Jamie

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Jamie

Jamie

@robot_hands

Full-time software engineer, father to a young son and living with #Stage4 #ALKPositive #lungcancer. Also Trustee, @ALKpositiveINT. Believe #ResearchSavesLives

Katılım Nisan 2011
62 Takip Edilen57 Takipçiler
Jamie retweetledi
ALK+ International
ALK+ International@ALKpositiveINT·
As we come to the end of #LCAM we would like to thank each and everyone one of you, for your generosity, your support, and your friendship. Without you there is no hope, it is our togetherness that makes us a team.
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Jamie
Jamie@robot_hands·
Patients need more treatments in clinic and oncologists need clear information on optimal treatment pathways. More research can answer these questions and will lead to better outcomes #LCAM #MoreResearchMoreLife
ALK+ International@ALKpositiveINT

The past decade has been transformative for #lungcancer. The discovery of mutation-driven lung cancers like ALK+ have led to the creation of targeted therapies and created more longer-term lung cancer survivors. It's why @DrRiyazShah, believes #MoreResearchMoreLife. #LCAM

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Jamie retweetledi
Yvonne Diaz
Yvonne Diaz@Yvonne_Diaz_·
#LungCancerAwarenessMonth starts tomorrow. Many of us w/ ALK #lungcancer silently thank the medical & research community who work hard to develop better ways to treat #lungcancer. To reap the benefits of science, we need more research. Great poll 👇 #MoreResearchMoreLife #LCAM
ALK+ International@ALKpositiveINT

November is #LungCancerAwarenessMonth. We believe more research equals more life. Lung cancer #medical, #oncologist, #researcher & #patient community: What are the biggest #research priorities for #ALKPositive #lungcancer? #MoreResearchMoreLife #LCAM #MedTwitter #LCSM

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Jamie
Jamie@robot_hands·
So proud and lucky to have a great big brother! A lot of money raised towards research and he looked great doing it! ♥️
ALK+ International@ALKpositiveINT

A #cancer diagnosis often makes you grateful for every day. But some days are more meaningful. We are grateful for the commitment, sacrifice & heart of our trustee Jamie's brother Andy. He ran @LondonMarathon, his 1st ever, in just over 4 hours, & raised over £4k for us. 🧵 1/2

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Jamie
Jamie@robot_hands·
It is very likely that these ALK-positive pediatric cancers will also benefit from future developments. We need to keep urgently driving towards them
ALK+ International@ALKpositiveINT

It's #ChildhoodCancerAwarenessMonth & we're grateful for #MedicalResearch for giving us treatment options for some #ALKPositive pediatric cancers. For example, a 3 year old boy whose ALK+ glioma is treated with ALK+ #cancer inhibitor Lorlatinib #article_citing_articles" target="_blank" rel="nofollow noopener">nejm.org/doi/full/10.10… #CCAM

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Jamie
Jamie@robot_hands·
As a charity, the most critical thing is to align your mission with those you serve. This response is evidence that our objectives truly are in line with what the ALK community wants.
ALK+ International@ALKpositiveINT

In our survey released at @IASLC #WCLC we found that 91% of #ALKPositive #cancer patients prioritise #research funding over patient support & awareness campaigns. All funds we raise go to #MedicalResearch. Please help us further ALK+ cancer research. alkinternational.org/fundraising

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Jamie
Jamie@robot_hands·
Another reason why we do what we do. Yes lung cancer is underfunded, but other ALK cancers also benefit hugely from ALK specific treatments and therefore ALK+ research. It is not a periphery benefit for us, it is a choice. Treat the biomarker, not the organ. #ResearchSavesLives
ALK+ International@ALKpositiveINT

Kira is a typical teen but has an atypical problem: Relapsing #ALKPositive #Neuroblastoma. In her 8 years since diagnosis at 11, she’s had a lot of gruelling treatments and travelled widely for care. Read her remarkable story at alkinternational.org/alk-stories/ki…. #ResearchSavesLives

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