Jo Hunt (activism, also @JoElizaHunt for papers)

Sharing my new paper on #longCovid, #MECFS, welfare reform politics and the risk of history repeating itself. Situates the PACE trial, psych lobbying of the state ref ME etc. in its wider (bio)political context. #disability #benefits

However safe this space feels for #pwME & LC for many reasons some will always feel far more comfortable not sharing the specifics of what theyre going through & the degree to which they're suffering here in a public space Thinking of those all suffering who are quiet & private

A few peeps asked if I could unpack some of my academic papers on disability-affirmative psychotherapy as an emotional support for ppl who choose it … … I’ve sought to do so in this blogpost, with focus on #MECFS healthcarehubris.com/post/psycholog…

@macharenga De nada 😊

@HealthHubris Gracias por tu esfuerzo, pacing

New series of blogposts looking at politics underpinning the #biopsychosocial model of #chronicillness & #disability, notably welfare reform & the interests of the academic-state-corporate nexus. #MECFS #longCovid #longhaulers healthcarehubris.com/post/structura…

@quasar9uk @DressFor_ME @ABrokenBattery Interesting … I know a fair few links that used to navigate to helpful webpages don’t work any more!

The aim of the 2001 'Malingering and illness deception meeting' (funded by the DWP) was to "work out how to frame chronically ill and disabled people as morally void scroungers and malingerers with no insight into their own health conditions" 1/2

@quasar9uk No worries at all! 😊 I’ve managed to publish a fair few peer reviewed papers on these injustices now as well as blogposts, I was hoping the papers might encourage some people to stop pretending like this isn’t happening … one of the latest is here: journals.sagepub.com/doi/10.1177/02…

The #MECFS Research Roadmap Report has been published. It is a a cross-sectional, multidisciplinary discussion of current ME/CFS research, organized by the @NIH. ninds.nih.gov/sites/default/…

Last night we had a brilliant @FestOfDebate @citizen_network on hosted by @SHU_AWRC What is Health? Jack Czauderna (my hero) explained what the Peckham Experiment can teach us about the link between community and health. @EmmaLatimer3

How could the same facility that rushes people to the ER to save their lives actively kill someone just down the hall?  This is beyond psychologizing physical illness, it seems like these medical staff do not see the humanity in Severe ME/CFS patients; As if we are so sick and decapacitated already that they see some version of the word "invalid" and death does not seem like a loss of human life to them.   1. Carla cannot drink enough water to stay alive nor tolerate an NG tube at home 2. Carla is stuck in NHS care with no other choice or options for care 3. NHS staff are not giving her access to fluids with the same procedure they do within minutes in the ER to non ME/CFS patients This is not simple neglect, this is not malpractice, this is manslaughter at best and murder at worst. #SaveCarlasLife #Dontletmedie #BringMillieHome @NHS @NHSuk @DHSCgovuk @CommonsHealth #mecfs #SevereMECFS #LongCovid #pwME

“Disability cuts: Work isn’t the pull Sunak thinks it is”. A response in @Freedom_Paper to recent welfare reform announcements & some context around the current world of work. Disabled people contribute - waged or not. Please RT #WorkIsntWorking freedomnews.org.uk/2024/05/10/dis…

#NoToAS Liz Carr documentary Better off Dead? Airs on BBC1 9pm Tomorrow Tuesday 14th May 2024 bbc.co.uk/programmes/m00…

Connecting people & connecting struggles. #SolidarityInAction

#FundDisabilitySupport #HandsOffWhaikaha Please show solidarity to disabled New Zealand activists as they ramp up resistance against the New Zealand Government against cuts to disability support We are totally with disabled allies in New Zealand RT dpac.uk.net/2024/05/464030/

It’s doggie booster day! My service dogs wear a PM2.5 valved masks inside their airflow muzzles. I have Common Variable Immune Deficiency, putting me at high risk of hospitalization and death from even minor infections.

@LongCovidAdvoc Thanks Claire, fab piece!

This has been in the stacks for a while, but with a few updates, it's ready to go. Explore with us the intersection of the brain retraining methods such as the Lightning Process, the Gupta Program and the Biopsychosocial model applied to ME and Long Cvd. open.substack.com/pub/longcovida…

When you get #MECFS you also typically suffer a catastrophic loss of trust in the healthcare system. The safety net you thought was there doesn't exist and you keep on falling and falling. #wato

@8Eevert @elle_carnitine @JoElizaHunt Thanks so much! 🙏🏻

@elle_carnitine @HealthHubris @JoElizaHunt >> I believe @HealthHubris / @JoElizaHunt might have exactly what you’re after. > All of the papers by @JoElizaHunt look absolutely amazing—thank you so so much for pointing me to them!! Wonderful! 😇🙏 For understanding structural & systemic injustices, I find them invaluable:

Does anyone have any sources/literature on critiques of hysteria, psychosomatic ideology, the idea of “functional” disorders? I’m looking for feminist critiques (these as tools of medical misogyny; a way of avoiding having to treat women) but not just. Any pointers appreciated!

@NickyProctor @Channel4News @GranadaReports @BBCNews @TheNewsAgents @BBCRadio4 Thanks so much!

@HealthHubris @Channel4News @GranadaReports @BBCNews @TheNewsAgents @BBCRadio4 Thanks 🤩 will have a look in a bit. So great to have your work out there!

Journalists reporting on #SickNoteSunak and all that garbage would do well to learn from this excellent piece by @HealthHubris and report on the fundamentals of what’s really going on here! @Channel4News @GranadaReports @BBCNews @TheNewsAgents @BBCRadio4