Susan Dougill
23.7K posts

Susan Dougill
@SusanD1408
I am a married mother of one teenage son. I have a wonderful husband who cares for me. I have ME/CFS Fibromyalgia, POTS, peripheral neuropathy & other things
Greater Manchester, England เข้าร่วม Kasım 2022
876 กำลังติดตาม891 ผู้ติดตาม

@cfs_jo They could be made into things. I am sure some hobbiest artist could use them
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@SusanD1408 I do have a gallbladder. I remember u reacted terribke 😞. Nope I haven’t. I could look
For audiobook as can’t read. I could accept being in bed etc if I didn’t feel like I was dying pretty much constantly. I just want to turn this feeling down and have something for pain.
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My inflammation markers are very low based on my cytokine results. My vascular markers are high. Am I right in thinking this means microdosing GLP-1 could be the wrong route for me? I was considering it but then remembered my results…#MECFS #LongCovid #MCAS

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@areyoflight @Klang764 You can easily see on the photo she is in pain doing what she is doing.
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This is the disgusting abuse that disabled people put up with everyday.👇
1. I rely on delivery services on days I’m too unwell to function.
2. Chronic illnesses have good days and bad days. What you can do one day may not be possible the next day.
3. Unless you have their medical records, you don’t know what that person is dealing with.
Stop demonising chronically ill and disabled people ‼️

Gavlar74@Biggav2022
@jaacknffc Fair play to you it’s one of favourite pastimes as well , just recently dobbed the freak from next door 5 yrs on pip for bad back , just for eats delivered twice a day fat bitch . Another neighbour as well seen her out front knocking posts in ffs 🤦♂️
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@joemichalczuk This is what the government is trying to do. They want the NHS money to go to private firms. Their friends and cushy jobs afterwards. They are making the NHS break so everyone will pay privately.
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A shower screen shattered all over my wife this week.
Over the next 72 hours, the NHS got almost everything wrong.
A cautionary tale of a system that is broken (with the usual caveat that everyone working in it is doing their best) 👇
I called an ambulance.
All good at first: “It’s on its way.”
Ten minutes later: “Actually, there are no ambulances for hours - can you get her to hospital?”
So I loaded my bleeding wife into the car, along with the kids and the dog, and drove to A&E.
Ten hours later, she came home - having given up after not even being offered a plaster.
The next morning, we called our GP: “Any chance she could see a nurse?”
“No - as the ambulance referred her to hospital, we can’t see her.”
So I went to the pharmacy and bought a first aid kit.
Because apparently that’s where we are now - me and a pack of plasters, in one of the richest countries in the world.
This morning, still in pain, still untreated, and with a ballooning foot, we went to an urgent treatment centre.
At first, smooth. She was seen in under two hours. X-ray done.
“Nasty cut, but nothing broken.”
Relief.
Two hours later, the phone rang.
It was the hospital.
“Sorry - we got that completely wrong. Your foot is broken and the wound needs antibiotics.”
If it wasn’t so serious, it would be laughable.
And the truth is - anyone who uses the system has a story like this.
We need to stop clinging to an idealised version of the NHS and have a grown-up conversation about how to fix it.
Free healthcare for all should remain a principle - but pretending the current model works isn’t helping anyone.
Almost every other developed country combines public healthcare with some level of private provision - and all deliver better outcomes as a result.
Yet in the UK, even suggesting that tends to get shut down before the conversation starts.
That’s not protecting the NHS. It’s protecting a cult.
We don’t need ideology. We need honesty about what works.
We need a brilliant NHS in practice for all of us - not one we’re told to revere while it quietly crumbles, and where anyone who speaks up is dismissed or discredited.
When are we going to get serious about the things that actually matter - and have the difficult national conversations needed to fix them?
We don’t need to abandon the NHS.
We need to be honest about fixing it.
We shouldn’t just shrug our shoulders.
We have to be better.
We need to vote for real change.
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@HaggisAdele I had a dog that could clear an 8ft fence. We ended up having to take him out on a lead everytime he went out into the garden.
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Two years ago Loes from the Netherlands who had #severeME died after she applied for + received euthanasia. She was 63 but got ill much younger and lived for a long time with ME. I hope she won't be forgotten.
We should keep posting about all the people we've lost. We should 1/
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Susan Dougill รีทวีตแล้ว

Day Six since @networkrail said they’d unblock the mortar in nest holes at #ChapelMilton. It’s not happened. #swifts spotted 21 miles away today. #saveourswifts #unblocktheholes @WriterHannahBT
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@Sandra55 Yep ours is a call between 8am and 1pm or 1pm and 7pm.
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@KSchnickelfritz You are doing amazing 🤩. That is so difficult.
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