medicalmomma

1.3K posts

medicalmomma

medicalmomma

@prk2

Speaker, Rare disease pt/caregiver, CMMRD/mismatch repair EPCAM Gene family. Medically complex family who travel for medical care

NC Katılım Ekim 2012
460 Takip Edilen124 Takipçiler
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Prof. Anil D'Cruz
Prof. Anil D'Cruz@docdcruz·
Thank u, Hon. PM for this much needed initiative. Health indices are also important indicators of our country's growth. For a long time, many health leaders of our country did not believe in HPV vaccination. @uicc @cspramesh @PMOIndia @WHO
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Catherine Stratton, MPH
Catherine Stratton, MPH@cathsmstratton·
It was wonderful to attend the International Pediatric Stroke Organization (@curekidstroke) Congress with other members of the @moyamoyafdn. We made so many wonderful connections with brilliant clinicians and researchers. #RareDiseaseTruth
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IAPS PediatricStroke@StrokePediatric

Wow! The @curekidstroke conference was an amazing opportunity to connect with 250 #medical #professionals, #scientists, + a few #advocates from around the world! Exciting to see the #innovation, #research, & #collaboration for #pediatricstroke!

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Anant Madabhushi
Anant Madabhushi@anantm·
Thrilled to share "Artificial intelligence in neuro-oncology: advances and challenges in brain tumor diagnosis, prognosis, & precision treatment" in @Nature_NPJ Precision Oncology. With @MalakAbed, just featured on @saudiatv for her brain tumor work. tinyurl.com/33yhmzpm
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The Lancet Oncology
The Lancet Oncology@TheLancetOncol·
NOW OF An International Replication Repair Deficiency Consortium cohort study aims to describe the clinical spectrum, cancer biology, and impact of genetics on patient survival in constitutional mismatch repair deficiency. thelancet.com/journals/lanon…
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neil ryan
neil ryan@neilajryan·
On #lynchsyndrome day I pledge to help find the 95% of people who carry Lynch syndrome & don’t know they have it 1:300 of us have it Knowing is power By knowing we can help mitigate the cancer risk If you don’t know there is just risk Find out more @LynchSyndromeUK @eveappeal
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Heather Hampel
Heather Hampel@HHampel1·
This is so important. Very proud to be a member of this group and to be part of this effort to get ICD10 codes specific for Lynch Syndrome (by gene)! #ColorectalCancerAwarenessMonth
Fight Colorectal Cancer@FightCRC

We are proud to announce that the #FightCRC Genetics and Family History Advisory Council is leading an initiative, alongside nearly 150 patient advocacy organizations, medical societies, and medical professionals, to submit an application to the International Classification of Diseases (ICD-10) Coordination and Maintenance Committee to create a code specifically for #LynchSyndrome. Learn more! fightcolorectalcancer.org/blog/genetics-… @AmericanCancer @GeneticCouns @CGAIGC @ASGEendoscopy @WVUCancer @blackingastro @NCCN @AmCollegeGastro @CancerCare @RueschCenter @uc_health @OSUWexMed @CRCequity @CatchItInTime @CCAlliance @HitBelowtheBelt @BlueHats4colons @paltown1 @Alive_And_Kickn @ColonCancerCoal @UOAA @ColonCancerPrev @TheRaymondOrg @GICAlliance @to_up39060 @CCAREfightlynch @JRushFoundation @cacoloncancer @onecancerplace

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Fight Colorectal Cancer
Fight Colorectal Cancer@FightCRC·
We are proud to announce that the #FightCRC Genetics and Family History Advisory Council is leading an initiative, alongside nearly 150 patient advocacy organizations, medical societies, and medical professionals, to submit an application to the International Classification of Diseases (ICD-10) Coordination and Maintenance Committee to create a code specifically for #LynchSyndrome. Learn more! fightcolorectalcancer.org/blog/genetics-… @AmericanCancer @GeneticCouns @CGAIGC @ASGEendoscopy @WVUCancer @blackingastro @NCCN @AmCollegeGastro @CancerCare @RueschCenter @uc_health @OSUWexMed @CRCequity @CatchItInTime @CCAlliance @HitBelowtheBelt @BlueHats4colons @paltown1 @Alive_And_Kickn @ColonCancerCoal @UOAA @ColonCancerPrev @TheRaymondOrg @GICAlliance @to_up39060 @CCAREfightlynch @JRushFoundation @cacoloncancer @onecancerplace
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Heather Hampel
Heather Hampel@HHampel1·
For #LynchSyndromeAwarenessDay this is your reminder that: 💠 Lynch syndrome is common (1:279 individuals) 💠 Lynch syndrome is actionable (increased surveillance/prevention options lead to better outcomes) 💠 Lynch syndrome is underdiagnosed (most people are not aware that they have it) #ColorectalCancerAwarenessMonth
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lynch syndrome irl @lsireland.bsky.social
lynch syndrome irl @lsireland.bsky.social@Lynchsyndromirl·
Best wishes to @LynchSyndromeUK for their annual patient conference today, bringing together experts and #LynchSyndrome families to share knowledge and learn the latest in research. Such events take a lot of work and are of huge importance to our community. Well done all 👏
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Keşfet

@uicc @cspramesh @PMOIndia @WHO @curekidstroke @moyamoyafdn @anoushkaduaMD @uciphysicians