Alanna | Where Are My Pillows

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Alanna | Where Are My Pillows

Alanna | Where Are My Pillows

@wampillows

🇨🇦🇺🇸 autoimmune encephalitis survivor 🧠 rare disease patient advocate

Katılım Haziran 2016
946 Takip Edilen783 Takipçiler
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Alanna | Where Are My Pillows
Alanna | Where Are My Pillows@wampillows·
Ummm guys I went from: 👉losing >2σ IQ pts 👉losing my seat as a student in the Faculty of Med&Dent 👉losing 5yrs to untreated #autoimmuneencephalitis To recovering my🧠and being invited to speak on a panel for one of the top journals in the 🌎. I can die happy now kthxbye ☺️
Science Magazine@ScienceMagazine

Join #ScienceWebinars for their last #ScienceAndLife webinar of the year on #RareDiseases: The profoundly personal side of rare disease: Humanizing the therapeutic journey of patients On Thursday, 10 November, 12 p.m. ET Register today at scim.ag/r0 #Webinar

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Alanna | Where Are My Pillows
Alanna | Where Are My Pillows@wampillows·
The long-term outcomes of my N=1 #autoimmuneencephalitis experience… now translating into patient-centered research initiatives with @thesumairafoundation! 🧠🥼🌺 #neurotwitter #neurox #neurology #neuroimmynology #meded #nmosd #mogad
The Sumaira Foundation@TheSumairaFDN

🧠🇨🇦 After battling autoimmune encephalitis / #AE, Alanna transformed her journey into advocacy. From patient to research partner - her story inspires change. Read more: sumairafoundation.org/alannas-ae-sto…

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The Sumaira Foundation
The Sumaira Foundation@TheSumairaFDN·
🧠❤️February 22nd is World Encephalitis Day, a day observed every year to raise global awareness about encephalitis, a serious condition involving inflammation of the brain. #RED4WED
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The Sumaira Foundation
The Sumaira Foundation@TheSumairaFDN·
🇨🇦 T-5 days until Toronto Patient Day for Rare Neuroinflammatory Disorders! Meet our featured patient panelists. If you’re impacted by AE, MG, MOGAD or NMOSD and are from Canada, join us for a day of education, connection and impact! To register, visit tinyurl.com/TSFToronto
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Alanna | Where Are My Pillows
Alanna | Where Are My Pillows@wampillows·
🇨🇦Canadian neuroimmune patients, advocates, and other community members: join us in Toronto on Saturday, November 8 for a day of education, connection, and fun! Registration now open 🙌tinyurl.com/TSFToronto 🧠 #autoimmuneencephalitis #myastheniagravis #nmosd #mogad
The Sumaira Foundation@TheSumairaFDN

🇨🇦 We're coming to Toronto! Are you an #AE, #MG, #MOGAD or #NMOSD patient, partner, care-partner, clinician, nurse, researcher and/or advocate in Canada? You're invited to our event on Saturday, November 8th tinyurl.com/TSFToronto

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CORD
CORD@raredisorders·
Policymakers need real data to make informed decisions about rare disease policy in Canada. That’s where YOU come in. If you’re living with a rare disease or caring for someone who is, your experience is crucial. Take the survey 👉 tinyurl.com/yjhka5dt
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The Sumaira Foundation
The Sumaira Foundation@TheSumairaFDN·
We’re excited to launch “Side-by-Side,” an educational series that explores the power of shared decision-making (SDM) and aims to educate our audience on how to achieve it. Check out the videos, checklist and other helpful tools here: sumairafoundation.org/side-by-side-y….
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The Sumaira Foundation
The Sumaira Foundation@TheSumairaFDN·
Featured in the Spring 2025 issue of Hypothesis Magazine: TSF’s Director of Research & Education Initiatives, Alanna Yee. Read the full article for an inside look at how patient leadership is shaping the future of rare disease care: hypothesismag.com/wp-content/upl…
The Sumaira Foundation tweet mediaThe Sumaira Foundation tweet media
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The Sumaira Foundation
The Sumaira Foundation@TheSumairaFDN·
🇨🇦 BIG news: @YourAlberta has officially declared February 22nd as World Encephalitis Day, March as #NMOSD Awareness Month & April as #MOGAD Awareness Month!☺️ Special thanks to Alanna, TSF Director of Research & Education & Ambassador of Canada, for making this happen ❤️🩷💙
The Sumaira Foundation tweet mediaThe Sumaira Foundation tweet mediaThe Sumaira Foundation tweet media
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blue
blue@bluewmist·
Make two people proud: Your 8-year-old self and your 80-year-old self
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Marie Abrego
Marie Abrego@nmo_marie·
Today I went to the university of New Mexico to educate the community on rare diseases, I even caught the attention of the universities president Garnett Stokes. let’s together continue raising our voices for rare diseases.🩷🧡💛🦓 #RareDiseaseDay2025.# #TheSumairaFoundation.
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InTheMoney
InTheMoney@InTheMoneyAdam·
After some major strings were pulled, I was rolled into the OR and am recovering well. My loving bro flew 8 hours to make sure everything went through and supported me in the days following. So much support from others I don’t even know kept me from rupturing. I’m very grateful for some key players, and for all of you who have never scrolled past without leaving a touching comment. Thank you.
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Catherine Stratton, MPH
Catherine Stratton, MPH@cathsmstratton·
It’s #RareDiseaseDay! With ~1 in 12 affected, RDs represent a significant healthcare burden. The RD diagnostic odyssey is a call for improved RD awareness. The fact that still, only 5% of RDs have a therapy is a sobering reminder of the work we have to do. #RareDiseaseIsNotRare
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Alanna | Where Are My Pillows
Alanna | Where Are My Pillows@wampillows·
10 years post-encephalitis onset, 5 years post-diagnosis, 2 years post-remission… and now, I can also say I stuck it out long enough for a part of me to make it into @MayoClinic’s MS/autoimmune neurology biorepository🤓✈️🩸👩‍🔬🧪 🌎Happy #WorldEncephalitisDay 🧠 #Red4WED 🌉 #YEG
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Isabel🌻
Isabel🌻@isabelunraveled·
so much of life is just about handling chaos elegantly
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Keşfet

@nmo_marie @TheSumairaFDN @YourAlberta @patientvoiceca @InTheMoneyAdam @elonmusk @BarackObama @taylorswift13