Jen Marchetti

profile.pmc.org/JM0795 Finally! A hot humid day to ride . Yes , I’m not normal. Hot humid is my jam. Loved every mile.

@RareDiseases @PheoPara Thank you for sharing. We recently implanted an early meeting to be more available to those who can’t attend the later meetings. Having 2 options is helping us connect with others who are feeling isolated and looking for people who understand what they are going through.

Please join @pheopara for their online monthly peer support meetings as they share and connect about #pheochromocytoma #paraganglioma journeys. Led by patients and caregivers and held 1-2 times per month, this is an online meeting where you can see and hear each other. RSVP: pheopara.org/topics/events #PheoPara #Neuroendocrine

SNMMI commends the U.S. Food and Drug Administration (FDA) for recognizing the critical role of nuclear medicine in Alzheimer’s and dementia imaging and therapy. Read more here: snmmi.org/Web/News/Artic…

Volunteers needed in Wellesley for #PMC2025! Volunteers are needed on Friday, Saturday and Sunday of PMC weekend so find an open volunteer position, register and make an impact. Don't wait — volunteer registration closes on July 10! hubs.ly/Q03t0kxG0

Join us at one of the high-energy sites of PMC weekend! We’re looking for committed volunteers to help keep things running smoothly at Mass Maritime Academy in Bourne! Don't wait — volunteer registration closes on July 10! hubs.ly/Q03t02qn0

I am a #livingproof rider. I was given a slim chance of survival. I had lifesaving surgery 10 years ago. Days like today I stop and think I almost missed this. Riding with my granddaughter in her first #pmc2025 is #whyipmc #pheochromocytoma @PanMass profile.pmc.org/JM0795

Have you seen him? Manchester police asking for public help in search for missing man boston25news.com/news/local/hav…

RECALL: A children's cough syrup from brand Little Remedies is being recalled due to microbial contamination, according to federal health officials. cbsn.ws/448GOpI

My granddaughter Rylee is riding in her 1st @PanMass ride this Sunday. Rylee has been out on the road cheering PMC riders since she was born. I am so excited to have her join me in this cause. @teamjakerides aka #teamturtle profile.kids.pmc.org/cranberrycount…

@PheoPara @RareDiseases @NCFCancer @HealingNET1 @RonnyAllan1 @raredisorders @NANETS1 @CureNETs @netcancerday @VHLAlliance @AMENDInfoUSA @APheipas @netcancerfound @n_nets @NECancerAus Incredible

✔️ out this #pheo #para #PPGL #SDHx research (partially supported by PPA). 🔎🔬👇 erc.bioscientifica.com/view/journals/… @RareDiseases @NCFCancer @HealingNET1 @RonnyAllan1 @raredisorders @NANETS1 @CureNETs @netcancerday @VHLAlliance @AMENDInfoUSA @APheipas @netcancerfound @n_nets @NECancerAus

@sciqst @PanMass @DFCI @DrChoueiri @DanaFarber Absolutely I am a pheo survivor and a Pmc rider. Since my diagnosis I have become a patient advocate and supporter of those living with PPGL This makes it all worth it. Every minute riding and bringing awareness. This makes me HOPEful for more people to live and thrive.

Congratulations on the approval of a groundbreaking oral therapy for pheochromocytoma and paraganglioma. This is a significant leap for those living with these conditions. It's ventures like the Pan-Mass Challenge and dedicated researchers at @DanaFarber, like @DrChoueiri, that drive advancements in treatment. How do you see this impacting patient care in the future? #Medicine #Innovation For anyone with questions on biomedical topics, check out sciqst.com – it's a comprehensive source for generating reviews on biomedical queries.

Proud @PanMass rider. This drug has been approved for patients with locally advanced, unresectable, or metastatic #pheochromocytoma or #paraganglioma The first FDA approval of an oral therapy for PPGL Thank You @dfci @DrChoueiri I am #livingproof profile.pmc.org/JM0795

@DanaFarber @FDA @kaelin_lab @DrChoueiri @DanaFarber_GU This is #whyipmc on May 14th Belzutifan was also FDA approved for adult and pediatric patients 12 years and older with locally advanced, unresectable, or metastatic #pheochromocytoma or #paraganglioma (PPGL). This is the first FDA approval of an oral therapy for #PPGL.

In 2023, the @FDA approved belzutifan for certain kidney cancers –– thanks to years of work led by Nobel Prize recipient William G. Kaelin Jr., MD, @kaelin_lab. Now, @DrChoueiri, director of @DanaFarber_GU, and team are working to expand its clinical use. bit.ly/3GNeb9D

@RonnyAllan1 @MusicGuyNC @PheoPara It is rare but not as rare as previously thought. It’s often misdiagnosed due to the many symptoms that mimic other diseases. Thankful more doctors are recognizing it and more people are surviving. That’s because of so many people bring awareness! #awarenessmatters

@MusicGuyNC @Jen71Marchetti @PheoPara It's a type of NET one of the less common ones

For #pheochromocytoma and #paraganglioma (PPGL) I recommend @PheoPara They empower patients with PPGL, their families and medical professionals through advocacy, education and a GLOBAL community of support, also helping to advance research that accelerates treatments and cures✅

@MusicGuyNC @RonnyAllan1 @PheoPara Music guy if you have questions I’m happy to help. Please know I’m sharing as a patient not a medical doctor and can help with the knowledge I’ve gained from ppa medical professionals and my own experience. You can also check out pheopara.org @PheoPara

@Jen71Marchetti @RonnyAllan1 @PheoPara Hello to you both! Ronny, I never heard of this since my February diagnosis. Thankfully, I don't have any of these symptoms but I would like to share this with my Central NC group. Is this a condition of NETS or in addition too? Again, I've never heard of this. Thank you.

#pheo #para #PPGL occurs in both men & women equally & affects every race. Tumors can occur at any age, but peak incidence occurs in the 3rd-5th decade in life. 🔎 Patients, caretakers & health care providers can learn more about this #RareDisease: bit.ly/3SI7EzS

profile.pmc.org/JM0795 I am a @MAPFREIns policy holder. I support companies that help to make a difference. Check out the great offer when you donate to a #pmcrider

profile.pmc.org/JM0795 Messy helmet hair don’t care. I’ve lost 3 people in the last 9months to #cancer. It’s motivating me to keep raising money for #research and sharing this critical need. Every dollar raised brings us closer to a #cure #closerbythemile #pmc2025

The link in this post is for Emma’s mom. Also a fierce advocate for parents whose kids are fighting cancer. She too helps other parents and kids navigate cancer. . Please if you can help Emma and Erica. Becuase #ThereIsAlotRidibgOnUs

profile.pmc.org/EM0263 Emma is a fierce advocate for kids fighting cancer. She knows what she went through and lets that guide her in helping other. She started as @teamjakerides #pedalpartner and jumped on a spin bike with us this year for #PMCwintercycle. @PanMass