PrecisionLife

#MECFS has been misunderstood and underfunded for decades, but there's genuine reason for hope. We spoke with Sonya Chowdhury, CEO of @actionforme, about major progress and what still needs to be done. Watch: precisionlife.com/biology-matter… #MyalgicEncephalomyelitis #LongCovid

Healthcare is changing. As chronic diseases place growing pressure on patients, healthcare systems, and society, new approaches are needed to improve how we predict, prevent, and personalize care. A new conversation begins June 17 🎙️

These results confirm that #ME is a deeply polygenic & biologically heterogeneous condition with @ least 4 major disease mechanisms implicated by genetic signals Neurological dysregulation🧠 Inflammation🔥 Cellular stress response⚠️ Calcium signalling🚥 precisionlife.com/news-and-event…

WEBINAR TODAY: Our researchers are unpacking the new ME genetics study today - join the live webinar to hear the findings first-hand and get your questions answered. 📅 Today 🕑 2PM GMT 🔗 Register: us02web.zoom.us/webinar/regist… #pwME #MECFS #longCOVID #MissingMillions

Our genetic analysis of ME is now live. The new study identifies 250+ core ME genes, shared biology with long COVID, and dozens of drug repurposing opportunities for precision trials. Huge thanks to our partners and the @DecodeMEstudy participants. #pwME #longCOVID #MECFS

@CortJohnson Thank you for taking time out to speak with us, @CortJohnson - we look forward to sharing our progress as we advance our programs in #longCOVID and #MECFS. For anyone interested in reading our published research, please visit precisionlife.com/longcovid-mecfs. Thanks for your support!

PrecisionLife’s Bold Attempt to Break the Code on and Beat ME/CFS and Long COVID #MECFS #longCOVID healthrising.org/blog/2025/10/2…

We’re excited to share a recently release preprint from our collaborative work with @PrecisionLife - identifying and validating 75 novel genes associated with endometriosis. #Endometriosis #PatientsCantWait

▶️ Watch in full here: precisionlife.com/precision-diag…. Thank you to the community for your ongoing strength – your voices and experiences are driving science forward. #SevereMEDay #MECFS #LongCOVID #PrecisionMedicine #Genomics #ClinicalTrials #DrugRepurposing #MyalgicE

🎥 As part of today’s recognition of #SevereME, we’re sharing this recent presentation by our Co-founder, Rowan Gardner, given at International ME Conference: 𝗣𝗿𝗲𝗰𝗶𝘀𝗶𝗼𝗻 𝗗𝗶𝗮𝗴𝗻𝗼𝘀𝘁𝗶𝗰 𝗧𝗲𝘀𝘁𝘀 𝗮𝗻𝗱 𝗣𝗲𝗿𝘀𝗼𝗻𝗮𝗹𝗶𝘇𝗲𝗱 𝗧𝗿𝗲𝗮𝘁𝗺𝗲𝗻𝘁𝘀 𝗳𝗼𝗿 𝗠𝗘.

We are now running 𝗰𝗹𝗶𝗻𝗶𝗰𝗮𝗹 𝘁𝗿𝗶𝗮𝗹𝘀 𝗶𝗻 𝘁𝗵𝗲 𝗨𝗦 to validate new non-invasive diagnostic and therapeutic options – a major step toward faster diagnosis, targeted care, and hope for millions of patients.

Thanks to you, we’ve: ✔️ Confirmed the 𝗳𝗶𝗿𝘀𝘁-𝗲𝘃𝗲𝗿 𝗴𝗲𝗻𝗲𝘁𝗶𝗰 𝗲𝘃𝗶𝗱𝗲𝗻𝗰𝗲 for ME/CFS and long COVID ✔️ Identified 𝘀𝗵𝗮𝗿𝗲𝗱 𝗱𝗶𝘀𝗲𝗮𝘀𝗲 𝗺𝗲𝗰𝗵𝗮𝗻𝗶𝘀𝗺𝘀 between both conditions ✔️ Discovered genes that 𝗿𝗲𝘀𝗶𝘀𝘁 𝗮𝗻𝗱 𝗽𝗿𝗼𝘁𝗲𝗰𝘁 against ME

𝗧𝗼𝗱𝗮𝘆 𝗶𝘀 𝗦𝗲𝘃𝗲𝗿𝗲 𝗠𝗘 𝗗𝗮𝘆 – a moment to acknowledge the strength, resilience, and determination of those living with the most debilitating forms of Myalgic Encephalomyelitis.

