
Funds were granted to five organizations to reconsider the use of race in medical algorithms as the medical industry is increasingly scrutinizing centuries...
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@SusannaMcColley @WiseWright Thank you so much for sharing and supporting as always Dr. @SusannaMcColley !!!
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Looks like an amazing discussion @WiseWright @noaacf !
Expecting Health@ExpectHealthOrg
Register today so you don’t miss out on this important discussion about the encounters and situations Black people experience when navigating the healthcare system from the patient, advocate, and provider perspective. bit.ly/3Xzm1Iq #healthdisparities #healthequity
Chicago, IL 🇺🇸 English
NOAACF retweetledi
Join us on July 27th at 1:00 PM EST to hear Dr. Michele Wright (@noaacf) and Dr. Malika Fair (@AAMCtoday) share their experiences navigating the healthcare system from the Black patient advocate and healthcare provider perspectives. Secure your spot: bit.ly/3Xzm1Iq
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I am so excited to join Dr. Malika Fair, MD, MPH, FACEP as a featured speaker for "Casual Conversations, Challenging Topics: Being Black in Healthcare - Patient and Provider Views" hosted by Expecting Health on Thursday, July 27, 2023, from 1-2 PM EST.
us02web.zoom.us/meeting/regist…
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