Ankylosing Spondylitis Info Share

@globetrotteri You rock! Keep up the good work!

My AxSpA Anniversary: 17 years surviving chronic illness, trauma & impossible odds. I navigated heartbreak, exhaustion, and life-threatening health challenges — and finally made the hardest choice of all: putting myself first. Here’s my journey: 🔗 myseveralworlds.com/2026/02/15/17-…

March Arthritis & Rheumatology Clinical Connections • IL-23 Receptor Deficiency in Podocytes Averts Development of Lupus Nephritis • NSAID Intake and Radiographic Progression in AxSpA acrjournals.onlinelibrary.wiley.com/doi/epdf/10.10…

May is Spondylitis Awareness Month!🎉 Whether you shout it from the rooftops or quietly “wear” your awareness, there are many ways to participate, and now is a great time to get started. Check out these EIGHT Ways to Spread Spondylitis Awareness:bit.ly/SpA-Awareness-… #ankylosingspondylitis #chronicpain #spoonies #spondylitis

@KristianRTW @JonnyBones Some videos that may help. Best wishes. @asinfoshare?si=epjiQeeQIj_M9kVq" target="_blank" rel="nofollow noopener">youtube.com/@asinfoshare?s…

@JonnyBones This is facts I have ankylosing spondylitis Can still do everything I used to Just when I get home shit hurts and I feel stiff as a board. After rest it’s all good again.

Random thought: Arthritis hurts, it doesn’t make you cripple. I’m still smashing 99.47% of you out there.

@rodbartruff @grok @elonmusk Some videos that may help. @asinfoshare?si=epjiQeeQIj_M9kVq" target="_blank" rel="nofollow noopener">youtube.com/@asinfoshare?s…

@grok @elonmusk Doctores failed me for years, but I am 90% sure @grok solved my medical issues. grok said axial spondyloarthritis (axSpA), most likely the radiographic form known as ankylosing spondylitis is most likely the issue. now just waiting for test results from quest.

@FatEmperor @SeanCodling @gerdosi Diet Options for Managing Ankylosing Spondylitis youtu.be/s1dvp_HqL3w

@SeanCodling Ankylosing Spondylitis is basically banished on a proper Low Carb diet with grains, seed oils and refined carbs eliminated! @gerdosi can explain :-)

‘Epstein Files’ float at Ballinrobe’s St Patrick’s Day parade! 😂 Awareness on show, awakening present! 👍

@vivapokey @abbbeybee Diagnosing Ankylosing Spondylitis. youtu.be/uVv27qXQXHQ

@abbbeybee Im being investigated for ankylosing spondylitis at the moment as well! They suspect it's more chronic fatigue but AS is one thing they're looking into - either way, 100% feel you on all those symptoms you must have and how it's affecting you. Hope it improves for you soon!

health updates ❤️ thank you so much everyone for your kindness and support it really keeps me going!! never give up!! i can’t wait until i get better so i can be a content BEAST 🤓

@vivapokey @abbbeybee The Symptoms of Ankylosing Spondylitis. youtu.be/k6trbtT_EaI

@3sammycasino99 @SirGizmo170 @ImMeme0 @Abe20255 Some videos that may help. @asinfoshare?si=nYHFnjPTkKGzmJNj" target="_blank" rel="nofollow noopener">youtube.com/@asinfoshare?s…

@SirGizmo170 @ImMeme0 @Abe20255 I live with Ankylosing Spondylitis and the struggle is real bro.

Psychology student with a part-time job, who said just days ago that she stopped standing for the Pledge of Allegiance in high school because our country is racist, is now asking that same country for disability money. The catch is, she can’t even identify her disability. Then there’s another video of her, just days earlier, trying on a Renaissance outfit. Take a wild guess and try to figure out what her disability is.

#WORDDay #WorldYoungRheumaticDiseasesDay #JuvenileSpondyloarthritis #JSpA #Spondylitis #SpA #PediatricRheumatology #SpondylitisAwareness

@HaramiParindey Awesome. Good job!!!!

After 6 years of not working out, screwing up my back, and developing cervical spondylitis, I was finally able to do my first set of non-assisted pull-ups today. I know it isn’t much, but it feels like a personal victory.

MARK YOUR CALENDARS! #WorldASDay2026 is May 2nd, and #WalkYourASOff 2026 is May 3rd. Michael Mallinson tells us what it's all about on the #ASInfoShare podcast. #axSpA #AS #notonlybackpain youtu.be/mHyJdyvQfCk

@AWyattMa @ItsGoneAwry What is Ankylosing Spondylitis? youtu.be/ecmEmrYgAzE

@ItsGoneAwry Autoimmune disease. Ankylosing spondylitis?

