Jenny Meagher

ME/CFS is a severely disabling neurological disease. It has been largely ignored by the medical community, despite the large scale of the problem. Pre-covid estimates suggest 50–60 million people affected worldwide—more than the entire population of Canada.

Excellent piece in New Scientist on exercise research in #LongCovid and #MECFS. Highlights studies ignoring post-exertional malaise, the PACE trial, and comments from David Tuller, Tom Kindlon and Todd Davenport. Full article: archive.is/2026.04.22-142…

As George Monbiot says in this clip @davidtuller1’s work was “absolutely crucial” in helping him understand the problems with #MEcfs research when writing his seminal article. I’ve just donated to David’s crowdfunding campaign to help keep his work going.

Join #EmergeAustralia for our annual #MECFSAwarenessWeek Symposium - a community-focused online event hosted by Anne Wilson, CEO of Emerge Australia. Tuesday 12 May 2026, 2pm AEST Register here: zurl.co/kQaTg Speakers to be announced soon!

Monash Uni is recruiting adults 18+ with long COVID for a dietary fibre study. Includes study foods, 2 Alfred Hospital visits, samples + short check-ins. Info: zurl.co/KYWwM Survey: zurl.co/wIL0U 💙

Open Medicine Foundation @OpenMedF : A new chapter in ME/CFS treatment research begins today—and your voice is essential to making it count omf.ngo/introducing-ct… docs.google.com/forms/d/e/1FAI… Screenshot from latest Science for ME weekly update #MEcfs #PwME

David Tuller is crowdfunding for his salary and expenses for the period up until the end of 2026, when he plans to retire. His work has played a major role in the ongoing shift in how ME/CFS is viewed, and Long COVID along with it. Contribute until 5 May tinyurl.com/3c8sh9j5

A new piece from me at @atlantic: Modern medicine has diagnosis crisis, which isn't just about rare diseases — a huge number of people with #longCOVID, #MECFS, & more go needlessly undiagnosed b/c patients aren't listened to, as Alexandra Sifferlin shows in her excellent new book

Deakin University is recruiting participants for the TRI-ME clinical trial testing a new medication for #MECFS. 👉 8-week study (Geelong, VIC) 💊 Active drug or placebo 🩸 Blood tests + $20/session Interested? 📧 tri-me@deakin.edu.au 📞 0482 869 599 #Research #ME/CFS

1) Some good news: MEAction announced that it has secured a meeting with the NIH Director, Dr. Bhattacharya, on May 13th to discuss funding for the NIH ME/CFS Research Roadmap.

This is great news! Now we need to show that these accumulations are amyloid in nature.

New research from the Icahn School of Medicine at Mount Sinai reveals a potential new way that SARS-CoV-2 spreads within the body—by turning previously resistant cells into targets for infection. Published in Nature Communications, the study shows that lung cells release tiny particles, known as extracellular vesicles, that carry key viral entry proteins. When taken up by other cells—including immune and blood vessel cells—these vesicles can make them newly susceptible to infection. This mechanism may help explain how COVID-19 affects multiple organ systems and contributes to severe complications like inflammation, clotting, and organ damage. The findings also point to a potential therapeutic strategy: blocking this protein transfer to limit viral spread within the body. Read the full publication here: mshs.co/4cInvsS

NEW: Pope Leo XIV’s close ally Cardinal Robert McElroy received a standing ovation at the end of his homily, where he called on Catholics to take up civic action to help end the “immoral” war against Iran. “When we leave this church tonight, we must move beyond prayer. As citizens and believers in this democracy that we cherish so deeply, we must advocate for peace with our representatives and leaders. “It is not enough to say we have prayed. We must also act. For it is very possible that the negotiations will fail because of recalcitrance on both sides, and the president will move to re-enter this immoral war. “At that critical juncture, as disciples of Jesus Christ called to be peacemakers in the world, we must answer vocally and in unison: “No. Not in our name. Not at this moment. Not with our country.”

Our new preprint by @peowenlu @SaefIzzy @weinerlabhms and colleagues shows that nasal anti-CD3 monoclonal antibody treatment can reduce neuroinflammation in a mouse model of Long COVID, even when administered at 4 weeks after infection 🧠 biorxiv.org/content/10.648…

1/7) We are excited to share our preprint, where we present a method to measure thrombo-inflammation that lead to systemic thrombotic endothelialitis in Long COVID, other post-viral and inflammatory diseases in general: biorxiv.org/content/10.648… with @dbkell and lead author Anél Thompson

Review by Italian team Pathophysiological, Translational, and Diagnostic Aspects of ME/CFS: A Focus on Skeletal Muscle Involvement mdpi.com/2075-4418/16/7… Screenshot from latest Science for ME weekly update #MEcfs #PwME

🔬Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas. 👉 Sign up today: omf.ngo/studyme/ #UnitedForME #MECFSresearch #POTS #pwME #pwLC

If you appreciate my work and would like to support it, Berkeley has just launched its latest crowdfunding campaign for Trial By Error: crowdfund.berkeley.edu/project/49720

A mother with #MyalgicEncephalomyelitis #MECFS writes about parenting from her bed and grieving for the missed moments. The letter was published in an Australian newspaper in response to an article by Cynthia Banham. Link to Cynthia's piece in replies @DavidJoffe64 @davidtuller1

@alexiaustin1969 @MMissingAus @DavidJoffe64 @davidtuller1 @theage @smh @GoodWeekendMag @MEGroupAust @sophiescott2 @TomKindlon @MelissaSweetDr @MGrahMcIntosh @Anne_Ruston @TimWilsonMP @alexiaustin1969 my heart goes out to you. I can't imagine how difficult it must be to care for two sick sons on your own while suffering from this horrendous condition yourself. You must be weary...constantly.

@MMissingAus @DavidJoffe64 @davidtuller1 @theage @smh @GoodWeekendMag @MEGroupAust @sophiescott2 @TomKindlon @MelissaSweetDr @MGrahMcIntosh @Anne_Ruston @TimWilsonMP I can relate to this. Being a mother (and mostly sole carer) with ME/CFS for 13+ years to two sons with the same condition, has been harder than words can explain. The challenges are many and varied. I now expect the unexpected. I’m weary 🫩