Kristin's story underscores why Congress must reauthorize the Rare Pediatric #PRVprogram - an essential driver of critical treatments for kids with rare diseases.
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Arama Sonuçları: "#PRVProgram"
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We’re deeply grateful to @amyklobuchar for her leadership in #RareDisease and efforts to renew the #PRVProgram. With under 2 weeks left before it expires, urge your senator to #Renew this vital program: everylifefoundation.org/prv/
Amy Klobuchar@amyklobuchar
In the United States, 30 million people live with a rare disease, and about half of them are children. As co-chair of the bipartisan Rare Disease Caucus, I have been working to increase research and innovation to find treatments and cures for patients. kstp.com/kstp-news/top-…
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The Priority Review Voucher Program #PRV is set to expire in ONE WEEK. Families across the nation are urging you to take action to support the #PRVProgram, ensuring the continued development of life-saving treatments!
Time is critical—act now to help secure #Cures4RareKids: lnkd.in/gyQJv_K3
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Massachusetts-based #RareDisease advocate Jean Walsh breaks it down: If the #PRVProgram changes even one child’s life, it’s worth it. But it’s set to expire in just over 10 days!
Tell Congress: Act now to preserve #Cures4RareKids!
Learn more: everylifefoundation.org/prv/
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