samira chandani

@BeverleyPomeroy @CIHR_IRSC Great idea, Count me in

Super disappointed in @CIHR_IRSC I’d say ‘know ur audience’ but looking at the likes and comments it’s obvious we have a long way to go before #patientorientedresearch #patientpartnerships culture shifts. Any one up to opening our own research institute led by pts 4 pts? 🤞

Vivid language from @HarlanPruden today at #PPF23 “ your budget is a statement of value“ (patient reviewers can use this to evaluate patient engagement in research grants) “All knowledge is relational” “Capacity bridging” “My (Harlan’s)knowledge system is pushing back”

Still puzzled by #LHS (Learning Health Systems)? @LLi_1 gives us key LHS Enablers and then 3 critical components. #PPF23

On #WorldMentalHealthDay, let’s celebrate life care as a journey. Let’s prioritize well-being, embrace self-care, & reach out to others with kindness. Together, we can work with purpose to nurture people and communities. #HopeAndHappiness #PeopleEverything #LifeCare

@EddyNason @DrCathyCraven @PiPER_UHN @CocowithaK Attended #PiPER2023 where the toolkit was presented

Very grateful to the many people with lived experience who contributed to the development of our PER toolkit! Your voice and advocacy are truly appreciated! @piper_uhn #PiPER2023

Consider how this sets the tone and reinforces a power differential from the start. Think about how you can change the approach to these intro’s where everyone shares something personal (in a safe way) outside of their work expertise. 2/2 #PIPER2023

Do you ever think about how intro’s happen at a first meeting of research teams that include #PatientPartners? Consider how the academic folks list their credentials and accomplishments while patients may disclose health and disability status, etc. 1/2 #PIPER2023

Community Engagement in Research: An Updated Systematic Review of Quantitative Engagement Measurement Scales for Health Studies - Barbara Gordon, Kristin M. Van De Griend, Victoria L. Scharp, Hannah Ellis, Mary A. Nies, 2023 journals.sagepub.com/doi/10.1177/01…

@anetto - "Co-leadership is a possibility. We are trailblazers!" #OSSUResearchDay2023

Thank you @LindaaWilhelm 👏What an informative and powerful patient story on how patient partners can help researchers focus on what's most important to patients. Learn more about: #PatientOrientedResearch mssu.ca/event/patient-… #LivedExperienceMatters

@LLi_1 Equal partnership

This is how it looks like when patients are engaged as equal partners in research 👇#OSSUResearchDay2023

"Patients as virtue". Excellent presentation an by @sugrabai and @anetto at #OSSUResearchDay2023 on their experiences as Co-Leads on a patient-led scoping review. @SPORAlliance @hledelstein @KT_trainee @totamend

@RochonPaula suggest we think about the hundreds of thousand of pills 💊 that are being split in #LTC due to side effects of common dosages, which can be related to age and gender. #OSSUResearchDay2023

@LLi_1 Great partnership!

@sugrabai on "Lens" and "Negotiation" - "We taught the trainees on the research team how to partner with patients, and we learned how to use the software to manage thousands of papers. It was a mutual learning experience!" #OSSUResearchDay2023

Language is often forgotten when thinking about social determinants of health - @PTanuseputro speaking at #OSSUResearchDay2023

What is being counted in data, who is responsible for identifying the data that is missing and what is that missing data? How to prioritize & engage patients simultaneously/in parallel to provide #patientoriented care and improve policy. #OSSUResearchDay2023

#OSSUResearchDay2023 @wwodchis asks how to address and include communities to a better extent to/for impact #patientorientedresearch. Recruitment important, including from the beginning crucial. Diversity in advisory groups. Connections with community organizations important.

Divya Mathura on #trust as #patientpartners with Indigenous and First Nation communities. Need to mitigate trauma: listening, learning about culture and traditions, and respecting knowledge systems. Broadening communication & skills to partner for impact. #OSSUResearchDay2023

@SPORAlliance #patientorientedresearch is trailblazing and more can happen to create impact for #health #healthcare #healthresearch #healthservices #OSSUResearchDay2023

In a slide from 2022, a look at the Learning Health System as a wobbly stool. A larger and more defined role for patients is needed to balance #LHS #OSSUResearchDay2023. ⁦Maureen Smith credit⁩