UK CFPG

Listen from 54:04 to hear Hannah, a parent of a child with CF, Amber, a student with CF, and our Director of Medical Affairs Dr Keith Brownlee talk about the difficulties many are having sourcing Creon on @bbc5live ➡️ ow.ly/pt4W50SaJAE #cysticfibrosis #cfnews #creon

So pleased to present the results of part 2 of the AtOM CF Study at @ECFSConference #ECFS2024 thanks to all the patients who took part from @CFLeeds and @cf_newcastle @NIHRresearch @MedicinesDavid @DrIanKellar @nikki_rou

Good to see representatives from @ukcfpg at the @cftrust MDT share and learn conference in Leeds today

Yes! Excellent @ukcfpg @UKCPAResp @CHS_Pharmacist @BryonyMiller1 @natashahudson_1 @NUHPharmacy

Thanks @cftrust for a great workshop on CF & ageing (and a yummy lunch!) Coming home with lots of new research ideas💡@NUH_CFUnit @NUHPharmacy @ukcfpg #RespIsBest

We will be commenting @ukcfpg as registered stakeholders, but encourage all group members to read and comment on the guidance

Happy World Pharmacists Day - especially to all of the wonderful pharmacists dedicated to providing the best possible care to people with CF (And ideally to making them smile sometimes)

Christian is a #pharmacist. He can do a #genetic test for children with cystic fibrosis. That test means he can prescribe antibiotics with confidence. It's another example of how #genomics is changing the way #pharmacists work. 🧬👉bit.ly/48tHIP5 #WorldPharmacistsDay

Great to see Rianna flying the flag for pharmacy technicians delivering research on CF

NEW publication!📢📢 Delighted that the first empirical study from my doctorate has been published in the Psychology & Health journal today (first 50 online copies free) @HealthPsyStaffs @NUH_CFUnit @DrJenTaylor246 @tandfpsychology #ProfDoc #Healthpsych 👉 tandfonline.com/doi/full/10.10…

CFTR modulators for ‘non-approved’ variants - a compassionate use programme in France…a huge need for a similar programme in the UK @NHSEngland @ukcfpg @cftrust

A refresh of the top 10 research priorities in cystic fibrosis | Thorax thorax.bmj.com/content/early/…

If anyone from the @ukcfpg group is struggling to access the NHS Networks message board on the previous website, please see the link to the new website on @NHSnetworks twitter feed. If you scroll down the page on their new website, it offers a link to the old website.

NEW EPISODE - Cystic Fibrosis A joyful story this week when we chat to Louise Jenkins - who has cystic fibrosis - about growing up and trying to lead a normal life with this serious and unforgiving condition and the transformative effects of recent innovations in drug therapy.

Two of our own and best authoring this

New job alert! Fantastic opportunity to join @NUH_CFUnit as Local @cfhealthhub Behaviour Change Lead in cystic fibrosis @NUH_CFUnit 👉 bit.ly/415rYhe Please DM me for more info!😃 @acpcf @divhealthpsych @ukcfpg @bda_cf @NUHTherapies @ResearchNuh @NUH_Respiratory @cftrust

Might be of interest @ukcfpg @ecfpg @UKCPAResp

Might be of interest @ukcfpg @UKCPAResp

Great to see this poster up at #BTSWinter2022: results of a national #CFHealthHub survey to understand the experiences of adults with #cysticfibrosis of obtaining repeat supplies of nebulised medicines. Well done @APaedPharmacist @sophie_doph @leaping_badger et al! @ukcfpg @acpcf

Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! @questionCF @ebChildHealth @CFAware @ThoraxBMJ @cftrust