Rett UK

The DCP response following the publication of ‘Solving the SEND Crisis’ by the @CommonsEd

The @DCPCampaign and @letuslearntoo event in Parliament takes place on Monday. This is your last chance to invite your MP. Have your voice heard. bit.ly/FFOSEPTMP #FightForOrdinary

Calling all Speech and Language Therapists 📢 We Need Your Help!! Take part in our research project focusing on Communication Support for People with Rett Syndrome in the UK! Complete our survey here: 🔗 redcap.link/5mpdfxgj #RettUK #RettSyndrome

Calling all parents/carers of children or adults with Rett syndrome 📢 We Need Your Help!! Take part in our research project focusing on Communication Support for People with Rett Syndrome in the UK! Complete our survey here: 🔗 redcap.link/zjr6lwr3 #RettUK #RettSyndrome

Missed the last post to send Christmas cards? 🎄 Fear not, you can still send Christmas eCards to friends and family and donate what you would have spent on cards and stamps to Rett UK 🥳 🔗 dontsendmeacard.com/ecards/chariti… #RettUK #DontSendMeACard #Christmas2024

Margot is 6, has Rett syndrome, and has just finished this amazing work inspired by @SteveBackshall and Deadly 60 on @cbbc. More info on how she achieved this in the comments. @RettUK

What's Happening @RettUK This Week? It's time to take a look at what we've got happening this week 🗓️ Find all the links here: 🔗linktr.ee/rettuk #RettUK #RettSyndrome #CommunicationPartnerDropIn

🚨Your chance to run, jog or walk for @RettUK at the biggest half marathon in the world 🚨 Sign-up now to join #TeamRett in the 2024 @Great_Run! 🔗rettuk.org/gnr #GreatNorthRun #GNR2024 #runners #RettSyndrome #Run4Rett #marathon #run

What's Happening @RettUK This Week? It's time to take a look at the different events coming up this week 🗓️ Find all the links here: 🔗 linktr.ee/rettuk #RettUK #RettSyndrome #CommunicationPartnerTraining #CommunicationPartnerDropIn #BeerandBanter #OnlinePeerSession

💜 The 9th #RettWorldCongress is taking place on the #GoldCoast #Australia this October 💜 With talks from world-renowned experts on all aspects of #RettSyndrome! A chance to meet families from around the world! Learn more and register for a place here: 🔗 rettworldcongress.org

Lysbeth (9), lives with Rett syndrome, a rare genetic disorder which causes physical and communication difficulties. She loves twinkling lights and rustling noises ✨ We granted her wish ‘to have sensory equipment’ so she can feel relaxed while enjoying her favourite things 💙

@Toryscott 💕 sending our love

My warrior of a sister, Clare, is very poorly and in hospital again with what doctors think is a rapid onset respiratory infection. Please send prayers or good thoughts, whichever suits. Here she is in happier times. #rettsyndrome #disability

What's Happening @RettUK This Week? It's time to take a look at the different events coming up this week 🗓️ Find all the links here: 🔗 linktr.ee/rettuk #RettUK #RettSyndrome #CommunicationParterDropInClinic #OutandAboutGroups #PeerSessions

Do you support the call for a new #NationalCarersStrategy? 📢 The #APPG on Carers has launched a survey to gather views from unpaid carers and organisations who represent them on what a future strategy should aim to achieve. Click here to have your say 🔗 surveymonkey.com/r/5SX9K7K

🌟 Today, we stand together for Rare Disease Day, shining a light on Rett Syndrome! 💜💚 Let's raise awareness and support for those living with this rare neurological disorder. Together, we can make a difference! 💫 #RareDiseaseDay #RettSyndromeAwareness #RettUK #RettSyndrome

Join @RettUK's #FamilyWeekend2024 by completing this #ExpressionofInterest Form Now! 🚨 Please note, spaces are limited so be sure to complete this form ASAP 🚨 Find out more and sign-up here: 🔗 rettuk.org/fwbooking #RettUK #RettSyndrome #FamilyWeekend #RettUKFamilyWeekend

Support @RettUK & sign up for the virtual @LondonMarathon on Sunday 21 April (00:00-23:59:59 BST) 🥳 No matter where you are in the world, you can run, jog or walk the 26.2 miles MyWay 🌍 Deadline Friday 2nd February 12:00 noon, so email us at info@rettuk.org now 🚨 #TeamRett

What's Happening @RettUK This Week? It's time to take a look at the different events coming up this week 🗓️ Find all the links here 🔗 linktr.ee/rettuk #RettUK #RettSyndrome #CommunicationParterDropInClinic #BeerandBanter #CommunicationParterTraining

How to be an Effective Communication Partner: Online Training Sessions 👥💬 Saturday 20th January AND Saturday 3rd February; 09:00 - 13:00 - On Zoom (link sent via email) Registration closes at 17:00 on Tuesday 16th January 🚨 🔗 forms.office.com/e/Vi10a1DR3U #RettUK #RettSyndrome

@RettUK's Brand New Online Communication Training Course "Introduction to Communication" is Now Live 📢 A course aimed at teaching you about communication and supporting people with #RettSyndrome to communicate 💜💚 Access the course here: rettuk.org/courses/introd… #RettUK