I’m the sickest I’ve been in awhile and the doc at urgent care says “it’s probably allergies.” Why are they like this? I could barely get myself dressed to even come to the doc, can barely talk, and she says allergies? Anyway, I was able to get a steroid pack and antibiotics, but that was only after telling her I’m already doing all the other meds she wanted me to try. They really think we’re just idiots don’t they?

@Stephanie320xie @elonmusk Perhaps he would like to be a guest on our podcast?

@elonmusk My father is a Chinese medicine doctor with 30 years of clinical success treating ankylosing spondylitis and rheumatoid arthritis. He hopes to demonstrate a verified TCM treatment system that could help patients worldwide. Hope to help more people in the world!

@litldov1 @Burgess7281975 Some videos that may help. @asinfoshare?si=vYq9TX4m_dWhAko4" target="_blank" rel="nofollow noopener">youtube.com/@asinfoshare?s…

@Burgess7281975 that I understand about pain, I have a form of arthritis of the spine that is painful. It is called ankolosing spondylitis, arthritis of spine. May God bring healing and relief to your friend and take away the pain and suffering from him. Amen

Friends, Please join us in a prayer request. Saint Gemma Galgani, please intercede by and through the Holy Name and Precious Blood of Our Lord on behalf of my friend Randy who is suffering severe back pain. Amen

@GrammyLatte @1True_American_ Quick Relief Tips for Ankylosing Spondylitis Flare-Ups youtu.be/VjvfIeJ8TNA

@1True_American_ Praying that you get some relief from the flare 🙏 I suffer from ankylosing spondylitis and I'm having a flare also.

Everything is a bit too big and too much right now. And I don’t want to go to PT. In a flare. Which defeats the purpose of PT. Y’all have a great morning and early afternoon. In every season God is with us. Even the yucky ones. 🙏🏼❤️

@HenkMeewis11869 @windgieindgie @Jenny_1884 @JillianDawnClar Some videos that may help. @asinfoshare?si=xIfve8_CMBu1_SGH" target="_blank" rel="nofollow noopener">youtube.com/@asinfoshare?s…

@windgieindgie @Jenny_1884 @JillianDawnClar One of my daughters got ankylosing spondylitis, probably from a vaccine as well. As a parent I feel guilty about that.

Who else is more sceptical about taking any type of vaccines nowadays? Has the trust gone?

@AWyattMa @HansAmato Some videos that may help. @asinfoshare?si=xIfve8_CMBu1_SGH" target="_blank" rel="nofollow noopener">youtube.com/@asinfoshare?s…

@HansAmato Exactly me. Turned out to be ankylosing spondylitis. Required a genetic marker test. I now take humira

I spent $12,000 on therapy over 2 years trying to fix my anger before someone checked my blood Was snapping at my girlfriend over nothing. Road rage every commute. Constant irritability that I'd mask all day at work and then explode the second I got home. Therapist said it was unprocessed childhood trauma. We spent 2 years unpacking my relationship with my father Here's what was actually happening in my body: my gut was leaking endotoxin into my bloodstream which was keeping my immune system in a permanent inflammatory state. Chronic inflammation elevates cortisol. Elevated cortisol burns through magnesium. Low magnesium destroys GABA production. Without GABA your nervous system has no brake pedal I didn't have an anger problem. I had no neurological ability to regulate a stress response because my inhibitory system was running on empty Nobody tested this. Not my therapist. Not my doctor. Not the psychiatrist who suggested I "might benefit from an SSRI to take the edge off" 3 practitioners. 2 years. $12,000+. Zero blood draws Fixed my gut. Restored magnesium and zinc. GABA came back online. The rage disappeared in weeks. Not managed. Not suppressed. Gone. Because the thing causing it was gone I think about those 2 years of therapy sessions analyzing my childhood while my body was on fire and nobody thought to check. Talking about my father while my cortisol was 3x baseline because my intestinal lining had holes in it The mental health industry is billing $280 billion a year in the US. Almost none of it starts with blood work If you're doing everything right psychologically and still can't control your reactions, you might not have a mind problem. You might have an inflammation problem that no one in the room is trained to find

@toranu77 @rishibagree What is Ankylosing Spondylitis? youtu.be/ecmEmrYgAzE

@rishibagree Probably Ankylosing spondylitis. It doesn't let you bend even for Allah. Painful. 😭

What kind of namaz is being offered by him ???

World AS Day events are happening worldwide. Visit asif.info/worldasday to see events you can join. Planning your own? Share your event with us through the website and help bring the axSpA community together. #WorldASDay2026 #NotOnlyBackPain