NF2 BioSolutions UK & Europe

2.8K posts

NF2 BioSolutions UK & Europe

@nf2biosolution1

Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.

UK & Europe เข้าร่วม Mart 2021

456 กำลังติดตาม474 ผู้ติดตาม

NF2 BioSolutions UK & Europe@nf2biosolution1·14h

Brain Tumour Awareness Month takes place every March, and it shines a light on all types of brain tumours — including benign (non‑cancerous) brain tumours, which can still have serious effects because they grow inside the skull and press on important brain structures. #ENDNF2

NF2 BioSolutions UK & Europe tweet media

English

NF2 BioSolutions UK & Europe@nf2biosolution1·3d

He also has his own branded merchandise available to buy and we are collaborating together to increase awareness

English

NF2 BioSolutions UK & Europe@nf2biosolution1·3d

Delighted to introduce our new team member, volunteer & Ambassador, Michael Archer. Michael is an influencer on instagram at @nf2.arch (give him a follow) he raises awareness of NF2, connecting many others around the world, sharing their story one at a time with "Voices of NF2"

English

NF2 BioSolutions UK & Europe@nf2biosolution1·6d

Fundraising News TeamImmie are taking on the Nine Edges Challenge in May to mark NF2 Awareness Day raising money for 2 charities @OscarsCharity & @nf2biosolution1 Support/donate here: justgiving.com/crowdfunding/m… We wish you the best of luck #ENDNF2

English

NF2 BioSolutions UK & Europe@nf2biosolution1·6d

We are looking back at the amazing fundraising over the past few years every Friday in our "Fundraiser Friday" posts Feeling inspired? Check out the hub for your fundraiser -peoplesfundraising.com/hub/nf2-biosol… Want to take part in the Big May 5K Register here forms.gle/bBULY6wHHH7LYq… #endNF2

English

NF2 BioSolutions UK & Europe@nf2biosolution1·19 Mar

Fundraising News Fun on a friday with the Ward family charity Axe throwing evening in May to mark NF2 Awareness Day If you are in the area (Nottingham) & would like to take part then you can message us to reserve your spot Or you can support here peoplesfundraising.com/fundraising/ax… #ENDNF2

English

NF2 BioSolutions UK & Europe@nf2biosolution1·19 Mar

Come and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome) Date: 24th March 10.30am GMT Have a chat, say hi or just enjoy the company - the choice is yours Sign up here: forms.gle/Rx5H75g7PomZ7p…

English

NF2 BioSolutions UK & Europe@nf2biosolution1·18 Mar

On 11th march, our lead Clare and COO Jo attended the @braintumourrsch - members workshop which brings together scientists, clinicians, and funded research teams from across its Centres of Excellence. Always a lovely day to meet other charities #endNF2 #NF2awareness #NF2

English

224

NF2 BioSolutions UK & Europe@nf2biosolution1·17 Mar

Brain Tumour Awareness Month shines a light on all types of brain tumours Symptoms can disrupt communication independence social interaction Contributing to frustration isolation low mood uncertainty anxiety emotional strain Reduced social contact NF2 life changing #endNF2 #NF2

English

102

NF2 BioSolutions UK & Europe@nf2biosolution1·16 Mar

The current study running out of Plymouth & Manchester investigating retrovirals for NF2 related Schwannomatosis seeking 2 more participants to take part. Contact Plymouth: Dr. Sarah Kingdon- Sarah.Kingdon@nhs.net Manchester: Sadaf Naveed - sadaf.naveed@nca.nhs.uk for more info

English

NF2 BioSolutions UK & Europe@nf2biosolution1·16 Mar

More than a language: culture, community and belonging! Sign Language Week is a flagship awareness week for British Sign Language and Irish Sign Language, celebrated every year in March We aim to be sharing some posts to mark #slw2026 as many in the NF2 community are deaf/HOH.

English

NF2 BioSolutions UK & Europe@nf2biosolution1·15 Mar

The Big May 5K A NF2 community charity fundraising event Date: Sometime in May - you decide! Location: You decide! Distance: 5K, want a challenge? Do more, too much, do Less Cant run? walk, jog, scoot or complete how ever you choose! Sign up today! forms.gle/YD2aicVT2MW6DN… #ENDNF2

English

NF2 BioSolutions UK & Europe@nf2biosolution1·15 Mar

Happy Mothers Day to all the mums out there - this is in recognitions of Sign Language week that starts tomorrow #SLW2026 #endNF2 #NF2awareness #NF2Schwannomatosis #schwannomatosis

English

NF2 BioSolutions UK & Europe@nf2biosolution1·15 Mar

Amazing win!

NF2 BioSolutions@NF2BioSolutions

Thanks to the generosity of our community, we have reached our $300,000 Rare Disease Day goal. This milestone allows us to begin the first phase of AAV9 NF2 gene therapy manufacturing. The first step in the manufacturing process is creating the DNA blueprint, called the plasmid.

English

NF2 BioSolutions UK & Europe@nf2biosolution1·13 Mar

"Fundraiser Friday" Need inspiration to raise funds for NF Awareness month and NF2 Awareness day (22nd May) Feeling inspired? Check out the hub for your fundraiser peoplesfundraising.com/hub/nf2-biosol… Want to take part in the Big May 5K ? Register here -- forms.gle/bBULY6wHHH7LYq… #endNF2

English

NF2 BioSolutions UK & Europe@nf2biosolution1·12 Mar

The viewpoint of a Clinical Psychologist! @NfPatients Excellent interview with Dr. Louise Robinson is a Consultant Clinical NF2 Psychologist who works at Manchester University Hospital Foundation NHS Trust and The Christie Hospital in Manchester. nf-patients.eu/magazine/how-t… #endNF2

English

NF2 BioSolutions UK & Europe@nf2biosolution1·10 Mar

Brain Tumour Awareness Month shines a light on all types of brain tumours — including benign (non‑cancerous) brain tumours - The type generally associated with NF2, which can still have serious effects because they grow inside the skull and press on important brain structures.

English

NF2 BioSolutions UK & Europe@nf2biosolution1·9 Mar

Come and join us at our Virtual Coffee Meet and meet other NF2ers. (carers/family welcome) Date: 24th March 10.30am GMT Have a chat, say hi or just enjoy the company Sign up here: forms.gle/Rx5H75g7PomZ7p… WE WILL BE EXPLORING MEDITATION & WELLBEING #endNF2 #NF2awareness #NF2

English

NF2 BioSolutions UK & Europe@nf2biosolution1·8 Mar

Today is International Women's Day and it is no secret that NF2 BioSolutions would be nothing without the women who created it, without the women driving us forward towards the day when we can finally #EndNF2. Our fight would be nothing without the efforts of the women #endNF2

English

NF2 BioSolutions UK & Europe@nf2biosolution1·6 Mar

Some rare diseases become widely recognised while others remain almost invisible. It usually comes down to a mix of social, scientific, & economic forces that shape what the public hears about. Awareness matters enormously in rare disease #endNF2 #NF2awareness #NF2Schwannomatosis

English

ค้นพบ

@OscarsCharity @braintumourrsch @NfPatients @elonmusk @BarackObama @taylorswift13 @cristiano @BillGates