NickyProctor
10.5K posts
@NickyProctor
Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Dr @BinitaKane explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.
COVID INQUIRY: MODULE 3 REPORT “Fundamental flaws in the UK’s approach to IPC [infection prevention & control] guidance, for example in relation to the use of PPE, put patients and healthcare workers at risk.” — Baroness Hallett, Chair of the Covid Inquiry Read more here… ⬇️
People with #LongCovid, #MECFS and similar conditions don’t get the recognition and funding they deserve — @DrAmirKhanGP Unless decision makers have been personally affected, it’s almost as if they think ‘it won’t happen to me’ — @ZackPolanski
In response to a question from @ZackPolanski on #LongCovid, @DrAmirKhanGP says “I feel really helpless when I see them.” People who were healthy just a few years ago, a lot of them have lost their independence and ability to earn and there’s nothing in place to look after them.
“I put him to bed with paracetamol and Nurofen and I went in in the morning and he was dead - it was that quick.” Author and poet Michael Rosen remembers the sudden death of his late son Eddie to Meningitis C in 1999. #Newsnight
🚨 Closing soon! Programme Grants for Applied Research! Are you looking to develop an individual programme of applied health research with funding from £2 million to £3.5 million over 4 to 6 years? ⏰ Apply by 1 April 2026, 1pm. 🔗 nihr.ac.uk/funding/progra…
A new study from the Icahn School of Medicine at Mount Sinai reveals that major depressive disorder may share key immune abnormalities with inflammatory skin diseases—opening the door to new, targeted treatment strategies. Researchers identified overlap in the Th2 immune pathway, a mechanism well known in conditions like atopic dermatitis, and found that targeting this pathway could offer a novel, personalized approach to treating depression. The findings also highlight the potential of repurposing existing immunology therapies to address psychiatric conditions. “Given the successful translational approach in dermatology, we brought together experts across psychiatry, dermatology, and neuroscience to assess whether a targeted treatment strategy could work in major depressive disorder,” says James Murrough, MD, PhD. Read more mshs.co/3PbENpb
The Long Covid Roundtable was over five months ago. Patients were promised research funding in "weeks not months." Tick, tock.
