AnOrdinaryDisabledLesbian (He/They)

No questions were answered, no facts were checked. What was even the point? To have to old white men yap at each other

Whatever the agreement to not push back or fact-check in real time-- this is disturbing to me. This is how democracy and norms get eroded. Fact-checking and preparedness are part of the safeguards to keep people in power accountable. This nation is in trouble.

welp

The bar could not possibly be lower and yet…. #Debates2024

A potato would be a better moderator at this point 😭 #Debates2024

Making two geriatrics argue in front of the entire country at 9PM is diabolical

No audience for the debate seems cruel, they should have at least added a laugh track.

The way I get a pit in my stomach when I see Judaism trending is so incredibly telling and sad

@DiaryofaSickGrl Horses. Comes with owning and rescuing them. My gelding likes to run around (playing) with me

Just for fun:

!!!!

@FightAbleism I totally get not testing for rare stuff first but like when you have all the common tests coming back clear and a condition that’s co-morbid with said ”rare” condition I feel like it’s time to rule that out

@Disabled_Les that's total BS. it may be rare, but that doesn't mean nonexistent. if you have the symptoms and no common conditions can be diagnosed, it's only reasonable to look into less common diagnosis! my best doctors will test for anything that could explain my symptoms even if it's rare

@FightAbleism Exactly!

@eggyonline I appreciate it. I’ll take a look. Thanks!

@dysautonomian Maybe, but I see a MCAS specialist who is top of the field and he thinks it’s something more than just my MCAS. My GI symptoms predate my MCAS ones and my MCAS is pretty mild. He’s not ruling it out as a contributing factor but it is not likely the main cause.

@FightAbleism @erin This is a great point! I will check on this

@erin @Disabled_Les I would also add on to this that the same goes for medication! I used to have this issue and thought I wasn't tolerating feeds. turns out my medications flavoring was triggering my mcas! so going over fillers & flavors in medications with mcas can help a lot

@FightAbleism I couldn’t even get a 4th of the food down for the GES, so that may be a better diagnostic measure. I will definitely look into and inquire about those other conditions as well! Thanks, you’ve been a lot of help!

@FightAbleism but I’ve had to many dangerous issues unaddressed because “it’s probably your other conditions“ to be comfortable with that conclusion unless the doctor is very knowledgeable and sure on that, which this doctor isn’t. I may need to ask for the smart pill because (2)

@eggyonline I did ask about this and was told there is no way as it’s “incredibly rare”. Current GI is not willing to test at all. He is my first opinion so I’m definitely willing to see another, do you have any idea where you go to investigate something like this?

@erin @FightAbleism Yep! I have already done an elimination diet, low inflammatory, low histamine and low FODMAP. While some things brought me a little relief and I have eliminated those, it didn’t have a huge difference. So I am not sure if this is the issue, I will keep in mind though.

@Disabled_Les @FightAbleism Eating foods you can’t with MCAS would cause pain and nausea. IC can cause the excruciating pain. We can’t do grass family, seeds, capsaicin and a bunch of others. Most foods need to be cooked a lot. Might need very reduced diet for a while.