
Jamie
58 posts

Jamie
@robot_hands
Full-time software engineer, father to a young son and living with #Stage4 #ALKPositive #lungcancer. Also Trustee, @ALKpositiveINT. Believe #ResearchSavesLives




The past decade has been transformative for #lungcancer. The discovery of mutation-driven lung cancers like ALK+ have led to the creation of targeted therapies and created more longer-term lung cancer survivors. It's why @DrRiyazShah, believes #MoreResearchMoreLife. #LCAM

As a healthy, working mum, Yvonne was shocked when a cough led to a stage 4 #ALKPositive #lungcancer diagnosis last Sept. @Yvonne_diaz_'s oral med is inhibiting her cancer. With more research, we can keep it this way. 👉donate.kindlink.com/ALK-Internatio… #MoreResearchMoreLife #LCAM #LCSM





November is #LungCancerAwarenessMonth. We believe more research equals more life. Lung cancer #medical, #oncologist, #researcher & #patient community: What are the biggest #research priorities for #ALKPositive #lungcancer? #MoreResearchMoreLife #LCAM #MedTwitter #LCSM



A #cancer diagnosis often makes you grateful for every day. But some days are more meaningful. We are grateful for the commitment, sacrifice & heart of our trustee Jamie's brother Andy. He ran @LondonMarathon, his 1st ever, in just over 4 hours, & raised over £4k for us. 🧵 1/2



It's #ChildhoodCancerAwarenessMonth & we're grateful for #MedicalResearch for giving us treatment options for some #ALKPositive pediatric cancers. For example, a 3 year old boy whose ALK+ glioma is treated with ALK+ #cancer inhibitor Lorlatinib #article_citing_articles" target="_blank" rel="nofollow noopener">nejm.org/doi/full/10.10…
#CCAM

Today marks #ChildhoodCancerAwarenessMonth. While #ALKPositive cancer occurs in #lungcancer, it's also found in childhood #glioblastoma #neuroblastoma #ALCL & more. #Research is key for people like Kira w Replapsing ALK neuroblastoma – diagnosed at 11.👉🏽alkinternational.org/alk-stories/ki…

In our survey released at @IASLC #WCLC we found that 91% of #ALKPositive #cancer patients prioritise #research funding over patient support & awareness campaigns. All funds we raise go to #MedicalResearch. Please help us further ALK+ cancer research. alkinternational.org/fundraising

Save the date: On August 24th at 4pm CET, @@LungCancerEu is holding a dialogue on what are the information needs on biomarker testing. Register in advance to secure your spot here: bit.ly/3PflZQ8 #LCSM

Kira is a typical teen but has an atypical problem: Relapsing #ALKPositive #Neuroblastoma. In her 8 years since diagnosis at 11, she’s had a lot of gruelling treatments and travelled widely for care. Read her remarkable story at alkinternational.org/alk-stories/ki…. #ResearchSavesLives

ALK+ International Trustee Jan Clark spoke w/ @CalumAM @Timesradio about the "game-changing" role #BiomarkerTesting played in her daughter Amy's #ALKPositive #lungcancer diagnosis. Jan (@janclarkgirls) speaks at 1hr 42mins. #BiomarkersMatter @ICR_London thetimes.co.uk/radio/show/202…

We are pleased to announce the launch of our charity @IASLC #WCLC22. We are focused on increasing the life expectancy of #ALKPositive #cancer patients by funding and advocating for #MedicalResearch. We believe #ResearchSavesLives alkinternational.org/news/launch-re… #lcsm #lungcancer