65MilesIn65Hours4CF
17 posts

65MilesIn65Hours4CF
@65HoursForCF
Raising $1 million for the @cf_foundation ➡️ running 6.5 miles x 6.5 hours for 65 hours. AUG 25-27, 2023 @cff_centralOH #CureCF
Joined Mart 2023
176 Following17 Followers

Slow burn run today.
✅️Slow is smooth ➡️ smooth is fast ✅️
@CF_Foundation @higdonmarathon @CFF_CentralOH
#curecf #cysticfibrosis #MakeCFHistory



Bexley, OH 🇺🇸 English

What's your sign?
Who had a great holiday weekend?
Raise your hand.
My hand is waving high, and my heart is full of love and gratitude, and my stomach is filled with too many burgers and dogs. But hey, it wouldn't be a holiday weekend without a bit of overindulgence, right?
However, some of us were deeply missing our loved ones who have 'moved up’ to heaven, myself included.
On holidays our hearts weigh a little heavier.
Yesterday, I was missing my Jena.
She moved up on 12/4/2006 at the age of 13. For 17 years she usually sends a quick 'hello' with a penny, a song, or the number 13 or 313.
Yesterday, I had stopped at a store and she was weighing heavily on my mind.
I opened my car door, and there was a blue letter J.
Her favorite color was blue.
Her nickname was "J"
Coincidence?
No, I do not believe in them.
It was my Jena stopping by to say hello to her mom.
I'm sure some of you were missing a loved one during the holiday weekend, too.
Would you mind sharing below who your departed loved one is and what their sign to you is?
It would help others who are hurting to know they are not alone and that love never ends.
Bless you, all my fabulous friends!

English

Let the training begin. Long run Monday!
In August, I hit the streets for my 6.5 x 6.5 x 65 passion fundraiser for the @CF_Foundation.
✅️6.5 Miles.
✅️Every 6.5 hours.
✅️For 65 hours.
✅️For CF.
Follow me for more updates on how to support and participate. 🙏


Columbus, OH 🇺🇸 English
65MilesIn65Hours4CF retweeted

Cystic fibrosis is a progressive, genetic disease. People with CF have inherited two copies of the defective CF gene — one copy from each parent. Both parents must have at least one copy of the defective gene. #CFAwarenessMonth
English

Saturday long run.
I don't run for distance. I run for clarity.
Some days, it just takes longer.
@higdonmarathon

Columbus, OH 🇺🇸 English

May is Cystic Fibrosis Awareness Month.
In August, I'll be running 6.5 miles every 6.5 hours for 65 hours to raise $1,000,000 for the @CF_Foundation .
#CureCF
Cystic Fibrosis Foundation@CF_Foundation
May is Cystic Fibrosis Awareness Month!
English
65MilesIn65Hours4CF retweeted

As we recognize Cystic Fibrosis (CF) Awareness Month, we celebrate the progress made to advance the care for people living with CF but also acknowledge the work that lies ahead in our path forward. Learn more: vrtx.com #CFAwarenessMonth #GoingtheDistanceinCF

English
65MilesIn65Hours4CF retweeted

We recently agreed to provide up to $15.5M to Anagram Therapeutics to conduct clinical trials of a novel enzyme replacement therapy that would help improve the digestion of people with #cysticfibrosis. Anagram expects to start a Phase 1 trial this summer.
on.cff.org/3U7H4A0
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Hey @hoka @higdonmarathon @CF_Foundation let us know what you think of our shoe game for the upcoming @RunFlyingPig half marathon. 👇

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@runcamille @lululemon @COROSGlobal @squirrelsnutbut @goodr @usatf @iaunews @USAultrarunning Amazing! Well done and congratulations 👏
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We did it friends 🤗🚀🌖!
Thank you to everyone who believed in me and all the encouragement along the way 🙏💕🎉. I could feel the world cheering me on to go further and farther than I ever have- farther than any woman ever has for 48Hrs 🏃♀️✨✨!
More: instagram.com/p/CqTuscUSxbi/




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.@MakeAWish gave my niece Gabby an experience of a lifetime before she was taken from us too soon by this terrible disease. 🙏
#WeRunTilWereDone #CureCF @CF_Foundation


CNN@CNN
The Make-A-Wish Foundation has announced cystic fibrosis is no longer automatically a qualifying condition, because of “life-changing advances” in the outcome of the disease. cnn.it/3Z1N2U2
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👇 love this! Way to go Grace!
#WeRunTilWeAreDone
Cystic Fibrosis Foundation@CF_Foundation
Grace Lidgett, a teen with cystic fibrosis, was told to stick to sprints because her CF would make it difficult to become a distance runner. Grace was determined to prove CF wouldn't hold her back from her goals. on.cff.org/3YRUZek
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65MilesIn65Hours4CF retweeted

We are investing up to $2M in Nanite Inc. to explore a new way to deliver genetic therapies into the lungs of people with #cysticfibrosis. Polymer nanoparticles could potentially be safer and may be more versatile and stable than other delivery methods. on.cff.org/3yYhV1b
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