NickyProctor

Great learning resource. 12x30min podcast episodes. These are really good, accessible #MedEd about #ME open.spotify.com/show/7qIbNL6uO…

Excellent post going in depth about the BPS model, beloved by psychiatrists and FND proponents when talking about #ME and #LongCovid Thanks to @LongCovidAdvocacy open.substack.com/pub/longcovida…

“Psychiatrists are experts in the biopsychosocial model to understand all their patients needs and a suggestion that they shouldn’t debate illnesses with biological causes risks stigmatising patients. (Prof Lade Wade).” #ME @LongCovidAdvocacy The BPS model in a nutshell

Excellent advocacy work from people with ME at Calderdale and Kirklees independent local ME support group. 👏 👏 👏 examinerlive.co.uk/news/local-new…

@j_b_kennedy He’s raging at the dying of the sh*te!

I blocked this bullshit merchant years ago … Why is he back in my feed? Interestingly his take on ME and Long COVID is as naive as ever so it’s time to press the block button again!!!

From Prof Chris Ponting on Bsky: UK people with Long Covid or ME/CFS: please consider helping the HERITAGE project. They need to recruit 1,000 people who have not accessed an NHS specialist service within the last 3 years. heritage.leeds.ac.uk/join/

“Senior leaders within the NHS, Police & CPS must be held responsibile when failures of duty happen.” Please sign this petition calling for this. 👇

Every father, every mother, every daughter, every son, every sister, every brother, every uncle, every aunt, every grand-parent. Every relative who has had their hearts broken by the loss of a loved one and everyone who wants to prevent the loss of a loved one. Everyone looking for institutional & individual accountability. Please sign..and pass on my petition to all your loyal followers 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏 petition.parliament.uk/petitions/7740… @Fhamiltontimes @redrumlisa @AllisonPearson @CamillaTominey @NotThatBigIan @nottm_post @OliverPridmore @JoshHartley_ @Alison1mackITV @IrishTimes @MarkPaulTimes @MiriamOCal @cathynewman @amscanlon @vicderbyshire @KemiBadenoch @skysarahjane @nikkijfox @hundredfamilies @hudgellsol @susannareid100 @MartinDaubney @CharlotteHawkns @TheMercianNews @PeterBleksley @PatricKielty @Mr_Oleary

Dr. Khan (@doctorasadkhan ) is being investigated at the behest of the pro-Israel lobby group UKLFI, even though he has no licence to practise‼️ 📣If you think this is bad, the GMC's draft order will only make things worse📣 Act today: 1️⃣Respond to the draft order consultation - deadline 21 July. We need maximum opposition🚨You can read our full response at hwac.info to get an idea of how to respond. 2️⃣Donate to our legal fund to help stop this from becoming law: chuffed.org/project/180354…

Open letter to The Royal College of Psychiatrists sent by Mark Harper and others on 13 July. #ME

Chronic Living Therapy is a directory of #therapists offering talking therapy for people with chronic illnesses - some are chronically ill themselves. This is the case with Pamela Phillips, the newest therapist to feature on the website. She works online and by phone. 🧵

New endometriosis tests set to dramatically speed up diagnosis news.sky.com/story/new-endo…

'Is the General Medical Council Fit for Purpose?' More nice reviews coming in See here for more detail and how to buy this book - drmyhill.co.uk/wiki/My_book_-…

@JoanMcparland on admission to A&E asked, “what is #ME” Made to sit on a hard chair for hours. This has to change. Too many of us have had similar experiences. Often too ill to rebel or get really angry we continue to be trodden down and ignored. 🤬

1/ friday evening advised by Phone First to attend A&E with high BP couldn’t stand/walk/head spinning Light/noise intolerant + inability to be upright more couple of hrs past 26yrs with #ME Asked on admission “whats M.E.“ 9hrs like👇 on chair the #PEM is still crucifying me

@PlanetEarth_HD @jomarshall111 @WoollerEmma @KSchnickelfritz So sorry you’ve had this experience. Again! Those doctors who inappropriately resort to deconditioning as a diagnosis and suggest graded exercise need to be updated. Changing entrenched attitudes is such a challenge. #Education #Education #Education

@jomarshall111 @WoollerEmma @KSchnickelfritz i feel like arguing agaisnt it but i cant see it doing anything, the worst part is because hes the second cardiologist now who ive seeked myself the gp wont be interested anymore and it adds weigh agaisnt me instead of helping me.

i wasnt sure to share this but this is what a pots specialised cardiologist has written about me from my last appointment, fair to say i dont agree with it and they havent learnt anything innthe last 6 years and probably never will.

@PlanetEarth_HD @jomarshall111 @WoollerEmma @KSchnickelfritz Maybe see if one of the charities (Potsuk or Action for ME or Long Covid Advocacy) can give advocacy support? I can completely understand if you don’t want to take further. However, calling out these medics with outdated attitudes will help others long term if you are able to

🚨 Huge news For the first time, a local authority in England has formally opposed Palantir's involvement in the NHS 🧵 1/4

Watch my speech LIVE at 11:30am 👇🏻 x.com/i/broadcasts/1…

@StevenShorrock @Dan_Wyke @MEResearchUK @MEResearchUKSci @MEresearchzone That’s awesome! 🤩 Well done both of you! 👏

@NickyProctor @Dan_Wyke @MEResearchUK @MEResearchUKSci @MEresearchzone Thanks for the suggestion. We went with @MEResearchUK. Gary finished the run - 66 miles, 42 peaks, 27,000 feet of ascent - in 22h33m, more than beating the 24h limit for the Bob Graham Round. Over £6200 raised. Here he is at the finish line - Moot Hall, Keswick, yesterday evening

If you could fundraise for one UK MEcfs charity, which would it be?