Ziad Minkara

I wish I could wake up from this nightmare of #ALS & be the person I was meant to be. I miss feeling alive, vibrant, and helping people. I miss being the dad my kids deserve, the husband I once was, the man who I truly am. It has all been ripped away, gone! #findcure#FuckALS

FDA approval can take 10+ years — but patients with life-threatening, rapidly-progressing diseases like Alzheimer's and ALS can't wait that long. @braun4indiana and I will introduce a bill to speed up provisional FDA approval of promising drugs for patients with few options left.

I have decided that my free trial of #ALS is not working out for me. I would like to return it. Very dissatisfied and would not recommend. #fuckals

Tennessee expels the two Black guys and keeps the white lady?

Last spring, thousands of you honored yourself and/or your loved ones by placing commemorative flags on the National Mall in Washington, DC. If you would like to have your or your loved one's name on a flag at this year's demonstration, fill out this form. iamals.org/action/2023fla…

If you feel like you're tired of fighting for what's right in Florida, meet Grace Linn.

Today's decision to advance #TOFERSEN was huge for #ALS. It also means denying #NurOwnworks' approval is now inconceivable in a just system. A "failed" Ph3 trial, (more) risk, a totality of evidence, and (essentially) a validated biomarker all became acceptable for #ALS hope- FINALLY!

NYT reports on abductions of Ukrainian kids: “Soon after seizing the city, Russian forces worked with local collaborators to compile lists of children in hospitals, orphanages and schools. Security footage showed soldiers entering an orphanage…50 children were taken.” FUCK PUTIN

As @bsw5020 said, “Based on the science and the amazing progress we're making today, ALS is no longer hopeless." And “It is time to have the first ALS survivor." @US_FDA the world is watching. @noc_film @iamalsorg #NurOwn #Tofersen #DefyingTheOdds 3/3

Barack Obama Celebrates Release of Moving New ALS Documentary with Former Staffers at SXSW people.com/health/barack-… via @people

Today, we are another step closer to ending ALS. @POTUS's budget request includes $2.5 million to implement #ACTforALS to foster the development of treatments for ALS and other rare neurodegenerative diseases.

When folks meet a person #LIVINGwithALS, what they see is just a fragment of the disease impact. They might notice the wheelchair, or maybe the assistive communication device, or the ventilator. Few dive below the surface to understand the real lost these devices represent.

My #Apple watch alerted me that I didn’t get enough #activity yesterday. Doesn’t have an #ALS mode!

one of these days I will stop watching this video but today is not that day.. Israeli historian Ilan Pappé strikes again.. Just listen guys #Israe

So, you'll enjoy this: we put what Fox hosts Carlson, Hannity, and Ingraham said, on air, side by side with what they were saying to each other on text, in private, when the cameras stopped rolling. It's a must-watch and it's pretty shocking:

WTF I thought eating healthy is good for you #FUCKALS

Today and every day #als #livingwithhope #ENDALS

China’s Global Mega-Projects Are Falling Apart - The Wall Street Journal apple.news/A548DmqtSROKbm…