Jon Rogers

Highlighting extremely severe cases: I came across this girl on Reddit. Extremely severe #mecfs, can only or barely move her fingers. She’s in the hospital and not being treated like a human. Has no support and wants to hire more care. Malnourished and in extreme pain. I donated. If you can, do so🤍 The sickest in our community needs support the most. Don’t look away. Donate ko-fi.com/aliwme Reddit post reddit.com/r/cfs/s/xnYVTm…

Can someone help my friend Marij? She is a #pwME and needs advice on 1. issues with her heart and 2. iron and transferrin saturation. If you don't have any advice, retweeting her post would also really help! Thank you ♡

@Mazelit_ Shalom! 👋

I have never made a post like this — but can you see me? Pro-Jewish accounts in the past week have been seeing record declines in engagement. Drop a “shalom” if you can see this on your feed 🙏

Scientists just built a delivery system that drops HEALTHY MITOCHONDRIA directly into sick cells — and it rescued dying neurons. As a medical school professor, I've argued for years that mitochondrial dysfunction sits at the root of chronic disease. This Nature paper moves the argument from theory to therapy. The system is MitoCatch. Built by Botond Roska's team at IOB Basel, it uses protein binders to target donor mitochondria to specific diseased cells. What they showed: - Donor mitochondria fuse with the native network and function normally - Rescued retinal ganglion cells from an LHON patient - Improved neuronal survival after optic nerve crush in mice - No detectable immune response If giving a cell fresh mitochondria rescues it from death, the broken mitochondria were the disease. Not a symptom. The cause. Parkinson's. Alzheimer's. Heart failure. Different labels. Same ground zero — the mitochondrion. Full breakdown coming on the Health Longevity Secrets podcast @RobertLufkinMD" target="_blank" rel="nofollow noopener">youtube.com/@RobertLufkinMD Source: nature.com/articles/s4158… #Mitochondria #Neurodegeneration #Parkinsons #HealthLongevitySecrets

BBC Radio Scotland segment on hyperbaric oxygen therapy. Dr Charles Shepherd from the @MEAssociation said we don’t have good research evidence to support its use for #MECFS or #LongCovid, but a lot of patients report they have benefited youtu.be/yx8l7p9qRnk?si…

Very severe should be the poster child for #mecfs, but today it’s thought of as an exception. 1 in 4 are bed-bound: this is not an exception. This is my contribution to shifting the messaging. When people think of ME/CFS, the image of a bed-bound human, isolated in a dark room should come to mind. The rest is on Instagram. instagram.com/p/DXb19uIjcwl/… #mecfs #longcovid

This is a clearer picture of the thug that subjected a visibly Jewish man to this unprovoked attack. If you have any further info please contact @Shomrim @ThamesVP or us.

Non paywalled article. The fab thing about this article is it started out wanting to be pro exercise and couldn't find anyone to back it up properly. Great to see a journo doing a good job! archive.is/2026.04.22-142…

💡 "We should be as cautious with exercise in long covid as we have come to be in ME/CFS...I don’t know how often we need to continue to put our finger on that light socket.” @sunsopeningband GREAT article - completely debunks those trying to push exercise 🙌 newscientist.com/article/252388…

“You dirty motherf***ing Jew.” We are working to identify this thug who violently assaulted a Jewish man shouting “baby killer” at him. No mention of “Zionists” here. This is Jew-hatred without its disguise. This violent assault was captured by a visibly Jewish man who was going about his work. This is the current climate in the UK which has been bred by the inaction and appeasement from the authorities. Jews going about their daily lives are not safe from being subjected to vile assault and violent threats. This incident took place on Monday, 20th April at 16:20 on Elliman Avenue in Slough, SL2 5AZ. If anyone has further information, we urge you to contact the Thames Valley Police immediately using crime reference number 43260192511.

