ASIF

#axSpA is often mistaken for back pain, but it is a chronic inflammatory condition affecting more than the spine. Pain, stiffness, fatigue, poor sleep, reduced mobility, and eye, gut, or skin symptoms are often invisible. asif.info/worldasday #WorldASDay2026 #NotOnlyBackPain

World AS Day events are happening worldwide. Visit asif.info/worldasday to see events you can join. Planning your own? Share your event with us through the website and help bring the axSpA community together. #WorldASDay2026 #NotOnlyBackPain

#axSpA affects more than the spine, and many symptoms are invisible. This #WorldASDay2026, the theme is #NotOnlyBackPain. Hear real stories from people living with #AxialSpondyloarthritis. More info: asif.info/worldasday

Save the date. #WorldASDay2026 is Saturday, 2 May. #AxSpA is a chronic inflammatory condition that affects the spine and more. Join ASIF and the global community to raise awareness. Follow us for more updates coming soon asif.info/worldasday

ASIF is hiring! We’re recruiting a Project Co-ordinator / Operations Assistant to support a major global research study on axSpA & PsA. 💻Fully remote 📄 18‑month contract (possible extension) ⏰ Deadline: 11 March 2026 Full job description: asif.info/project-coordi… Apply: applications@asif.info (Attn: Jo Davies) #ASIF #Hiring #axSpA #Research #RemoteJobs

What does remission really mean in #axSpA? Watch @spondylitten & @globalafpa's podcast about the realities of remission for people living with #AxialSpondyloarthritis. tinyurl.com/yp87wdrp ASIF is proud to be part of GAfPA's @globalremission

What do you think of the clinical care that you've received for your #axSpA? Do you live in: 🇦🇷 🇦🇺 🇧🇭 🇨🇦 🇨🇳 🇨🇴 🇭🇷 🇪🇬 🇪🇪 🇫🇷 🇮🇱 🇯🇵 🇰🇼 🇱🇻 🇱🇹 🇲🇽 🇳🇱 🇴🇲 🇵🇱 🇶🇦 🇸🇦 🇰🇷 🇪🇸 🇹🇼 🇦🇪 Have your say! What needs to change? Select a link, on page 5, choose from 18 languages to complete the 20-minute survey in. ENG tinyurl.com/QS-English SPAN tinyurl.com/QS-Spanish العربية tinyurl.com/QS-Arabic

Wishing everyone a happy and healthy end to 2025 and a wonderful beginning of 2026. The ASIF office will be closed from this afternoon (GMT) and will reopen on 5 January. Thank you to everyone who has raised awareness about axSpA, supported our projects, been part of our work and advocated for themselves and others living with axSpA.

🌍 ASIF is now part of the World Patients Alliance! Together, we amplify patient voices globally. Learn more 👉 asif.info/wpa #AxSpA #AxialSpondyloarthritis #GlobalAdvocacy #PatientEmpowerment

Find out about EULAR's Online Course for Patient Research Partners 👇

Day 2 & 3 at #EULARPARE = Hackathon! For the first time, patients lead co-created research. We’re tackling better PRP involvement & generating ideas for real change. ASIF represented by Jo Davies. Great to connect with axSpA & RMD patient advocates worldwide! 🌍 #PatientVoice #CoCreation #RMD #axSpA

Jo Davies from ASIF is at the @EULAR PARE Annual Conference in Brussels! The event began with CEO & iPARE (international) working groups and a great talk by Stefan Magnusson & Sophia Marantidou on engaging young people in associations. #Rheumatology #PatientAdvocacy #YoungPARE #axSpA

At #IAPO11thCongress, the Patient Charter for Social Participation launched—a tool to help patient orgs engage governments & embed patient voices in health governance. Proud that Geraldine Bonites, ASIF Trustee, represented ASIF! “It was an inspiring moment that reinforced my commitment to elevating the experiences of #axSpA patients and contributing to a more inclusive healthcare future.” #AxialSpondyloarthritis

#IBD is something that many people living with #AxialSpondyloarthritis suffer. Read more from GAfPA regarding IBD care in the Asia-Pacific region. #axSpA

🌍 ASIF Board Officers 2025–2026 🌍 Chair – @zhivkoyankov 🇧🇬 Vice-Chair – Lillann Wermskog 🇳🇴 Treasurer – René Bräm 🇨🇭 Secretary – @nadiamalliou_ 🇬🇷 (new) Thank you to @AndriPhoka 🇨🇾 for her service as Secretary. This experienced team ensures continuity & is supported by the full Board of highly-skilled patient representatives from around the world. 🔗 asif.info/about/ #ASIF #axSpA #AxialSpondyloarthritis

Amplifying the patient voice is at the heart of what we do. We look forward to continuing to work with @EULAR PARE and Dr Stones during his tenure. #axSpA #PatientVoice #AxialSpondyloarthritis

Congratulations to our new Trustees: Simon Grosswiler 🇨🇭 (Director, @bechterew_ch) & Geraldine Bonites 🇵🇭(Trustee, ASAPh). They join re-elected trustees: Zhivko Yankov (🇧🇬), Andri Phoka (🇨🇾), Nadia Malliou (🇬🇷), Prachee Bhosle (🇮🇳), Julieth Buitrago (🇨🇴) & René Bräm (🇨🇭) — alongside continuing Trustees Lillann Wermskog (🇳🇴), Cassie Shafer (🇺🇸) and Dr Tuncay Duruöz (🇹🇷). An inspiring Board leading our global #axSpA work! 🌍 Thanks to all who attended our Annual Meeting today!

Today is #WorldArthritisDay. We dream for a world where everyone affected by #AxialSpondyloarthritis (#axSpA) and related conditions lives their best life. What's your #RMDream? #worldarthritisday2025

To mark #WorldArthritisDay2025 join the @eular_org Joint Communities Webinar on 15 October. Achieve Your #RMDreams Find out more at: eular.org/world-arthriti…

Working together we can make #RMDreams real! #WorldArthritisDay