VoiceForIBD

Thrilled to announce I’m a new National Trustee for the @CrohnsColitisFn #BoardOfTrustees I’m eager to contribute my #marketing expertise, #strategic oversight & commitment to #IBD #patientadvocacy to support the Foundation’s mission 🥹 Learn more 👇🏼 🔗 bit.ly/4a0ujhB

My dad knew he needed a #colonoscopy He scheduled it. And canceled😞That decision changed everything. We lost him to #liver & #colorectal #cancer 😢 I live with #Crohns so I don’t skip mine. If you’ve been putting it off, this is your reminder. #ScreeningSavesLives #CRC

At the @CrohnsColitisFn #MyIBDLearning #OrangeCounty conference, we heard from #IBD experts from @UCIrvineHealth @hoaghealth @CedarsSinai & @chocchildrens 🏥 ✨Managing Flares & New Technologies ✨How To Live Happy & Healthy w/IBD
✨Surgical Management ✨Mental Health & IBD

Nuestro #grupodeapoyo virtual en #español para la #EII crea un espacio de conexión, experiencias y comunidad. Por este mes tenemos nueva fecha - lunes 23 de marzo a las 4 de la tarde, hora del Pacífico o 7 de la noche, hora del Este Contáctanos 🔗 bit.ly/3PgXNis

Our #Spanish language virtual #IBD #supportgroup creates space for connection, experiences & community. For this month, we have a new date - Mon, March 23rd at 4 PM PT / 7 PM ET 🔗 bit.ly/3PgXNis

@LoriPlung @MondayNightIBD It’s ALL so helpful-understanding surgery, recovery & QOL from medical team alleviates worries & learning from fellow patients helps w/detailed insights on how to prepare/what to expect. Surgery is never a failure!

@MondayNightIBD If you're living w #IBD or a caregiver & had ✂️IBD surgery or it’s a future possibility What would make the decision to have✂️ & the journey easier 🗣️ Discuss w GI+✂️team early & several times 🔮Understand recovery+QoL post✂️ 🤝Talk to a pt who had same✂️ 🚫Other options failed

📣 People living with #IBD & caregivers, join the #PatientExperience convo led by @LoriPlung Whether you had IBD #surgery already or, you think that surgery might be needed at some point, What can help you in that journey? 🗳️👇🏽& share your thoughts 💬w us ! #StrongerTogether

On this #InternationalWomensDay we celebrate the women of the #IBD community 👊🏼Patients living the reality of IBD 👊🏽Clinicians & researchers working to improve care 👊🏾Advocates & caregivers strengthening this community Each plays a role in the future of IBD care #IWD2026

In Jan, while battling COVID & Influenza A, I ended up in the ED & learned I was experiencing symptomatic #gallstones As someone w/ #Crohns (and prior ileal resection), we’re at higher risk 😱 Patients: Have you discussed w/your GI? HCPs: Are you discussing w/your patients?

Patient engagement is key 👏🏼 👏🏼 👏🏼

On Sat, 3/21, our #IBD community is coming together in #OC for a full day of #education I’ll be moderating a special session: MyIBD Connections for the #Hispanic & #Latino Community 📍: Courtyard Marriott Irvine Spectrum 📅: Sat, 3/21 ⏰: 9 AM–2 PM 🔗 bit.ly/MyIBDLearningOC

For more info, contact us: 🔗 bit.ly/3PgXNis

Moments of representation matter-on a global stage & in #healthcare Seeing culture celebrated openly is a reminder of how important #language #identity & feeling understood are. That’s why our virtual Spanish-language #IBD #supportgroup exists👇🏼 Please share!

Reflecting on my time at #CCCongress26 in Las Vegas💙As a #patient #advocate & someone living w/ #IBD it’s a privilege I don’t take lightly🥹To witness cutting-edge research🔬emerging treatments🧬 & the commitment of clinicians & researchers who care about patients is powerful💥

Important 🧵 👇🏼 for #IBD patients who struggle with #MRE contrast like I do😫 And take note clinicians ✍🏼 …this can help your patients tolerate imaging 👇🏼 #Crohns #UC

As a #fistula patient myself, I know all too well the trauma that #IBD patients go through when living w/ #perianal disease. So valuable for the patient perspective & mental health recommendations to be shared & discussed at #CCCongress26

So insightful to hear Dr. Marla Dubinsky summarize the the right drug at the right time in #IBD So many considerations for patients & clinicians #CCCongress26

Grateful for @LarryKim_MD leadership of the @AmerGastroAssn 🎉 And beyond appreciative of the @CrohnsColitisFn incredible commitment to #IBD patients. Thank you Dr. Alan Moss (Chief Scientific Officer) for leading IBD scientific advancements at the Foundation 🥹 #CCCongress26

Key summaries of all of the latest advancements in treatment for both #CD and #UC at #CCCongress26 at #IBD 101, including bone marrow transplant success for CD ( in Europe) 🎉

@GutlessGlamour @CrohnsColitisFn @IBD_FloMD @aboutIBD @IBDMD @MccutchenDr @ibddoctor Let me know if I can help! One of my ophthalmologists specializes so I can ask him for referrals! 😊

I don’t know if this is a thing…but are there eye doctors and/or ophthalmologist that specialize in patients with IBD related eye conditions? @CrohnsColitisFn @IBD_FloMD @aboutIBD @IBDMD @MccutchenDr @ibddoctor Asking for my dad… 🤔

Patient voices in #IBD #research matter. Both @ownyourcrohns & @VoiceForIBD had the honor to contribute to a @bmj_latest State of the Art Review on IBD medical mgmt, written for clinicians & including a patient perspective section to ground PROs👇🏼 🔗 bit.ly/MedicalMgmtOfI…

This Saltado de Vegetales is personal-a Peruvian dish I grew up with🇵🇪adapted to be gut-friendly👏🏼 Proud to see it featured on @CrohnsColitisFn Gut Friendly Recipes, a 🆓 dietitian-reviewed resource expanding cultural representation🌎#IBD #Nutrition 🔗 bit.ly/SaltadoDeVeget…