Microdosing GLP-1 for Immune Disorders, incl ME/CFS, long-COVID & autoimmune disease: My First 3 Mos on Tirzepatide (Zepbound) - I explain why these meds (at tiny doses) are used to treat immune disorders, my experience so far, incl dosing & resources. livewithcfs.blogspot.com/2026/01/microd…

🚨 Abhorrent, vile and unprovoked antisemitic assault ⚠️ Video attached, contains offensive language 🚨 A visibly Orthodox Jewish man was minding his own business whilst at work, when he was subjected to this shocking, unprovoked attack. The suspect shouted disgusting antisemitic abuse, including ”dirty mother f***ing Jew” during the assault. 🚔 @ThamesVP @MetPoliceUK 🔢 Crime Reference: 43260192511 📅 Monday 20/04/26 🕓 4:20pm 📍 Elliman Avenue, Slough, SL2 5AZ 📢 Any witnesses, or anyone with further information, are urged to come forward and contact police quoting the above crime reference.

Dear #ME community. I’d really appreciate your support with this request… Someone somewhere has influenced so that these e-learning modules (finally) are advertised. Perhaps they will hear this request to update website information & be able to enact it? Pls RT thread 👇

Pretty euphemisms that grate: "Recovery journey," to describe the experience of ME. It's not a journey, not even figuratively. It's a dead stop. And for most, the reality of recovery is little more than an ever-receding dream. "Lived experience," also dreadful. Try: sick as a dog

Can’t emphasise enough how true this is. The limitations on paid work/parenting imposed by ‘mild’ (50% function loss) #MECFS are appalling. But continuing to push through causes decline to severe— no useful function, complete reliance on others & QoL that is truly, truly awful.

Another arson attack on a Jewish space. Police are investigating an arson attack on a Jewish-owned shop in Watford as religiously aggravated. Authorities were called to the scene on Sunday afternoon following reports of a fire and graffiti. If anyone has information relating to this incident, please contact Hertfordshire Police. The recent spate of arson attacks on Jewish spaces in this country is, worryingly, growing. Last month, four ambulances belonging to Hatzola – the Jewish-run volunteer service – were set on fire. This is the fourth report of an arson attack on a Jewish space in the past week alone. The others include one at a synagogue in Finchley, one at the former site of a Jewish charity and another at a synagogue in Kenton. This is simply untenable. Arson attacks on the Jewish community appear to happen at a daily rate. Who, or what, will be burnt next? We are running out of time to find out, and swift action is urgently needed. We must start with banning Iran’s Islamic Revolutionary Guard Corps. bbc.co.uk/news/articles/…

I was asked by @TheSun to write about what it feels like as a British Jew. Hopefully I summed up how some of you are feeling (obvs I am also waiting for the onslaught of people to tell me how I’m wrong).

New! eLearning: Supporting people with severe ME/CFS Practical guidance for those living with severe ME/CFS. Perfect for carers & support teams. Free access. ⬇️ ow.ly/355E50YMr4v #MECSFSupport #SevereME #ElearningForCarers #MEAwareness

Britain’s March Against Antisemitism and Extremism We’ve had enough. Britain has been radicalised. The time for ‘reassurance’ is over. Join the march to save the decent Britain that we love. Sign up at antisemitism.org/March Britain’s future is in your hands. If people like us stand aside, Britain’s future will be made by ambulance burners and synagogue firebombers. • Islamists and extremists face zero consequences • Britain’s children are being abused, manipulated online and radicalised at our schools and universities • Police and regulators are appeasing fanatics with fundamentally un-British two-tier justice • Our institutions are being rotted by radical agendas and foreign interference and our national broadcaster can’t even call terrorism by its name Now our country is suffering the consequences. On 10th May we march to tell our politicians and authorities to stand up for Britain against antisemitism and extremism. This is the march for all of us. We’ve had enough. Join us.

Please share widely to gain awareness - we need this to reach beyond the usual bubble of those already informed. Good work @actionforme