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Heartbroken beyond words can express. We had to say goodbye to the best boy, #cancersniffer #lifesaver #myshadow #intuitive #loving - you gave us 15 years of joy. I am lost without you 💔 #thankyouSid
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Eileen OS
59.3K posts
Eileen OS
@eosull
Investment/Capital Markets Professional - independent Cancer Patient Advocate #EvidenceBased #ProtectCancerPatients RTs R not endorsements #QuackeryKills
Dublin Sumali Ekim 2009
3K Sinusundan2.5K Mga Tagasunod
Eileen OS nag-retweet
Cancer care in Ireland:
New report shows Irish patients have to wait twice as long for access to new life saving medicines.
#IPHAForum discussion highlights some of the issues.
Dr Austin Duffy consultant oncologist
@eosull
@IrishCancerSoc
@MarieKeating
@hseNCCP
IPHA@ipha
If you missed yesterday's #IPHAForum Series event about cancer, watch it here bit.ly/3yZKtaR. Learn how Ireland fares on cancer survival rates in western Europe - and what we need to do to accelerate patients' access to the latest oncology treatments. #InnovateForLife
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Eileen OS nag-retweet
This is great &ks all the jurors&those who provided knowledge and skills to this forum. We cannot ignore the elephant in the room of GMI/Genuity taking Irish peoples &patients data for no benefit to Irish public with millions of public investment DonnellyStephen @SusanMitchell_
IPPOSI@IPPOSI
Jurors really wanted to ensure that their voice was heard. Today, they appear before the National Steering Group for Genetics and Genomics to share the verdict, including an appeal for more public engagement around ‘tricky’ health topics. Further info here bit.ly/IPPOSI22JuryRe…
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@paddycosgrave It’s the level of stupidly from dedicated elite athletes that is a shame. We all do/say stupid things but this is being absolute twits which is just so disappointing albeit I applaud their sporting achievement
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I just cannot process the levels of public outrage from certain figures to oh ah up the ra.
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@_PetInsurance_ @CBridge_Chief @DPCIreland It’s not specifically about the security of the data. It is about requesting personal data that is not necessary. This is against GDPR, eg demanding detailed personal data fm owners of pets to even give pet insurance quote @DPCIreland
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@eosull @CBridge_Chief @DPCIreland Hi Eileen, Thank you for taking the time to raise your concerns with us. We take the security of personal data very seriously therefore I have noted your comments and escalated internally so the process can be reviewed. Lorna
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@_PetInsurance_ why is the owners data of birth required in order for you to provide a quote for pet insurance? How is this relevant ? #GDPR @CBridge_Chief
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Eileen OS nag-retweet
"A future without arthritis cannot be possible without research" @grainne_oleary CEO @Arthritisie speaking at "Improving Arthritis Research Outcomes with Patient Engagement across Ireland" for #WorldArthritisDay2022 #PPIFestival22
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@UCD_PPI_Ignite @PPI_Ignite_Net @UCDLibrary @reculture_ucd @UCD_Research @mulcahyforbes @CiarnMartinFit1 In relation to the environment of publish or perish, academic weakness/outright fraud non peer & peer reviews pre publications eg Covid and such abject failures by some once renowned publishers. Is scientific publishing broken. Why should patients align ? Any comments @drg1985
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@eosull @PPI_Ignite_Net @UCDLibrary @reculture_ucd @UCD_Research @mulcahyforbes @CiarnMartinFit1 In this webinar our panel of journal editors & publishers will be discussing the role of scientific journals in fostering PPI in research, as they are influential actors in academia & research. Their influence can impact the research being performed itself. I hope this clarifies!
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We hope you enjoyed both of the events we had on yesterday - we know we did!
Next up is our Friday lunchtime Webinar, about the role of the publisher in PPI. Stay tuned to meet our speakers!
