Maud Sac 💢

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Maud Sac 💢

Maud Sac 💢

@papillyon

ME/CFS since 2018, now severe, mostly bedbound, with my cats. @papillyon.bsky.social

Un lit en France Katılım Ekim 2009
765 Takip Edilen316 Takipçiler
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Jack
Jack@j4ppleby·
What a difference a headline makes.
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Laura vs M.E. 🏳️‍🌈♿
Everything is FND in the world of neurology. Tics? FND Vertigo? FND Dizziness? FND Tremors? FND Seizures? FND Can't walk? FND Limb weakness? FND Sensory issues? FND Speech problems? FND Learning about ME, LC, POTS, SFN, MCAS etc? No! they're busy diagnosing everyone with FND.
Rhi@rhirhiarhii

The audacity to say my neck issues causing vertigo and dizziness, bobble heading were FND. Just as well it was my last appointment with them However they did help pain management so fml also

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Anasse Kazib
Anasse Kazib@AnasseKazib·
C’est une annonce incroyable, Gilles Guilbert le policier qui a tué Olivio Gomes, vient d’être condamné à 10 ans de prison pour le meurtre d’Olivio par la cour d’assises de Versailles. C’est une décision historique tant on sait comment les crimes policiers sont toujours couverts. Justice pour Olivio ✊🏼
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colinoomf
colinoomf@BordelloColine·
Aucun homme n'a été détecté lors de ses tests au cours des 100 dernière années. Le gène SRY n'est pas un indicateur fiable et c'est justement pour ça que les tests avaient été retirés. Aussi, la seule athlètes trans qui a été au JO est arrivée dernière.
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colinoomf
colinoomf@BordelloColine·
Petit rappel: les 9 dernière femmes qui ont échoué au test de féminité étaient toutes des femmes c!s. Elles ont dû subir une inspection des organes génitaux de leurs poils pubiens et de leurs seins pour ça. Certaines ont tenté de se suicider par la suite.
colinoomf@BordelloColine

"Près de 30 ans après y avoir renoncé, le CIO a rétabli jeudi les tests génétiques de féminité à compter des JO 2028 de Los Angeles, bannissant du sport féminin les athlètes transgenres et une grande partie des athlètes intersexes." La honte 20min.ch/fr/story/jo-20…

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Louis Brunel
Louis Brunel@LouisBrasil998·
L'individualisme autocentré des euthanasistes me répugne au plus au point. Incapable d'analyser le problème au delà de la sphère familiale/individuelle. Ni de voir que ces mesures fragilisent fortement les droits des personnes vulnérables en favorisant la mort au lieu de l'aide
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PwME 4 bioMEdical research
Now retract the PACE trial How NOT to Conduct a Randomized Clinical Trial youtu.be/PRCQ-kIxQyY?si… The PACE trial is frequently taught in epidemiological seminars as a lesson in how to create bias, false, and non-reproducible results in a clinical setting.
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The Lancet@TheLancet

Retraction—Today, we retract an unsigned 1977 commentary suggesting talc powder containing asbestos was not harmful. The Lancet was informed that the author had undisclosed competing interests and breached publication ethics. /4

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Naomi Harvey “PhD Witch” #WearAMask
F*ck. I’ve overdone it two days in a row, debating what ME is & isn’t on here 😔 I used to enjoy such discussions, they’re how we refine our understanding of things, but I just can’t do it. Whatever ME is, this is part of it, I can’t even discuss things without suffering for it.
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Juna
Juna@elljuna·
@Yrrepmot People have a hard time understanding that every stage of severity with ME is like a new disease state with new/worse symptoms.
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Alan MacLeod
Alan MacLeod@AlanRMacLeod·
"Man in military fatigues" is a new one.
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Acrimed
Acrimed@acrimed_info·
Une soixantaine de journalistes ont publié une tribune pour se «désolidariser de la couverture médiatique de la guerre au Moyen-Orient». Nous la relayons 👇 acrimed.org/Nous-journalis…
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TheDisabilityEnthusiast
TheDisabilityEnthusiast@twitchyspoonie·
Others have pointed this out before, but I don't understand how if you get diabetes from covid, while that is a kind of long covid, it's uncontroversial to call it diabetes. But if you get ME from covid, it's somehow controversial to call it ME.
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Naomi Harvey “PhD Witch” #WearAMask
This confusion happens because the term PEM, which was made for describing the unique phenomenon experienced by pwME, has been taken by others using **really weak** definitions of it, and applied to those who experience any post exertion fatigue or symptom worsening.
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Naomi Harvey “PhD Witch” #WearAMask
@Lwardo4 It’s not your fault you’re confused, as so many people have co-opted the language used around PEM and have incorrectly applied the term to other diseases that experience disproportionate responses to exertion, but they’re wrong, that’s not what PEM is.
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Naomi Harvey “PhD Witch” #WearAMask
@MikeZ____ You literally could not be more wrong in your statement Mike. Please let this one go. What has really happened here is that people with LC who don’t have ME have co-opted the language developed and used exclusively my pwME to discuss our unique experiences.
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Naomi Harvey “PhD Witch” #WearAMask
@MikeZ____ PEM is not seen in any other disease and no, despite that one paper that claims it is, it is not seen in cancer either. The confusion results from a failure to understand what PEM is, it is regularly confused with PESE & exercise intolerance which occur in MANY diseases.
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elle carnitine 🍉
elle carnitine 🍉@elle_carnitine·
Their argument really amounts to: an ME researcher said something erroneous about LC, therefore people with ME (including those who have ME as a result of COVID) who advocate for themselves are responsible for the abandonment of people with long COVID
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