@JackHadfield14 We hope that the research here if of interest: Identifying and Validating Genetic Risk Factors for ME/CFS and Long COVID - precisionlife.com/longcovid-mecfs

With the upcoming Decode ME results, don’t be discouraged if they don’t identify a specific gene that explains all of ME. What they are most likely to find, are risk factor genes - genes that increase your chance of developing ME. These can help us understand pathology.

Millions are still waiting for answers. Ahead of #SevereMEAwarenessDay, we’re reaffirming our support and using genetic insights to develop the first non-invasive mechanostic tests to accelerate diagnosis and improve care. 🔗 precisionlife.com/blog-supportin… #MECFS #LongCOVID

On this Global MND Awareness Day, we're sharing our latest work uncovering the mechanisms behind ALS, new protective biology, and a path to non-invasive, personalized diagnosis and treatment. Read more: precisionlife.com/publication-al… #ALS #MND

@NickyProctor @actionforme Thank you @NickyProctor

1 hour webinar hosted by @actionforme presented findings from LOCOME research and work on going by @precisionlifeAI It was brilliant. Do watch the recording when it's out. Really encouraging scientific progress. Thank you to all involved. facebook.com/share/p/1AspDx…

⏰ Last chance to register! Our webinar on #MECFS & #LongCOVID is tomorrow. Join for the latest research insights and their implications for the prediction, treatment and prevention of the conditions. 🔗 Register: precisionlife.com/webinar-update… #pwME #MyalgicE #MillionsMissing

Join the free webinar hosted by @actionforme on 6 June to hear the latest genetic research on ME/CFS & Long COVID and what it means for patients, clinical practice, and the future of precision medicine. 🔗 precisionlife.com/webinar-update… #MECFS #LongCOVID

🎥 𝗘𝘅𝗽𝗲𝗿𝘁 𝗣𝗿𝗲𝘀𝗲𝗻𝘁𝗮𝘁𝗶𝗼𝗻: We highly recommend watching Dr. Sayoni Das' presentation, #PrecisionMedicine for Long COVID and ME/CFS. 👉 𝗪𝗮𝘁𝗰𝗵 𝗵𝗲𝗿𝗲: precisionlife.com/hubfs/Video/Dr…

𝗚𝗲𝗻𝗲𝘁𝗶𝗰 𝗥𝗶𝘀𝗸 𝗙𝗮𝗰𝘁𝗼𝗿𝘀 𝗳𝗼𝗿 𝗦𝗲𝘃𝗲𝗿𝗲 𝗮𝗻𝗱 𝗙𝗮𝘁𝗶𝗴𝘂𝗲 𝗗𝗼𝗺𝗶𝗻𝗮𝗻𝘁 #𝗟𝗼𝗻𝗴𝗖𝗢𝗩𝗜𝗗 𝗮𝗻𝗱 𝗖𝗼𝗺𝗺𝗼𝗻𝗮𝗹𝗶𝘁𝗶𝗲𝘀 𝘄𝗶𝘁𝗵 #𝗠𝗘𝗖𝗙𝗦: 73 novel genes associated with Long COVID, and shared mechanisms with ME/CFS …nslational-medicine.biomedcentral.com/articles/10.11…

🔬 𝗠𝗘 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗪𝗲𝗲𝗸 𝗦𝗽𝗼𝘁𝗹𝗶𝗴𝗵𝘁: 𝗣𝗶𝗼𝗻𝗲𝗲𝗿𝗶𝗻𝗴 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵 𝗶𝗻 𝗠𝗘/𝗖𝗙𝗦 𝗮𝗻𝗱 𝗟𝗼𝗻𝗴 𝗖𝗢𝗩𝗜𝗗 This #MEAwarenessWeek, we're proud to share our progress in understanding and treating #MECFS and #LongCOVID. 🔗 precisionlife.com/longcovid-mecfs