FNDRecovery

#FND Twitter has been hot this weekend, and sometimes not nice. There are conversations I’ve chosen not to enter into, but that doesn’t mean I don’t have opinions. I ALWAYS have opinions about FND! 🤣

@ChrisMa14794593 I have. Sending you a message.

Attention FND researchers-@jonstoneneuro @DavidLewisPerez @FNDSociety @neuroads_lab Has anyone looked at sleep apnea as part of the #FND picture? 🧵

Video of my newest method of managing aphasia- youtu.be/SKoaEQ_XbPE?si…

This week I’ll set up an official sleep study, but it seems like this is a worthy area of research. It makes sense to me that if my brain isn’t getting adequate rest, it won’t work as well.

@ConnectFnd The past couple of years I haven’t done much with it, but have kept it going. It still gets a lot of views and comments that it’s helped people. Ideally, someone younger would take it over. I’d be happy to be involved for awhile during the transition.

@FndRecovery Pass it on to someone who can run with it still? It would be a huge loss to the community.

As I get older, simplifying my life has become an important part of staying healthy. I won’t live forever and I’m creeping closer to 70. My question as I feel ready to retire from FND advocacy- what do I do with my blog? Suggestions?

Having the opportunity to talk to people who are genuinely interested in #FND was amazing! Showing people the future of treatment pathways, this can only go onto bigger and better things! #NHS #Pathway @Brain_Tinkerer @NIRSlearn @FNDSociety @FndRecovery @FNDHopeUK @AmandaFNDHope

Real patient and carer experiences, professional accounts and more on #functionalneurologicaldisorder still available to purchase on Amazon: #FNDstories #FMDaware amzn.eu/d/bgNf7xD

FND is complex, but understanding it is the first step toward healing. You are not alone in this--with the right support, you can take control of your journey. The #FNDcourage community is here to empower you every step of the way. 💙 #fndcourage #FND

If sleep is the only kind of rest you get this weekend, You're setting yourself up to fail next week. There are actually 7 types of rest we need, explains Dr. Saundra Dalton-Smith, And sleep is only a PART of ONE of those 7:

The illustrated, quick read #FND e-workbook is free for the rest of the week in honour of #BackToSchool UK. amazon.com/gp/aw/d/B0CCNZ… Support your child/teen/loved one while giving back to @FNDHopeUK and @FNDHope

I remember the time when I gave birth to my daughter. They had to keep me in the hospital for 10 days because I wasn’t feeling well. Every time I tried to stand up, I fainted. At one point, I even stopped breathing, according to my husband. He panicked and called a friend who was a cardiologist. The friend’s response was, “You know, sometimes our wives just want attention because they’re going through a hard time.” My husband got angry and insisted that someone be sent to check on me. When the resident came, my husband simply said, “Just watch.” He helped me stand up, and I don’t remember what happened next. When I regained consciousness, I saw a room full of doctors around me, all in a panic because I had stopped breathing again. That’s when they realized it wasn’t just an “attention-seeking” move. Why am I telling you this? I’m not sure—maybe because I feel that many women, especially those with chronic and complicated illnesses, have had similar experiences. If you want to share yours, quote this with #MedicalMisogyny.

@MalHerself @divabemg @SassyFNDLife @KH118118 @FndPortal Sorry about the stupid autocorrect on your name Mal 🙄

@MalHerself @divabemg @SassyFNDLife @KH118118 @FndPortal Hey Mail, sorry you've had to join our exclusive club. Lots of great members though. You might want to check out my blog for some of my thoughts and strategies for dealing with #FND. FNDRecovery.com

Help us continue to fight for the #FND community- please watch and share our just giving campaign video. thank you for your continued support from everyone at FND Action 🙏 justgiving.com/campaign/fndac…

📢Calling all neurologists and psychiatrists 1yr pre or post CCT! Great opportunity to do funded 6 month fellowship post in FND with Biba, Mark Edwards and the Allstar Maudsley neuropsych team Application deadline midnight this Thursday (8th)...see link below👇