FNDConnect

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FNDConnect

FNDConnect

@ConnectFnd

Sharing news & views of the #FND community. Carer for FND, (Fibro, CP, POTS, CRPS) sufferer, wanting to help share info & experience. Non medical professional.

England, United Kingdom Katılım Nisan 2021
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FNDConnect
FNDConnect@ConnectFnd·
For those of you who don’t know me, I am a mum of a young lady who has lived with #FND for at least 20 years, possibly all 32 yrs of her life. She has multiple comorbidities which makes treatment nigh on impossible. Let me tell you why I take the trolls to task on here: 🧵1/14
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Functional Neurological Disorder Society
Functional Neurological Disorder Society@FNDSociety·
📅FNDS is pleased to highlight the Placebo, Hypnosis, and Functional Disorders Conference 2026 (Nancy, France, Oct 14-16). FNDS members are invited to participate and submit their work open until May 31. For more information visit the conference website: phfd-conf.org/en/
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Abhijit Das
Abhijit Das@Brain_Tinkerer·
📢📢 New Research Alert 📢📢 Delighted to share that our abstract, “Distinct Emotional Profiles in Functional Seizures versus Functional Movement Disorder: Evidence from Digital Phenotyping,” has been selected for an oral presentation at the FNDS Baltimore conference, as part of "Research Highlights: Best of FND 2026 Posters." This work is the result of a valuable collaboration with Steven Painter at Neurolog (neuro-log.com) #Emotions may offer a powerful doorway into understanding Functional Neurological Disorder — not as a simple “cause,” but as part of the brain-body processes through which symptoms are generated, maintained, and experienced. The emerging science of emotion invites us to think beyond older mind-body divisions and towards concepts such as interoception, predictive processing, allostasis, and emotional granularity (academic.oup.com/brain/article/…). These frameworks may help us better understand the lived experience and biological complexity of #FND. Interestingly, it aligns closely with principles of #Hypnosis. Through #DigitalPhenotyping, we examine whether functional seizures and functional movement disorder have distinct emotional profiles, with the aim of deepening mechanistic understanding and supporting more personalised care. Grateful to the wider FND community for helping bring this work together. #FND #Neurology #Hypnosis #NHS #MindBodyMedicine #DigitalHealth #DigitalPhenotyping @FNDHope @FNDAction @FndIreland @ConnectFnd @DavidLewisPerez @jungjoha @popkirov @jonstoneneuro @AlanCarson15 @LFeldmanBarrett @BSCAH1 @RoySocMed @WilliamMcGeown @EdinPublishing @LSCICB @LancashireRKE @BBCLancashire @leponline @lancstelegraph @Uni_Lancashire @LancsHospitals @GrahamLiver @FNDSociety @NIRSlearn @KH118118 @SelmaAybek @TomPlender @fndfriends @FNDDimensions @FndRecovery
Abhijit Das tweet mediaAbhijit Das tweet media
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Physio Meets Science
Physio Meets Science@PhysioMeScience·
Just published in “Clinical Journal of Pain” 𝗣𝗮𝘁𝗵𝗼𝗽𝗵𝘆𝘀𝗶𝗼𝗹𝗼𝗴𝘆 𝗼𝗳 𝗖𝗵𝗿𝗼𝗻𝗶𝗰 𝗣𝗮𝗶𝗻 pubmed.ncbi.nlm.nih.gov/41614224/
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Chris Gaskell
Chris Gaskell@chrisgaskell92·
A great opportunity for people with FND/carers to shape research and patient care! Questionnaires matter for identifying need and treatment impact. Please consider taking part or sharing. Time paid in Amazon vouchers. @ConnectFnd @FNDHopeUK @FNDDimensions @FNDandMe1978
Gregg Rawlings@GreggHRawlings

Help us develop a questionnaire about living with Functional Neurological Disorder We are looking for people with FND and carers to take part in a paid 2-hour online Patient and Public Involvement and Engagement (PPIE) focus group. forms.gle/jeHcieBQuF6x6W…

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Alan Carson
Alan Carson@AlanCarson15·
@FNDSociety were delighted to endorse this guideline which we think frontline clinicians will find very helpful- well done to all the authors and reviewers
David L. Perez MD, MMSc, FAAN, FANPA@DavidLewisPerez

Four yrs in the making, @GreenJournal Practice Guideline Executive Summary on the Management of Functional Seizures. 1st @AANmember published guideline on any #FND variant. Brilliantly led by @btolchin. @jonstoneneuro @FNDHope @AmEpilepsySoc @FNDSociety neurology.org/doi/10.1212/WN…

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@FNDHope @FNDAction @FndIreland @DavidLewisPerez @jungjoha @popkirov @jonstoneneuro @AlanCarson15