Kym Winter

70 posts

Kym Winter banner
Kym Winter

Kym Winter

@KymFWinter

CEO of @raremindscic. Psychotherapist working with rare disease communities, including those impacted by NET cancers and genetic endocrine disorders

London UK Присоединился Temmuz 2020
96 Подписки81 Подписчики
Kym Winter
Kym Winter@KymFWinter·
Useful wider relevance on information-sharing and #coping to caregivers of children impacted by #RareDisease #skin conditions
Dr Carleen Walsh@CARLEENWALGAL

🥳Excited that a 4th paper arising from my PhD @BamfordCentre @UlsterUni,co-authored @GerardLeavey @mmclaughlin14, is now published @BMJ_Open. Theoretical FW & key recom for⬆️INFORMATION SHARING in HC settings. #RareDisease #FamilyCaregivers #Skin #Coping. bmjopen.bmj.com/content/13/7/e…

English
0
0
1
113
Sandra Bartolomeu Pires
Sandra Bartolomeu Pires@BartolomeuPires·
"Local mental health teams have told patients that Huntington’s “doesn’t fall under the remit of what they’re able to provide treatment for”." Mental Health is a massive unaddressed gap in HD. Wishing @HDA_tweeting the best of luck in calling for better support tomorrow 🤞💪
The Independent@Independent

Concern over Huntington’s patients ‘turned away’ from mental health support #Echobox=1683610546" target="_blank" rel="nofollow noopener">independent.co.uk/life-style/hea…

English
4
3
9
1.1K
Kym Winter
Kym Winter@KymFWinter·
I love sci fi generally😊, but anyone else excited that rare genetic conditions just got a storyline in Star Trek’s ‘Picard’ , with Jean-Luc and son Jack coming to terms with the emotional impact of inheritance? Ok , it’s a made up one called Irumodic Syndrome , but still..😁
English
1
0
3
141
Kym Winter
Kym Winter@KymFWinter·
Anyone else been feeling ‘out of sorts’ in all the windy weather lately? Turns out an ‘Ill wind really does blow no good…! ‘ Brief Eerie History of How the Wind Makes Us Crazy ‹ Literary Hub lithub.com/a-brief-eerie-…
English
0
1
1
0
Kym Winter ретвитнул
Sherry Turkle
Sherry Turkle@STurkle·
The wonderfully talented writer and artist @curtiswords created an infographic summary of my book, "Reclaiming Conversation: The Power of Talk in a Digital Age.” I have already framed it, sent it to my daughter and my editor!
Sherry Turkle tweet media
English
3
14
44
0
Kym Winter
Kym Winter@KymFWinter·
Had a great time talking with colleagues @DebraRegier Amy Hunter @GeneticAll_UK and @kathleen_bogart about Psychological Impact of RD’s. thanks so much to @FondationIpsen and @ScienceMagazine for raising awareness of this key area of living with #rarediseases.Do have a listen!
Rareminds@RaremindsUK

Sign up to hear our Founder/Clinical Director @KymFWinter in lively conversation with @regierdebra @GeneticAll_UK and @kathleen_bogart on the Psychological Impact of RareDiseases , thanks to @FondationIpsen and @ScienceMagazine #raredisease #healthcare #mentalhealth

English
0
1
5
0
Kym Winter ретвитнул
Rare Disease UK
Rare Disease UK@rarediseaseuk·
📢 Please click to help @GeneticAll_UK, the charity that runs @rarediseaseuk win £1,000 from @Ecclesiastical movementforgood.com/index.php?cn=1…
Genetic Alliance UK@GeneticAll_UK

🤞It only takes one click to help us win £1,000! ow.ly/VGNg50F1PNh Please click to help us support people affected by genetic, rare and undiagnosed conditions. This is an amazing opportunity for us from @Ecclesiastical as part of their #MovementForGood.

English
1
1
4
0
Kym Winter
Kym Winter@KymFWinter·
Have heard too many experiences over the years of no, poor or inadequate provision for families and individuals - especially in ‘ atypical’ situations such as the impact of rare conditions theguardian.com/commentisfree/…
English
0
0
2
0
Kym Winter ретвитнул
Rare Disease UK
Rare Disease UK@rarediseaseuk·
'Coordinated rare disease services should include assessment of mental health needs and access to mental health services. This should be extended to carers.' Read more in our report here 👉 ow.ly/BR5o50EJH6n #MHAW #MentalHealthAwarenessWeek
Rare Disease UK tweet media
English
0
6
14
0
Kym Winter ретвитнул
UKCP
UKCP@UKCP_Updates·
Evidence has continued to confirm the widespread impact COVID-19 is having on mental health. Increasing access to psychotherapy through a choice of talking therapies in the NHS is vital to addressing this increasing need: ow.ly/CKaW50EKJsS #Covid19 #Psychotherapy
English
0
7
6
0
Kym Winter ретвитнул
Rare Disease UK
Rare Disease UK@rarediseaseuk·
'Healthcare professionals should be provided with the skills, knowledge and capacity to demonstrate awareness of the emotional challenges of living with a rare disease.' Read our other recommendations 👇 ow.ly/TNFE50EJFR3 #MHAW #MentalHealthAwarenessWeek
Rare Disease UK tweet media
English
0
6
21
0
Kym Winter ретвитнул
YoungMinds
YoungMinds@YoungMindsUK·
To start #MentalHealthAwarenessWeek, spend 20 minutes having a conversation about mental health with your child. Here are some conversation starters you can use.
YoungMinds tweet media
English
8
823
1.1K
0
Kym Winter
Kym Winter@KymFWinter·
This book’s quote an oldie now , but a still a goodie .. The title alone means I often reach for its words of wisdom !
Kym Winter tweet media
English
0
2
6
0
Kym Winter ретвитнул
Neuroendocrine Cancer UK #NotJustNECancer
Neuroendocrine Cancer UK #NotJustNECancer@ncukcharity·
Excellent clinical trials design discussion: we must address impact on QofL (Quality of Life) alongside survival - including design to avoid financial, not just physical, toxicity - what matters to patients Simron Singh / John Ramage #ENETs2021 @NeuroEndoTalk
English
1
3
7
0
Kym Winter ретвитнул
Rareminds
Rareminds@RaremindsUK·
It's Rare Disease Day! After the past year, this Rare Disease Day feels more important than ever before. So if you have a rare disease, or support the rare disease community in any way, today is for you.
Rareminds tweet media
English
0
1
4
0

Открыть

@BartolomeuPires @HDA_tweeting @RaremindsUK @HDA @curtiswords @DebraRegier @GeneticAll_UK @kathleen_bogart