Perception Restoration Foundation

@Eisor800526472 Wouldn't hurt to include! Thank you

@PerceptionFdn I have a friend who developed HPPD from cold turkeying an SSRI. Is she able to complete the survey or is this specifically reserved to psychedelics only?

Check out this really good in-depth questionnaire, which asks about what helps, accompanying conditions, patterns of drug use with HPPD, etc.!

"[V]eteran retreat centres like Esalen have traditionally said people should not make major life-decisions for at least two weeks after a spiritual retreat". The same applies also to self-diagnoses people come to, inc. HPPD. A lot of rabbit-holed false positives come to us

@therealbrom Psychedelic addiction, HPPD, depersonalisation-derealisation

there are many important topics in psychedelics that are frequently discussed. what are your favorite "next level" or "under-discussed" topics?

And this has to some extent to be an under-count, because it is subject to survivorship bias. A certain degree of health is required to keep going after a psychedelic crisis, let alone to fill in a survey.

A cool reproduction of HPPD 'after image' effects and visual static

@trpwolff Good point, we should probably have said 'psychedelic users'. This refers to the sample of 2500 users in the 2011 study, the last one done on prevalence: pubmed.ncbi.nlm.nih.gov/21035275/

@PerceptionFdn While this seems important, who or what is meant by "the psychedelic community"?

Around 3.7% of a representative sample of the UK population reported symptoms compatible with Visual Snow; estimated prevalence of HPPD in the psychedelic community is 4.2%. HPPD may affect those with pre-existing visual aberrations. pubmed.ncbi.nlm.nih.gov/31999855/

2. @ThomasKnuijver: an addiction physician who specialises in treating opioid addiction with ibogaine, and has published a case report of ibogaine-induced HPPD!

1. @HolBjo: a Norwegian psychologist working in public health care and Psykolyse, a clinic specializing on psychedelic integration therapy.

Two new members of the Directory this month. We host specialist professionals from around the world with previous experience and expertise in HPPD: a first for a condition that many people struggled to get diagnosed or adequately treated. perception.foundation

And what the hell is 'HERBAL XTC'? Sold from the Buddha's lap upstairs at the shop!

Check out @EdPrideaux's talk on HPPD to the Psychedelic Society of the Netherlands... Live from an Amsterdam smart shop last month! youtube.com/watch?v=jj6xru…

@EdPrideaux has written a new article on HPPD and its links to anxiety and Visual Snow Syndrome for @psysupnet. Check it out: psychedelic.support/resources/hppd…

@PointBreak_1983 I'm glad it's feeling better. Indeed, the DR seems to be the worst feature for some people...

Curious detail in a paper on Visual Snow Syndrome, of which HPPD has been variously deemed a subtype. Some interpret their 'HPPD' - as with voice-hearing and visions in the traditional psychosis spectrum - as being of mystical origin. The same can apply to VSS!

@amyct_ ncbi.nlm.nih.gov/pmc/articles/P… Here you go. Table 7

#HPPD people!! I just got word of a research survey from @EdPrideaux and @PerceptionFdn! This is the most in-depth research questionnaire on HPPD and post-drug visual changes! This is imperative to getting better numbers; understanding the complexeties of HPPD! #VisualSnow

@neurorebelde That's not exhaustive of how addiction works at all. @EdPrideaux of the Foundation just wrote an article on psychedelic psychological dependency: ecstaticintegration.substack.com/p/are-psychede… Also, the study of the thread considered perceived risk in general, not just addiction.

@PerceptionFdn No addiction (in the traditional meaning of the term) is possible to a substance that will have NO effect on the third day of administration (tachyphylaxis). Are side-effect free? Hell no. Can you become an addict? I don’t think so

In 2014, just under 30% between 12-17 believed there was no significant risk from taking LSD 1-2 x a week: a strong increase from 2002 w/out the current 'renaissance'. What would it be now, ten years on, when they're told the drugs are 'safe', 'non-addictive' and 'healing'?

@HolBjo @EdPrideaux @JulesEvans11 Absolutely, yes. I think that the way is acknowledge the possibility of visual changes, but also acknowledging that most people with this are fine and it's normal. Would mean that catastrophising to HPPD would be less likely.

@PerceptionFdn @EdPrideaux @JulesEvans11 Very good article. Curios to hear opinions about routinely warning about and measuring for HPPD pre/post psychedelics. Any risk of making people more aware and worried about visual changes, thereby increasing risk of developing it? Im sure there are good and bad ways to adress it

A new piece on HPPD by @EdPrideaux of the Foundation and @JulesEvans11' Challenging Psychedelic Experiences Project.