Can inaccurate TV portrayals actually delay diagnosis? Our community’s story just hit national news. @FastCompany published a major piece on @NBC's portrayal of #narcolepsy in #Stumble: fastcompany.com/91446176/stumb…
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Project Sleep
4.8K posts
Project Sleep
@project_sleep
Let's make sleep cool! 501(c)(3) non-profit raising awareness about sleep health, sleep equity & sleep disorders. ☎️ Reach out to our free Sleep Helpline™
Los Angeles, CA Katılım Şubat 2014
2.8K Takip Edilen7.2K Takipçiler
9 signers away from reaching our goal of 2000! Please take a second to sign our petition, it’s only the second time in 15 years I’ve felt a situation needed this tactic. Join us because stories matter. Accuracy matters. Thank you for sharing! c.org/NcZ5Lwwwps
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What if your medical condition was the punchline? 📣Today, #narcolepsy advocate & writer Lindsay Scola shares in a Los Angeles Times @latimes Letter to the Editor regarding #Stumble @nbc review: latimes.com/opinion/letter…
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Project Sleep retweetledi
Attention to all #SleepPeeps
Project Sleep@project_sleep
Mockumentary mocks disability community? Last night, #Stumble premiered on NBC & Peacock with a prominent, inaccurate portrayal of #narcolepsy. URGENT: please sign our petition asking NBC to reduce misunderstanding instead of reinforcing tired stereotypes: c.org/P64B9D55H6
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Project Sleep retweetledi
Can we reach 1000 signers in 48 hours? Please sign this petition to show Hollywood that the #narcolepsy community is strong and deeply concerned about inaccurate portrayals of this serious neurological condition. Thank you for your support.
SIGN AND SHARE: c.org/P64B9D55H6
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Mockumentary mocks disability community? Last night, #Stumble premiered on NBC & Peacock with a prominent, inaccurate portrayal of #narcolepsy. URGENT: please sign our petition asking NBC to reduce misunderstanding instead of reinforcing tired stereotypes: c.org/P64B9D55H6
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September 22, 2025, marks the 7th annual #WorldNarcolepsyDay, a day dedicated to raising awareness about narcolepsy on a global scale.
🏅 Today, we honor the incredible #narcolepsy community. Learn more: project-sleep.com/world-narcolep…
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Project Sleep retweetledi
Today, on #WorldNarcolepsyDay, Centessa is proud to stand with patients, families, and advocates to raise awareness and advance innovation for the 3 million people living with narcolepsy worldwide.
Learn more or find ways to show your support here: project-sleep.com/world-narcolep…
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Thank you for sharing your experience, Lauryn. You are an amazing person, community leaders, speaker, and advocate. We are so grateful to have you in our world.
Lauryn Craine-Bhavnani@wishkhh
HAPPY #WorldNarcolepsyDay ! 🥳 I'm diagnosed with sleepy bitch disease, Idiopathic Hypersomnia! It causes me to sleep around 10+ hours daily. Combined with sleep inertia, memory issues, etc. it makes for a fun condition 😂😭 #sleep #SleepPeeps #hypersomnia #sleepdisorders
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This is amazing, thank you for all you do for people with #narcolepsy and this community, @NarcolepsyNtwrk!! #WorldNarcolepsyDay
Narcolepsy Network@NarcolepsyNtwrk
🌍🖤 On #WorldNarcolepsyDay, we’re thrilled to share another piece of our Virtual Quilt Project! Quilts are a way to weave together collective experiences. This virtual version continues our in-person tradition, where attendees create quilt squares sharing a thought or image.
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Thank you for supporting your daughter and your sister's experiences with #narcolepsy. Supporters like you mean the WORLD to us! #WorldNarcolepsyDay
Jane Waldrop@janewaldrop
Happy #worldnarcolepsyday everyone! My daughter & my sister both live with Narcolepsy with Cataplexy. Organizations like @project_sleep are helping raise awareness for this debilitating sleep disorder. Learn more on their website or reach out to me!
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Thank you for your incredible support!! We are so grateful for the Harmony DREAM TEAM!
Harmony Biosciences@HarmonyBio
Each year on #WorldNarcolepsyDay, our team supports the international #narcolepsy community in inspiring action, increasing public knowledge, and elevating the voices of the 3 million people living with this #raredisease worldwide. This year, we celebrated the narcolepsy community by wearing @project_sleep World Narcolepsy Day t-shirts! Learn more about our commitment to Sleep/Wake disorders here: bit.ly/428O0SS #WorldNarcolepsyDay #NarcolepsyAwareness #SleepDisorders #SleepDisorder #RareDiseases #EmpathyAndInnovation #PatientAdvocacy
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Happy #WorldNarcolepsyDay today 9/22! We are so grateful for an amazing community of people living with #narcolepsy, supporters, scientists, doctors, and industry partners—we can break down barriers together! Get involved: project-sleep.com/world-narcolep…
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Reflecting on an amazing #WorldSleep2025 in Singapore! 🌏 Over 4,000 researchers & clinicians gathered — and we were thrilled to share patient voices + witness historic #narcolepsy orexin agonist trial results from @TakedaPharma & @Alkermes. The future of sleep is bright!💙
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Project Sleep retweetledi
🌍 World Narcolepsy Day is one week away! Find out how you can get involved with @project_sleep to create positive change for those affected by #narcolepsy.
#WorldNarcolepsyDay
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Project Sleep retweetledi
🌍 World Narcolepsy Day is one month away. Find out how you can get involved with @project_sleep and help make a difference for those impacted by the condition! #WorldNarcolepsyDay
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Project Sleep retweetledi
🇸🇬 Singapore!! #WorldSleep2025 @worldsleepsociety kicked off Saturday. Grateful to share my OG #narcolepsy presentation during a fantastic course and to represent @project_sleep. See our involvement: project-sleep.com/world-sleep-20…
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Project Sleep retweetledi
Beyond honored to present at #sleep2025 about brain fog and cognitive issues in people with #narcolepsy and #idiopathichypersomnia! Thank you Dr. Kiran Maski for the opportunity to! Thank you @AASMorg & @ResearchSleep for including patient voices and patient advocacy orgs!
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Project Sleep retweetledi
In newly presented findings from a phase 2 trial, treatment with TAK-861 led to significant reductions in microsleep rates and delayed the first occurrence of microsleep in patients with narcolepsy type 1. @TakedaPharma #SLEEP2025 @AASMorg
Read More: hubs.li/Q03ry1NP0
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Project Sleep retweetledi
Findings from a study newly presented at #SLEEP2025 showed that restless legs syndrome was a common condition during pregnancy in women, affecting more than one-fourth of available patients. @AASMorg
READ MORE: hubs.li/Q03rybxj0
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