Fiona Copeland BEM

Enjoying the @lifearc1 Translational Centres Annual Showcase. Didn’t realise I am already taking part in their research @ourfuturehealth #raredisease

New online! Mouse radial spoke 3 is a metabolic and regulatory hub in cilia bit.ly/3TLKkSe

@CiliaAlliance I’ll be there!!

Join us online on Friday to learn more about skeletal Ciliopathies and the importance of support groups #retina #rp #cilia #jeune #joubert #raredisease ciliopathyalliance.org/news-and-event…

Join international experts in bronchiectasis to learn more about the latest guidance and research at our World Bronchiectasis Day Webinar register here: europeanlung.org/en/get-involve… Here @Shoemelia talks about the importance of research

Anyone in my network looking for a project role in patient and public involvement in rare respiratory disease? elxw.fa.em3.oraclecloud.com/hcmUI/Candidat… #pcd #raredisease #cilia #ppi

Great to be one of the patient voices at Primary Care Medical Education Conference. #raredisease #pcd #genetics ucl.ac.uk/epidemiology-h…

Sad to have lost a great friend pcdsupport.org.uk/news/SylviePro…

Exciting plans for Cilia27 meeting in Milan #cilia #rarediseases #pcd #rp #pkd #usher #bbs #alstrom

@CiliaAlliance @PCD_UK @BTSrespiratory Of course!!

@pcdmum @PCD_UK @BTSrespiratory Also using it as an opportunity to share awareness of other ciliopathies we hope!!

Good to be back representing @PCD_UK at @BTSrespiratory Winter Meeting today. #pcd #raredisease #respiratory #cilia

@beatpcd Looking forward to it!

Excited to join patients from across the globe tomorrow with a great lineup of speakers.

CUSP - Bright Ideas (Official Video) youtu.be/qW8wxeJ0N7U?si… via @YouTube

Great video showing what it is like to live with PCD from the French PCD Group with English Subtitles. #pcd #raredisease #cilia youtu.be/ad8bnE6qlBs?fe… via @YouTube

Is it a duck or a rabbit ? @ProfJDChalmers

Delighted to have been asked to attend the first Global PCD Advocacy Summit - lots of great ideas on how to collaborate and how to encourage people to take part in research. Even managed a swift pint in an English pub! @PCD_UK @PCDAustralia @PCDAustralia

@ProfJDChalmers Well deserved! 👏🏻

Wow. Thank you so much to the Lancet for this profile, it is a real honour. Medicine and Science are team sports and i've had amazing mentors, collaborators, clinical colleagues and the best team in Dundee that anyone could ask for. I feel very lucky and very grateful Thank you❤️

@aineoneillmason @ciekabailey Congratulations!

Excited for this next chapter with @ciekabailey ✨

@CUREUsher Congratulations! What a great way to raise awareness of Usher Syndrome.

Breaking news HUGE for Usher Syndrome metro.co.uk/2024/04/15/eas…