Open Medicine Foundation

Are you experiencing post-exertional malaise (PEM): flare of symptoms and/or appearance of new symptoms after exertion, sometimes delayed after triggering event? See our pacing guides: Adult, Pediatric (w/ @LCfamm) & clinician (w/ @Patientled). meaction.net/pacing-and-man… #LongCOVID

Tina is one of the Hope Builders — monthly donors whose collective support helps keep OMF's research moving forward. This March, we're welcoming 30 new Hope Builders. Will you join us? 👉 Read Tina's story and become a Hope Builder: omf.ngo/tina-mecfs-sto…

🧬 Science Wednesdays: Citrate synthase Learn more about citrate synthase and OMF’s Ronald G. Tompkins Harvard ME/CFS Collaboration study investigating post-exertional malaise via muscle biopsy 👉 omf.ngo/citrate-syntha… #MECFS #PEM #pwME #mitochondria

Congressional action could make all the difference for people with ME/CFS. Reach out to your Members of Congress today → solvecfs.quorum.us/campaign/15794… #pwME #MEAwareness

🗣️ Your voice matters! By sharing your story, you help raise awareness and deepen understanding of #MECFS, #LongCOVID, and related diseases. Whether you're a patient, caregiver, family member, or friend, your experience is important. Submit your story 👉 omf.ngo/voices-of-m-e/

New from HHS: hhs.gov/longcovid is now live. Your hub for Long COVID research, diagnostics, clinical resources, and more. Because 18 million Americans deserve answers.

From The RECOVER Initiative: Honoring the many lived experiences with Long COVID 👉ow.ly/3thg50YumfF.

Today is #LongCOVIDAwarenessDay — a moment to recognize the reality facing hundreds of millions worldwide. 🌎 #LongCOVID is not a disease fading into the past. For many, it is a daily struggle with no clear end and no approved treatment in sight. 🔗 omf.ngo/2026-long-covi…

To honor #LongCOVIDAwarenessDay, @OpenMedF, @MEActNet, @PlzSolveCFS & @BatemanHorne once again joined forces as #UnitedForME. We gathered a set of resources from our orgs to inform & empower: bit.ly/3Na4mX4 #LongCOVID #pwME

From the OMF-supported MERC with @BatemanHorne: During a crash, #pwME may struggle to think or communicate clearly. Cards help patients point to needs like water, pain, light sensitivity, or emergencies. Find these cards in our Crash Survival Guide: bit.ly/44MgSS9

💙 Will you take the next step with us? Join our community of Hope Builders by becoming a monthly donor to #OMF!! 👉 ow.ly/aJCP50VjlWq Your support fuels #MECFS and #LongCOVID research, bringing us closer to solutions.

🧬Science Wednesdays: Estimating Lifetime Prevalence of #MECFS Based on published research, the lifetime prevalence of ME/CFS is over 279 million people, which is around 1 in 29. 🔗 Read more about lifetime prevalence of ME/CFS: ow.ly/iR4q50Ysroa

OMF Journal Club: March 11 at 11 am ET Dr. Meadows will discuss the latest paper from Dr. Jonas Bergquist and collaborators: "Plasma proteomic profile reveals persistent immune activation in post-acute sequelae of SARS-CoV-2 infection (PASC)." 👉 Sign up: ow.ly/eP3750YrjVz

A symptom list doesn’t always show severity. Our Good Day / Bad Day Questionnaire helps patients communicate real-world function in #MECFS & #LongCOVID. 🔗bit.ly/3n9foLx Educational material by #MERC in collaboration with @OpenMedF.

#MECFS affects millions but is NOT part of standard clinical training. This Advocacy Week (Mar 23–27), @PlzSolveCFS & @MEActnet will ask patient safety agencies to support our mission to introduce ME/CFS questions into qualifying national medical exams. ow.ly/Tqet50YoPG7

From his bed, Sebastian creates Drum & Bass 🎶 Two years ago, he was active, sporty, and highly driven. Today, he is around 90% bedbound. He works on music when he can & his work has reached over 1.5 million streams on Spotify. Read Sebastian's story👉 ow.ly/VRR550YpIeo.

Hope for people with #MECFS and #LongCOVID starts with research. When you become a monthly donor — a Hope Builder — you provide steady support that helps sustain critical research programs and move discoveries forward. 👉 Become a Hope Builder today: ow.ly/Yja650YpHpQ

In the context of research, calling something “significant” is a statistical description. It’s a term that indicates it’s unlikely that random chance could explain a result. 🔗Learn more about calculating significance in #MECFS research: omf.ngo/significant/

Dr. Bergquist & his collaborators published a paper looking at protein levels in people with post-acute sequelae of SARS-CoV-2 infection and controls who recovered from a SARS-CoV-2 infection. 🔗Learn more about this publication and the next Journal Club: omf.ngo/persistent-imm…

In 2025, OMF launched a large-scale #MECFS biomarker project called BioQuest. Cort Johnson’s article explores the study and includes insights from Dr. Danielle Meadows, OMF’s Vice President of Research Programs & Operations. 🔗 Read the article here: ow.ly/aZkX50YocQC