ISurvivor Lisa Deck

Check out this gig! apply.savvy.coop/parents-covid-…

Forever grateful for the care I received at @SickKidsNews and it’s rather cool to see #Moyamoya featured for #RareDiseaseDay! Proud to advocate with @moyamoyafdn @HouleMoyamoya @lbdeck!

Congratulations - Featured in 2024 Winter #iPainLiving Magazine - #InternationalPainFoundation's Top 2024 #RareDisease #Advocates include - @iPainOfficial @KaplanOLab @keeganj @kenraytaylor @KimSteeleMD @Lene_Jensen_DK @Lia_MedicalMama @lbdeck @michelerhee

Sisters@Heart presents first publicly accessible AED device to Town of North Attleborough   northstarreporter.com/2024/01/18/sis… via @NStarReporter

Football takes on Taunton this THURSDAY at 6pm at Beaupre. Please bring your donations for our Families in Need Drive collected at the ticket gates. @HockomockSchools @NAPublicSchools

Ready to really advocate for your community? Learn the basics of legislative advocacy & how to craft the perfect pitch for legislators in this @WEGOHealth course by @lbdeck Don't miss out: infl.tv/m53c

Thank you @RepAdamScanlon for meeting with me yesterday! I enjoyed our discussion about #CPRwithheart and #AED We appreciate your efforts to champion these important issues @AmericanHeartMA #heartonthehill @SistersAtHeart3

Thank you @PaulFeeneyMA for meeting with me yesterday! I enjoyed our discussion about #CPRwithheart and #AED We appreciate your efforts to champion these important issues @AmericanHeartMA #heartonthehill @SistersAtHeart3

And that’s a wrap! It was amazing to present at the #AAN2023! Very grateful for the opportunity to learn and to share this work with others. #AAN #AANAM2023 #moyamoya #RareDisease #registries #epidemiology

Today I am joining my State House colleagues in wearing red in support of #GoRedforWomen. Heart disease and strokes are the leading cause of death for women; please be aware of your health, and make your heart health a priority. @MAWomensCaucus

Today I’m wearing red on #WearRedDay to encourage women of all ages to take charge of their heart health. Join me, the American Heart Association of Massachusetts, and the Massachusetts Caucus of Women Legislators in the fight against heart disease. #GoRedForWomen

Featuring Massachusetts stroke survivor and patient advocate @lbdeck!

The winner is being pulled tomorrow! It’s your last chance to purchase #taylorswift raffle tickets to win two concert tickets! All to benefit @tri_countycheerleaders bid for Nationals! instagram.com/p/CmaLF-grlgv/…

It was a pleasure to discuss the need for immediate access to #raredisease #patientrecords and protocols with @RD3602. bit.ly/3L4URTk

I’ll be attending the @RallyForNIH in DC after attending a few years ago. Love using my voice for #advocacy & #policychange Who else will be at the #RallyMedRes #stroke #moyamoya

@Purrfectly_Rare @PatientWorthy @RareDiseaseDad @bbhomebody @lisadbudzinski @BarbyIngle @mlweldon5 @WhItscomplex I was just looking for one so this may be perfect. Yet I need to be sure I can and that there is no conflict of interest. Stay tuned!

@PatientWorthy Oh I'm definitely in! What about you @RareDiseaseDad @bbhomebody @lisadbudzinski @BarbyIngle @mlweldon5 @lbdeck @WhItscomplex... & all my other football fan #RareDisease friends?!

Would any of our followers be interested in doing a #FantasyFootball league with us for the coming season? Please let us know if you are interested and we will work on facilitating that! Thanks for the suggestion @Purrfectly_Rare 🏈 #RareDisease

Please join our Twitter chat tomorrow with @EMoriartyWade and @TerriEllsworth for #ClinicalTrialsDay! #CTD2022

There are still stipends available for this awesome #advocacy day! Join @RareAdvocates in #boston for an in person advocacy day!!

@NeenaNizar As beautiful as ever tho 💙

8 months since I had all my teeth removed. Several setbacks and tomorrow I have yet another dental appointment to "assess". Thank God masks are still a thing.. even if I'm the only one at work wearing one! #RareDiseaseTruth

Way to go @cathsmstratton @moyamoyafdn !! Big news for the #moyamoya community!