angela mv/p 💁🏻‍♀️

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angela mv/p 💁🏻‍♀️

angela mv/p 💁🏻‍♀️

@ItsAngInLA

🦠 personal #LongCOVID clinical research social acct | she.he.ella.èl| Los Angeles 🐦🙋🏻‍♀️ #NEISvoid #MCAS #hEDS #HyperPots #MECFS #UCTD #MigraineChat

Los Angeles, CA Tham gia Kasım 2019
2.5K Đang theo dõi3.2K Người theo dõi
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Carol 🛌👩‍🦼😷
Carol 🛌👩‍🦼😷@TickedOffCodess·
Very severe ME means lying in a dark room 24/7. No phone. No music. No visitors. Not because you’re resting. Because your nervous system can’t handle any of it. #MEawareness
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Patient-Led Research Collaborative
We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @RTHM_Health to help patients & providers explore treatment options together. The guide focuses on 24 medications, but includes a few other interventions for breadth /1 rthm.com/treatmentguide
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S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
Important point: patients are not voluntarily hyperventilating or breathing abnormally. Patients have dysfunctional breathing and hyperventilation BECAUSE of cardiac preload failure and cerebral hypoperfusion. #MECFS #POTS #LongCOVID #Dysautonomia
Brandon Luu, MD@BrandonLuuMD

Dysfunctional breathing seems to be strongly linked to chronic fatigue A study found 71% of people with chronic fatigue had abnormal breathing during exercise testing Dysfunctional breathing: 42% vs 16% controls Hyperventilation: 32% vs 4% controls

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angela mv/p 💁🏻‍♀️
@JackHadfield14 MCAS doc: cephalosporins (keflex, ceftriaxone), doxycycline, clindamycin better-tolerated than penicillins, bactrim. Fluoroquinolones (levaquin, ciprofloxacin) are toxic to mitochondria & also patients w hypermobility are at increased risk for tendonitis and tendon rupture
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Jack | amatica health
Jack | amatica health@JackHadfield14·
May need to take antibiotics for an infection, interest to here Long COVID & ME anecdotes of safe and harmful antibiotics they’ve used. Which brand to avoid etc
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angela mv/p 💁🏻‍♀️
Anyway now I suspect that whenever my autoimmune disease flares (such as with vaccines), it by definition increases my MAS1 autoantibody activity which worsens my asthma! Fun!
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angela mv/p 💁🏻‍♀️
I have been in a low grade autoimmune flare which my daily HCQ has mostly managed classic symptoms for (mouth sores, fatigue) but which hasn't touched my asthma which is ANGRY, nor did it prevent my COVID toes from coming back.
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Candace D.
Candace D.@DiaryofaSickGrl·
Has anyone ever reversed any of their food allergies? I’ve just gained more and more allergies over the years. I miss a lot of foods.
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Janet Dafoe
Janet Dafoe@JanetDafoe·
Whitney & many of you rely on Medicaid. Congress is voting now to resolve to cut it by over a billion so they can reduce taxes on the rich.Call your congressperson NOW to object! Medicaid hotline: (866) 426-2631 You enter your zipcode. It connects to YOUR rep.
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angela mv/p 💁🏻‍♀️
@__WXMD yo UHC/Optum are requiring a new PA for the high dose Xolair I've been on (that they approved 5 months ago!). They did this with no notice, just denied my refill.
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sorrows, sorrows. prayers
Medications should not be monopolized the way they are in this country. My step brother got 3 months worth of Ozempic for 100 fucking dollars after being prescribed by a doctor, no insurance, in Argentina. Do you know how much it is here WITHOUT insurance? $1200 per pen.
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Alice Wong 王美華
Alice Wong 王美華@SFdirewolf·
Housing stock is already low in cities like Los Angeles. Just think of how accessible housing will be even more scarce after the wildfires not to mention rents will be price gouged due to high demand Everything is connected #LAFirestorm2025 #LAFires
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Alice Wong 王美華
Alice Wong 王美華@SFdirewolf·
I am enraged that mutual aid groups are doing more than the govt. Disability justice teaches us that we are all interdependent and no one gets left behind. We really are all we have. The govt will not save us. #LAFires #LAFirestorm2025
Alice Wong 王美華@SFdirewolf

🔥 Sending solidarity to all the seniors & disabled folks trying to survive #LAFires #LAFirestorm2025 📖Receive a signed copy of Disability Intimacy for every $100 donation to @MaskBlocLA 💰Venmo account.venmo.com/u/MaskBlocLA 📩Email receipt: DisabilityVisibilityProject@gmail.com

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ThePOTSPostman
ThePOTSPostman@ThePOTSPostman·
So I messaged my doctor asking if there were any meds I could trial for my fatigue because it is getting brutal. This was the response I got.
ThePOTSPostman tweet media
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Zahra Khan (she/her) ♿️🦻🏼 زہرا خان
I'm inventing a new term: medical ZEBRAFYING It's when doctors treat something as a rare condition that's not actually rare & it is then used as a way to provide inadequate treatment/Accommodations
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ThePOTSPostman
ThePOTSPostman@ThePOTSPostman·
The Top 5 Enemies of POTS/ Dysautonomia: According to Dr. Charles R. Thompson; in no particular order. Emotional stress Atmospheric stress Orthostatic stress Physical stress Pain. Do you think any should be added?
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Candace D.
Candace D.@DiaryofaSickGrl·
What’s a supplement you actually really like that you feel like actually helps you? One for me is magnesium 😍
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