MastCellChat

478 posts

MastCellChat

MastCellChat

@MastCellChat

Took a decade to get a diagnosis. Raising awareness on Mast Cell Activation Syndrome, symptoms, protocol & research to improve quality of life.

เข้าร่วม Nisan 2019
715 กำลังติดตาม2.6K ผู้ติดตาม
MastCellChat
MastCellChat@MastCellChat·
Informative round-up on Mast Cell Activation Syndrome: When the immune system goes haywire… overview of MCAS, first person accounts, food, trigers, treatment options and more…lymedisease.org/members/lyme-t… via @Lymenews
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Raquel
Raquel@RaquelWWE·
The journey is far from over. I finally got some answers as to what caused this but it’s going to be a while til I can get it fully under control. I know one thing. I’m blessed to have an amazing support system. Family, friends, I love you all❤️ Keep pushing through the pain!
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MastCellChat
MastCellChat@MastCellChat·
Thank you @edyong209 Your article truly articulates what it's like to have deep, ongoing fatigue. Many with Mast Cell Activation Syndrome experience chronic fatigue. theatlantic.com/health/archive…
Hannah Davis@ahandvanish

A beautiful piece by @edyong209 that fully describes & communicates the complexity of fatigue & Post-Exertional Malaise in #LongCovid. Ironically am crashy today so going to pull out amazing quotes: "Now, at least, she can watch TV on the same day she takes a shower." 1/

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MastCellChat
MastCellChat@MastCellChat·
Living with Chronic Illness: “ultimately diagnosed with Mast Cell Activation Syndrome…never give up. When doctors can’t figure it out, keep in mind that only you can know if something isn’t right with your body so keep pushing...” theroanoker.com/magazine/featu…
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Mary Lou
Mary Lou@melluk2020·
Ok I have a dear friend who needs an immunologist to treat her MCAS and lymes. @DrTaniaDempsey she was told by her Dr to go see you, but you are booked for a year. Anyone reading this @MastCellChat please help. She can’t eat most foods, and is short of breath all day. Heart ok,
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Juan Lessing
Juan Lessing@drlessing·
I met a young man whose Dx journey to mast cell activation syndr took many frustrating yrs, incl being dismissed by many. He said “I would’ve thought doctors would be interested&excited to help discover what was wrong. That was not the case.” I think about this a lot #MedTwitter
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