Be sure to register for the free event here -> ucd-ie.zoom.us/webinar/regist…
#PPIFestival22
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Brilliant welcome for Vera Pauw's Ireland team at Dublin Airport in the wee hours of the morning ☘️
twitter.com/JonathanFAI/st…
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The development of this Citizen's Jury report on #Genomics in healthcare and research was a superb citizen engagement process that @RCSI_PPI_Ignite @Futureneuro_ie gladly partnered on. We will use deliberative dialogue w/neurological stakeholders next month to explore further.
IPPOSI@IPPOSI
The 24 jurors of the @IPPOSI Citizens' Jury on the Future Use of Genomics in Health Care and Research in Ireland are proud to announce their verdict! If you are interested, check out the full findings at bit.ly/IPPOSI22JuryRe… #citizensjury #ppi
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Eileen OS nag-retweet
“We are playing for our girls in Iran.” Swedish Women's National Soccer Team posted this on IG in support of the Iranian women before the game with France.
#MahsaAmini #IranProrests2022
#مهسا_امینی #IranProtests
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@Flaps_OHoolahan @RealDeniseWelch Well said. She is irresponsible and ego driven - a really bad case of #DunningKrugerEffect
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Are you absolutely fucking joking Piers Morgan!!! You scaremongered, terrified people, called people akin to murderers, called me a covid denier, covidiots!!! You bullied and harassed because you DID NOT DO YOUR OWN HOMEWORK!!!!!
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Eileen OS nag-retweet
Ladies #MakeTheRequest at your next Screening Mammogram
Breast Density is a Risk Factor for #Breastcancer and you should be appropriately notified @EUSOBIyc @IrishCancerSociety #CareForYourPair
@MarieKeating #Notjustpink acrobat.adobe.com/link/track?uri…
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Eileen OS nag-retweet
Almost none of what follows in this thread is true.
Transgenerational epigenetic inheritance has never been shown in humans, and in mice, the results are pretty ropey on the whole, underpowered, statistically questionable.
Exercise, eat well, but not because of flakey science.
Dr. Rhonda Patrick@foundmyfitness
Exercise can affect your unborn children's genes by altering the chemistry of DNA in sperm and egg cells. Aerobic exercise for 3 months altered sperm DNA by silencing genes linked to the risk of autism, OCD, Alzheimer’s, obesity, type 2 diabetes, and atherosclerosis.
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Eileen OS nag-retweet
These muppets (I am being kind) have treated me disgracefully and lost my baggage.
Their online 'tracing' system couldn't find the bag, so they just terminated my request, and Dublin Airport don't answer queries about luggage.
Stuck. Can anyone help? I have all the tags.
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Successful Site Initiation Visit for an exciting new clinical trial in oncology dietetics opening soon @ucc
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@little_emmabird @drg1985 @FryRsquared @sky__john I would be the opposite, I would not trust an oncologist who did not tell me the truth when they kNOW that something is WOO . That would be unethical, a lack of a duty of care and most likely result in them being sanctioned
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@eosull @drg1985 @FryRsquared @sky__john And if my oncologists said "that's woo woo!" I would have trouble trusting her judgement to be honest with you... I did have to pester to get access to Palbociclib, even though it was available. Such if life, eh...?! Oncologists aren't God's! 🤷♀️
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One of the most frustrating things with cancer misinformation is that while stories of patients ostensibly healed by 'miracle' alternative medicine get shared constantly, those sharing never seem to realise that these patients passed away soon after..
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@little_emmabird @eosull @FryRsquared @sky__john Not meaning to disparage here but research is a skill that requires training, and years to master. Scientists and doctors are trained in evidence synthesis and if there's anything that might prolong life with good evidence an oncologist will know it..
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@little_emmabird @drg1985 @FryRsquared @sky__john Technically lots is not known but often mechanism of actions are. Anyways Emma have a nice day. Can’t see that we are going to agree. I’m all about evidenced based and ethics - I have seen horrendous harms and exploitation with non evidenced based codswallop and woo
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@eosull @drg1985 @FryRsquared @sky__john Key phrase is "we don't know"...
cancerresearchuk.org/about-cancer/c…
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