Kym Winter

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Kym Winter

Kym Winter

@KymFWinter

CEO of @raremindscic. Psychotherapist working with rare disease communities, including those impacted by NET cancers and genetic endocrine disorders

London UK Tham gia Temmuz 2020
96 Đang theo dõi81 Người theo dõi
Sandra Bartolomeu Pires
Sandra Bartolomeu Pires@BartolomeuPires·
"Local mental health teams have told patients that Huntington’s “doesn’t fall under the remit of what they’re able to provide treatment for”." Mental Health is a massive unaddressed gap in HD. Wishing @HDA_tweeting the best of luck in calling for better support tomorrow 🤞💪
The Independent@Independent

Concern over Huntington’s patients ‘turned away’ from mental health support #Echobox=1683610546" target="_blank" rel="nofollow noopener">independent.co.uk/life-style/hea…

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Kym Winter
Kym Winter@KymFWinter·
I love sci fi generally😊, but anyone else excited that rare genetic conditions just got a storyline in Star Trek’s ‘Picard’ , with Jean-Luc and son Jack coming to terms with the emotional impact of inheritance? Ok , it’s a made up one called Irumodic Syndrome , but still..😁
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Kym Winter
Kym Winter@KymFWinter·
Anyone else been feeling ‘out of sorts’ in all the windy weather lately? Turns out an ‘Ill wind really does blow no good…! ‘ Brief Eerie History of How the Wind Makes Us Crazy ‹ Literary Hub lithub.com/a-brief-eerie-…
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Sherry Turkle
Sherry Turkle@STurkle·
The wonderfully talented writer and artist @curtiswords created an infographic summary of my book, "Reclaiming Conversation: The Power of Talk in a Digital Age.” I have already framed it, sent it to my daughter and my editor!
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Kym Winter
Kym Winter@KymFWinter·
Had a great time talking with colleagues @DebraRegier Amy Hunter @GeneticAll_UK and @kathleen_bogart about Psychological Impact of RD’s. thanks so much to @FondationIpsen and @ScienceMagazine for raising awareness of this key area of living with #rarediseases.Do have a listen!
Rareminds@RaremindsUK

Sign up to hear our Founder/Clinical Director @KymFWinter in lively conversation with @regierdebra @GeneticAll_UK and @kathleen_bogart on the Psychological Impact of RareDiseases , thanks to @FondationIpsen and @ScienceMagazine #raredisease #healthcare #mentalhealth

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Rare Disease UK
Rare Disease UK@rarediseaseuk·
📢 Please click to help @GeneticAll_UK, the charity that runs @rarediseaseuk win £1,000 from @Ecclesiastical movementforgood.com/index.php?cn=1…
Genetic Alliance UK@GeneticAll_UK

🤞It only takes one click to help us win £1,000! ow.ly/VGNg50F1PNh Please click to help us support people affected by genetic, rare and undiagnosed conditions. This is an amazing opportunity for us from @Ecclesiastical as part of their #MovementForGood.

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Kym Winter
Kym Winter@KymFWinter·
Have heard too many experiences over the years of no, poor or inadequate provision for families and individuals - especially in ‘ atypical’ situations such as the impact of rare conditions theguardian.com/commentisfree/…
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Rare Disease UK
Rare Disease UK@rarediseaseuk·
'Coordinated rare disease services should include assessment of mental health needs and access to mental health services. This should be extended to carers.' Read more in our report here 👉 ow.ly/BR5o50EJH6n #MHAW #MentalHealthAwarenessWeek
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UKCP
UKCP@UKCP_Updates·
Evidence has continued to confirm the widespread impact COVID-19 is having on mental health. Increasing access to psychotherapy through a choice of talking therapies in the NHS is vital to addressing this increasing need: ow.ly/CKaW50EKJsS #Covid19 #Psychotherapy
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Rare Disease UK
Rare Disease UK@rarediseaseuk·
'Healthcare professionals should be provided with the skills, knowledge and capacity to demonstrate awareness of the emotional challenges of living with a rare disease.' Read our other recommendations 👇 ow.ly/TNFE50EJFR3 #MHAW #MentalHealthAwarenessWeek
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YoungMinds
YoungMinds@YoungMindsUK·
To start #MentalHealthAwarenessWeek, spend 20 minutes having a conversation about mental health with your child. Here are some conversation starters you can use.
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Kym Winter
Kym Winter@KymFWinter·
This book’s quote an oldie now , but a still a goodie .. The title alone means I often reach for its words of wisdom !
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Neuroendocrine Cancer UK #NotJustNECancer
Neuroendocrine Cancer UK #NotJustNECancer@ncukcharity·
Excellent clinical trials design discussion: we must address impact on QofL (Quality of Life) alongside survival - including design to avoid financial, not just physical, toxicity - what matters to patients Simron Singh / John Ramage #ENETs2021 @NeuroEndoTalk
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Rareminds
Rareminds@RaremindsUK·
It's Rare Disease Day! After the past year, this Rare Disease Day feels more important than ever before. So if you have a rare disease, or support the rare disease community in any way, today is for you.
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Khám phá

@BartolomeuPires @HDA_tweeting @RaremindsUK @HDA @curtiswords @DebraRegier @GeneticAll_UK @kathleen_bogart