UTP-PD - Oltrelamalattia

I’m attending the 12th European Conference on Rare Diseases and Orphan Products on 15 & 16 May 2024! It’s the largest, patient-led, rare disease policy-shaping event held in Europe, and it’s fully hybrid for the first time! Register now! #ECRD2024 invt.io/1txb7jbeejt

Vi presentiamo un riassunto del 5° webinar della European Pulmonary Fibrosis Federation con sottotitoli in italiano. L'argomento è: "Vivere con la fibrosi polmonare: come ottimizzare la salute e il benessere mentale".

Si terrà oggi alle ore 19 un webinar sul tema molto importante della tosse cronica di cui soffre circa l'85% dei pazienti con fibrosi polmonare. Iscriviti subito cliccando qui us06web.zoom.us/webinar/regist… Il webinar sarà sottotitolato in italiano.

🌟 Researchers & professionals in donor management, it’s your time to share your experience at the International DCD Congress & Consensus in Bucharest, Oct 10-12, 2024! 🌍 Submit your abstract by May 13 #ESOTeducation @ESOTtransplant #PoweredByESOT

The next @EU_IPFF webinar takes place this Thursday, 9th May at 7pm CET (6pm BST) - talking #cough in #pulmonaryfibrosis - with Prof. Surinder Birring of Kings College, London - open to all - see eu-pff.org for registration

Today is #WorldPHDay2024! 🌍🎗️ Let's raise awareness together as this can lead to an earlier PH diagnosis. Early detection, seeking medical help & receiving a proper diagnosis early are essential for better outcomes. Spread the word & save lives! #WeBreatheUnited #WPHD

Breathing Easy Workshop: Understanding Your Lungs: Join @dudditz67, member of our board, Dr Simon Hart and Elisabetta Balestro, for a hands-on workshop to understand your #lungs and how #PulmonaryFibrosis begins, how the organ is affected and how the disease develops. #PFSUMMIT24

“Support to patients” session at #PFPatientSummit

The 3rd European #PulmonaryFibrosis Patient Summit is getting closer! If you still have any questions, visit eu-pff.org/pfsummit24/ or contact our team at pfpatientsummit@eu-pff.org! We look forward to seeing you - whether on site in Castelldefels or virtually via Swapcard!

As international attendees begin their long journeys to the @EU_IPFF #PFSUMMIT24, I wish safe travels to all those joining us for three days focussed on #pulmonaryfibrosis

@lorenzozaffiri It’s a very interesting topic. Very often it is difficult to explain to slightly older patients why they cannot have access to transplantation.

Ci uniamo alla nostra federazione europea @EU_IPFF nel celebrare la giornata internazionale delle malattie rare, auspicando che anche per la #fibrosipolmonare arrivi presto un trattamento definitivo. #rarediseaseday

Chi riuscirà ad individuare la mia testa, riceverà un grosso premio 😊

With a focus on lung transplantation, #ILDs & others, Katarzyna Lewandowska works as a pulmonologist at the Institute of Tuberculosis & Lung Diseases Warsaw in the Department of Pulmonary Diseases. Thanks for sharing your knowledge with the EU-PFF SAB, Katarzyna! #MeetTheTeam

MEP Lung Health Group event 📢#KeepBreathing: A vision for EU action on lung health 2024-2029 🫁 How to improve #lunghealth in Europe? Join @EuroLungHealth online and become part of the discussion about EU action on lung health. 📅21 Feb - Register ➡️ bit.ly/3SFKgDP

Dear PF Community,  yesterday’s webinar on "Living with #LungFibrosis: Optimising #MentalHealth & Wellbeing" with Prof Brendan Kelly, @flewett & @IPFthurles is now available as a recording. You can find the webinar along with all previous sessions here: eu-pff.org/eu-pff-summit-…

The first ever report of a robotically-assisted #lungtransplant from the surgeons @CedarsSinai, demonstrating the powerful potential of this technology in our patients #transplant @DEmersonMD 🔗 jhltonline.org/article/S1053-…

#TBT to this week's featured top downloaded paper from 2022: Risk of Breakthrough SARS-CoV-2 Infections in Adult Transplant Recipients #TransplantTwitter tinyurl.com/mv2scfyh