phaware®

Two Rare Diagnoses, One Powerful Partnership 💙 Neal McDermott and Dr. Steve Mathai share how trust, early action, and personalized care can change outcomes for patients living with scleroderma and PAH. @phaware podcast ep 564 @HopkinsMedicine LIKE, SHARE, FOLLOW

Two Rare Diagnoses, One Powerful Partnership 💙 Neal McDermott and Dr. Steve Mathai share how trust, early action, and personalized care can change outcomes for patients living with scleroderma and PAH. @phaware podcast ep 564 @HopkinsMedicine medium.com/p/im-aware-tha…

The Untold Struggles of PH Patients. Beyond test results and procedures, PH patients fight silent battles every day. Dr. Khushboo Goel discusses how support groups are changing how she treats the disease. @phaware podcast ep 563 #phawareMD @CedarsSinai Like, Share, Subscribe

The Untold Struggles of PH Patients. Beyond test results and procedures, PH patients fight silent battles every day. Dr. Khushboo Goel discusses how support groups are changing how she treats the disease. @phaware podcast ep 563 #phawareMD @CedarsSinai medium.com/p/im-aware-tha…

TBX4 holds clues to life-threatening lung disease starting before birth. Ripla Arora, PhD explains how her foundational research is shaping a worldwide push to understand and prevent pulmonary hypertension. 🌍 @phaware podcast ep 562 @TBX4_Life @PHatStanford @michiganstateu

TBX4 holds clues to life-threatening lung disease starting before birth. Ripla Arora PhD's foundational research is shaping a worldwide push to understand and prevent pulmonary hypertension. @phaware podcast ep 562 @TBX4_Life @PHatStanford @michiganstateu medium.com/p/im-aware-tha…

Coming this March on "I'm Aware That I'm Rare the @phaware podcast... All-New dynamic stories from PH patients, caregivers and medical professionals from around the world. Like, Subscribe and Follow us at: phawarepodcast.com

February on the @phaware podcast was a deep dive into the world of TBX4 syndrome, highlighted the work of @TBX4_Life, showcasing how this Int'l Scientific Consortium is driving awareness and funding research for families navigating a TBX4 diagnosis. mailchi.mp/phaware/febpod…

Cracking the Code: How Genetics Is Rewriting Neonatal Medicine. Dr. Jeffrey Whitsett reflects on 50 years in neonatal care and how TBX4 and other rare genes are transforming lung development research. @phaware podcast ep 561 @TBX4_Life Listen | Subscribe: phawarepodcast.libsyn.com/site/episode-5…

Topline results from the Phase 3 PROSERA study have now been released. Importantly, the open-label extension study will continue, allowing patients to remain on treatment while further data are collected. Read more on the company press release: ir.gossamerbio.com/news-releases/…

We know how life-changing it is when you meet others who "just get it." Our partners at @pulmonaryhypertensionnews and @bionews_rare are giving away two $2,500 grants to help members of the rare community attend upcoming conferences. Scan the QR code for details. Apply by March 6

phaware® Launches Heart Works Mobile App in Celebration of Rare Disease Day (February 28), Connecting the Global Pulmonary Hypertension Community Through Innovation, Education, and Lived Experience. mailchi.mp/phaware/heartw…

Cracking the Code: How Genetics Is Rewriting Neonatal Medicine. Dr. Jeffrey Whitsett reflects on 50 years in neonatal care and how TBX4 and other rare genes are transforming lung development research. @phaware podcast ep 561 @TBX4_Life medium.com/p/im-aware-tha…

Your Daily Dose of PH News Designed to Educate and Empower the Global PH Community. Download the New Pulmonary Hypertension Mobile Research & Resource App from @phaware. Learn more: phaware.global/heartworksapp

@EuropePHA @PHACanada @teamphhope @TBX4_Life @curehht

Introducing the @phaware Chatbot. Get Answers to Questions Based on Real-World Patient Experiences. Only on the Heart Works - phaware® Research and Resource App. Download it Today on the Apple and Google Play App Stores. Learn more: phaware.global/heartworksapp

From Knee Pain to Gene Discovery. Luke Stockdale shares how a routine family knee issue led to a TBX4 mutation diagnosis and its link to PAH. A story of genetics, advocacy, and hope. @phaware podcast ep 560 @TBX4_Life Listen | Like | Subscribe |Follow ow.ly/rxYu50YhjbM

From Knee Pain to Gene Discovery 🦵➡️🧬 Luke Stockdale shares how a routine family knee issue led to a TBX4 mutation diagnosis and its link to PAH. A story of genetics, advocacy, and hope. @phaware podcast ep 560 @TBX4_Life medium.com/p/im-aware-tha…